Rubinstein-Taybi Syndrome
Patient Resources

Resources for Patients and Families

When you have a child with special healthcare needs, learning about resources and how to access support becomes critical. Our program has assembled a list of resources that may be helpful to you and your family.

Rubinstein Library

The Rubinstein Library at Cincinnati Children's provides extensive health-related information on developmental and behavioral issues and related children’s health conditions.

RTS-OKI (Ohio, Kentucky, Indiana) Family Support Group

This group gathers quarterly and is free to any child or individual who has RTS, and their family members and caregivers.

The purpose is to provide families with timely information and education, as well as unique experiences designed to foster a good life in the community.

For more information, contact our Family Support Coordinator at 513-636-4723 or

University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD)

The UCCEDD provides resources, support and opportunities for education and recreation for individuals with Rubinstein-Taybi Syndrome and their families.