Resources for Patients and Families
When you have a child with special healthcare needs, learning about resources and how to access support becomes critical. Our program has assembled a list of resources that may be helpful to you and your family.
The Rubinstein Library at Cincinnati Children's provides extensive health-related information on developmental and behavioral issues and related children’s health conditions.
RTS-OKI (Ohio, Kentucky, Indiana) Family Support Group
This group gathers quarterly and is free to any child or individual who has RTS, and their family members and caregivers.
The purpose is to provide families with timely information and education, as well as unique experiences designed to foster a good life in the community.
University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD)
The UCCEDD provides resources, support and opportunities for education and recreation for individuals with Rubinstein-Taybi Syndrome and their families.