University of Cincinnati University Center for Excellence in Developmental Disabilities: is a leader in working with and on behalf of children and adults with disabilities and their families so they can lead the lives they want. UC UCEDD accomplishes its mission through education, training, research, impacting on policy, and sharing information
Cincinnati Children’s Hospital Medical Center Special Needs Resource Directory
This is an on-line resource directory which houses numerous resources related to support families and children with disabilities.
Rubinstein Library and Resources
The Rubinstein Library at Cincinnati Children's is a library for families, students, and professionals which provides a variety of books and resources focusing on children with developmental disabilities. It includes a toy library and software available for borrowing.
American Occupational Therapy Association the national professional association to represent the interests and concerns of occupational therapy practitioners and students of occupational therapy and to improve the quality of occupational therapy services
American Physical Therapy Association: the national professional association transforming society by optimizing movement to improve the human experience.
American Speech-Language-Hearing Association: making effective communication, a human right, accessible and achievable for all.
Ohio Department of Developmental Disabilities; an agency in Ohio supporting children and individuals with developmental disabilities. Each county has a board of developmental disabilities with various services and opportunities. In Hamilton County, CITE services can provide in-home based behavioral supports.
Envision partners with families and community agencies to support a full and meaningful life for children and adults with developmental disabilities.
CCHMC Family Financial Advocate: They help you navigate the system and find all the payment options for you (think coupons for medical services). And it's super easy to get enrolled, just email email@example.com and they will send you a packet of info. They will walk you through all of it and get to work finding the best resources for you. You are going to say "we don't qualify financially, we make too much money for financial assistance." To which they will say, apply anyway. They have helped 95% of the families they work with.
The federal Achieving a Better Life Experience (“ABLE”) Act. allows individuals with disabilities to save and invest money without losing eligibility for certain public benefits programs, like Medicaid, SSI, or SSDI. Earnings in your STABLE Account are not subject to federal income tax, so long as you spend them on “Qualified Disability Expenses.”
Ohio: STABLE Accounts have some similar features to normal bank accounts, but they are not checking or savings accounts. STABLE Accounts are investment accounts, similar to 529 college savings accounts or 401(k) retirement accounts. When you deposit money into your STABLE Account, your money will be invested in different options that you choose. While you can still withdraw and spend your money whenever you need it, a STABLE Account also allows you to grow your money and to save long-term for disability expenses
Kentucky:There are minimal costs associated with maintaining a STABLE Kentucky Account. Kentucky residents with an account will pay $5 a month ($60 annually) for maintenance. Account holders will also have a small asset-based fee.
Indiana: As of January 2017, Indiana was still developing their process for the ABLE Act.
Resources for Grants
United Healthcare Children’s Foundation: is a 501(c)(3) charitable organization that provides medical grants to help children gain access to health-related services not covered, or not fully covered, by their family’s commercial health insurance plan.
Paige’s Princess Foundation, Inc. is a non-profit organization providing small grants to pediatric patients seen at CCHMC with life-long disabilities.
Disability Rights Ohio is a non-profit corporation with a mission to advocate for the human, civil and legal rights of people with disabilities in Ohio. This agency envisions a society in which people with disabilities are full and equal members, enjoy the rights and opportunities of all people, are self-directed, make decisions about where, how and with whom they will live, learn, work and play, have access to needed services and supports, and are free from abuse, neglect, exploitation and discrimination.