Special Needs Resource Directory

  • Medical Home

    A medical home is not a building, house, or hospital, but rather an approach to providing comprehensive primary care. The creation of a medical home for children with special healthcare needs and their families is an essential child health outcome promoted by the American Academy of Pediatrics. A medical home addresses how a primary healthcare professional works in partnership with the family / patient to assure that all of the medical and non-medical needs of the patient are met. A medical home is defined as primary care that is:

    • Accessible
    • Continuous
    • Comprehensive
    • Family-centered
    • Coordinated
    • Compassionate
    • Culturally effective

    The primary health care professional can help provide access to and coordinate specialty care, educational services, in and out of home care, family support and other public and private community services that are important to the overall health of the child / youth and family.

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    Center for Medical Home Initiatives

    The National Center for Medical Home Initiatives, an initiative of the American Academy of Pediatrics, helps ensure that all children and youth, including children with special needs, have access to a medical home:

    AAP Committee on Pediatric Education

    AAP Committee on Pediatric Education (COPE), in coordination with member organizations, reviews and monitors the field of pediatric education, identifies gaps or areas in need of enhancement, and recommends appropriate strategies to the common goal of advancing pediatric education. They provide information on new studies, including educational goals and related resources for the provision of culturally effective pediatric care.

    Institute for Family-Centered Care

    Institute for Family-Centered Care has information and resources to help foster a partnership between families and healthcare providers.

    Family Voices

    Family Voices has publications on building health care professional / family partnerships.

    Champions for Inclusive Communities

    Champions for Inclusive Communities has information and resources that support family-centered care.

    Family-Centered Care Fact Sheet

    Family-Centered Care Fact Sheet from the U.S. Department of Health and Human Services.

    Institute for Healthcare Improvement

    Institute for Healthcare Improvement (IHI) identifies initiatives for improving patient care, and helps health care systems put those ideas into action. They offer continuing education opportunities, including coordinating care for patients with complex medical needs.


 
  • Contact Us

    We want to hear from you. Email us with your feedback or suggestions for additional resources. Call our Family Resource Center at 513-636-7606 with your questions.