Kasparian Lab

Publications

Tesson, S; Swinsburg, D; Nielson-Jones, C; Costa, DS J; Winlaw, DS; Badawi, N; Sholler, GF; Butow, PN; Kasparian, NA. Mother-Infant Dyadic Synchrony and Interaction Patterns After Infant Cardiac Surgery. Journal of Pediatric Psychology. 2024; 49:13-26.

Phillips, K; Callaghan, B; Rajagopalan, V; Akram, F; Newburger, JW; Kasparian, NA. Neuroimaging and Neurodevelopmental Outcomes Among Individuals With Complex Congenital Heart Disease: JACC State-of-the-Art Review. Journal of the American College of Cardiology. 2023; 82:2225-2245.

Elhoff, JJ; Kasparian, NA. If Not Now, When? Taking Action to Improve Mental Health Outcomes for Families of Children With Heart Disease. Pediatric Critical Care Medicine. 2023; 24:966-969.

Miles, KG; Farkas, DK; Laugesen, K; Sørensen, HT; Kasparian, NA; Madsen, N. Mental Health Conditions Among Children and Adolescents With Congenital Heart Disease: A Danish Population-Based Cohort Study. Circulation. 2023; 148:1381-1394.

Johnson, S; Kasparian, NA; Cullum, AS; Flanagan, T; Ponting, C; Kowalewski, L; Main, EK. Addressing Adverse Childhood and Adult Experiences During Prenatal Care. Obstetrics and Gynecology. 2023; 141:1072-1087.

Verrall, CE; Patel, S; Travitz, L; Tchieu, J; Dale, RC; Kasparian, NA; Winlaw, DS; Blue, GM. Biological and structural phenotypes associated with neurodevelopmental outcomes in congenital heart disease. Translational Pediatrics. 2023; 12:768-786.

Tesson, S; Butow, PN; Marshall, K; Fonagy, P; Kasparian, NA. Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis. Health Psychology Review. 2022; 16:378-411.

Kovacs, AH; Brouillette, J; Ibeziako, P; Jackson, JL; Kasparian, NA; Kim, YY; Livecchi, T; Sillman, C; Kochilas, LK. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circulation: Cardiovascular Quality and Outcomes. 2022; 15:e000110.

Kasparian, NA; Kovacs, AH. Quality of Life and Other Patient-Reported Outcomes Across the Life Span Among People With Fontan Palliation. Canadian Journal of Cardiology. 2022; 38:963-976.

Kasparian, NA; Lourenco, RD A; Winlaw, DS; Sholler, GF; Viney, R; Kirk, EP E. Tell me once, tell me soon: parents' preferences for clinical genetics services for congenital heart disease. Genetics in Medicine. 2018; 20:1387-1395.

Tesson, S; Swinsburg, D; Nielson-Jones, C; Costa, DS J; Winlaw, DS; Badawi, N; Sholler, GF; Butow, PN; Kasparian, NA. Mother-Infant Dyadic Synchrony and Interaction Patterns After Infant Cardiac Surgery. Journal of Pediatric Psychology. 2024; 49:13-26.

Phillips, K; Callaghan, B; Rajagopalan, V; Akram, F; Newburger, JW; Kasparian, NA. Neuroimaging and Neurodevelopmental Outcomes Among Individuals With Complex Congenital Heart Disease: JACC State-of-the-Art Review. Journal of the American College of Cardiology. 2023; 82:2225-2245.

Elhoff, JJ; Kasparian, NA. If Not Now, When? Taking Action to Improve Mental Health Outcomes for Families of Children With Heart Disease. Pediatric Critical Care Medicine. 2023; 24:966-969.

Miles, KG; Farkas, DK; Laugesen, K; Sørensen, HT; Kasparian, NA; Madsen, N. Mental Health Conditions Among Children and Adolescents With Congenital Heart Disease: A Danish Population-Based Cohort Study. Circulation. 2023; 148:1381-1394.

Schweiberger, K; Harris, KW; Kavanaugh-McHugh, A; Soudi, A; Arnold, RM; Merlin, JS; Kasparian, NA; Chang, JC. "I Just Want You to Hear That Term ": Characterizing Language Used in Fetal Cardiology Consultations. Journal of Cardiovascular Development and Disease. 2023; 10:394.

Eagleson, KJ; Mccombs, D; Gerlich, TM; Justo, RN; Kasparian, NA; Bora, S. Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease. Journal of Pediatric Psychology. 2023; 48:537-552.

Johnson, S; Kasparian, NA; Cullum, AS; Flanagan, T; Ponting, C; Kowalewski, L; Main, EK. Addressing Adverse Childhood and Adult Experiences During Prenatal Care. Obstetrics and Gynecology. 2023; 141:1072-1087.

Kim, ME; Kasparian, NA; Zang, H; Pater, C; Chlebowski, MM; Marcuccio, E; Florez, A; Morales, DL S; Madsen, N; Moore, RA. Are Parent Discharge Readiness Scores Effective for Patients With Congenital Heart Disease After Cardiac Surgery?. The Journal of Pediatrics. 2023; 257:113361.

Harris, KW; Schweiberger, K; Kavanaugh-McHugh, A; Arnold, RM; Merlin, J; Kasparian, NA; Chang, JC. Introducing Uncertainty: An Observational Study of Conversations on Prenatal Diagnosis of Complex Congenital Heart Disease (Sci238). Journal of Pain and Symptom Management. 2023; 65:e660-e661.

Verrall, CE; Patel, S; Travitz, L; Tchieu, J; Dale, RC; Kasparian, NA; Winlaw, DS; Blue, GM. Biological and structural phenotypes associated with neurodevelopmental outcomes in congenital heart disease. Translational Pediatrics. 2023; 12:768-786.

Kavanaugh-McHugh, A; Arnold, R; Merlin, J; Kasparian, N; Chang, J. O.O.4.4 “I just want you to hear that term”: Characterizing language used in fetal cardiology consultations Presenter(s): Kelly Harris, University of Pittsburgh School of Medicine, United States; Kelsey Schweiberger, University of Pittsburgh School of Medicine, United States. Patient Education and Counseling. 2023; 109:107.

Akram, F; Pidcock, M; Oake, D; Sholler, GF; Farrar, MA; Kasparian, NA. "The usual challenges of work are all magnified ": Australian paediatric health professionals' experiences during the COVID-19 pandemic. International journal of cardiology congenital heart disease. 2023; 11:100434.

Kasparian, NA; Sadhwani, A; Sananes, R; Blumenfeld, E; Butcher, JL; Cassidy, AR; Cox, SM; Kenowitz, J; Miller, TA; Sanz, JH; et al. Telehealth services for cardiac neurodevelopmental care during the COVID-19 pandemic: a site survey from the Cardiac Neurodevelopmental Outcome Collaborative. Cardiology in the Young. 2023; 33:280-287.

Paguinto, SG; Kasparian, NA; Bray, P; Farrar, M. Multidisciplinary perspectives and practices of wheelchair prescription for children with neuromuscular conditions. Disability and Rehabilitation: Assistive Technology. 2023; 18:166-174.

Siegel, R; McGrady, ME; Dynan, L; Kharofa, R; Stackpole, K; Casson, P; Siegel, F; Kasparian, NA. Effects of Loss and Gain Incentives on Adherence in Pediatric Weight Management: Preliminary Studies and Economic Evaluation of a Theoretical Trial. International Journal of Environmental Research and Public Health. 2023; 20:584.

Miles, K; Kasparian, NA; Farkas, D; Laugesen, K; Sorensen, HT; Madsen, N. Abstract 10042: Mental Health Conditions In Congenital Heart Disease: A Danish Population Based Cohort Study. Circulation. 2022; 146:a10042.

Kularatna, S; Jadambaa, A; Senanayake, S; Brain, D; Hawker, N; Kasparian, NA; Abell, B; Auld, B; Eagleson, K; Justo, R; et al. The Cost of Neurodevelopmental Disability: Scoping Review of Economic Evaluation Methods. ClinicoEconomics and Outcomes Research. 2022; 14:665-682.

Perazzo, D; Moore, R; Kasparian, NA; Rodts, M; Horowitz-Kraus, T; Crosby, L; Turpin, B; Beck, AF; Hutton, J. Chronic pediatric diseases and risk for reading difficulties: a narrative review with recommendations. Pediatric Research. 2022; 92:966-978.

Marshall, KH; D'udekem, Y; Winlaw, DS; Dalziel, K; Woolfenden, SR; Zannino, D; Costa, DS J; Bishop, R; Celermajer, DS; Sholler, GF; et al. The Australian and New Zealand Fontan Registry Quality of Life Study: Protocol for a population-based assessment of quality of life among people with a Fontan circulation, their parents, and siblings. BMJ Open. 2022; 12:e065726.

Tesson, S; Butow, PN; Marshall, K; Fonagy, P; Kasparian, NA. Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis. Health Psychology Review. 2022; 16:378-411.

Kovacs, AH; Brouillette, J; Ibeziako, P; Jackson, JL; Kasparian, NA; Kim, YY; Livecchi, T; Sillman, C; Kochilas, LK. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circulation: Cardiovascular Quality and Outcomes. 2022; 15:e000110.

Cox, SM; Butcher, JL; Sadhwani, A; Sananes, R; Sanz, JH; Blumenfeld, E; Cassidy, AR; Cowin, JC; Ilardi, D; Kasparian, NA; et al. Integrating Telehealth Into Neurodevelopmental Assessment: A Model From the Cardiac Neurodevelopmental Outcome Collaborative. Journal of Pediatric Psychology. 2022; 47:707-713.

Kasparian, NA; Kovacs, AH. Quality of Life and Other Patient-Reported Outcomes Across the Life Span Among People With Fontan Palliation. Canadian Journal of Cardiology. 2022; 38:963-976.

Carey, KA; Farrar, MA; Kasparian, NA; Street, DJ; De Abreu Lourenco, R. Family, healthcare professional, and societal preferences for the treatment of infantile spinal muscular atrophy: A discrete choice experiment. Developmental Medicine and Child Neurology. 2022; 64:753-761.

Tacy, TA; Kasparian, NA; Karnik, R; Geiger, M; Sood, E. Opportunities to enhance parental well-being during prenatal counseling for congenital heart disease. Seminars in Perinatology. 2022; 46:151587.

Luigjes-Huizer, YL; Tauber, NM; Humphris, G; Kasparian, NA; Lam, WW T; Lebel, S; Simard, S; Smith, AB; Zachariae, R; Afiyanti, Y; et al. What is the prevalence of fear of cancer recurrence in cancer survivors and patients? A systematic review and individual participant data meta-analysis. Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 2022; 31:879-892.

McDonald, HM; Sherman, KA; Kasparian, NA. How Mindful Awareness and Psychological Distress Influence Mother-Infant Bonding and Maternal Perceptions of Infant Temperament. Mindfulness. 2022; 13:955-966.

Sood, E; Gramszlo, C; Perez Ramirez, A; Braley, K; Butler, SC; Davis, JA; Divanovic, AA; Edwards, LA; Kasparian, N; Kelly, SL; et al. Partnering With Stakeholders to Inform the Co-Design of a Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease. Journal of Patient Experience. 2022; 9:23743735221092488.

Thompson, JR; Smith, AL; Lo, SN; Kasparian, NA; Saw, RP; Dieng, M; Seaman, L; Martin, LK; Guitera, P; Milne, D; et al. Protocol for the implementation of a stepped-care model to address fear of cancer recurrence in patients previously diagnosed with early-stage (0-II) melanoma. BMJ Open. 2022; 12:e054337.

Akram, F; Pidcock, M; Oake, D; Sholler, G; Farrar, M; Kasparian, N. “The Usual Challenges of Work Are All Magnified”: Australian Paediatric Health Professionals’ Experiences During the COVID-19 Pandemic. Heart, Lung and Circulation. 2022; 31:s278.

Kularatna, S; Jadambaa, A; Sennanayake, S; Brain, D; Hawker, N; Kasparian, N; Abell, B; Auld, B; Eagleson, K; Justo, R; et al. Economic Justification for Neurodevelopmental Support for Children With Congenital Heart Disease: A Scoping Review of Economic-Modelling and Recommendations for Future Practice. Heart, Lung and Circulation. 2022; 31:s270.

Eagleson, K; Chin, T; Justo, R; Kasparian, N; Bora, S. Lucky and Valuing a “Normal” Life: A Qualitative Study of Parents and Siblings of Children With Dextro-Transposition of the Great Arteries. Heart, Lung and Circulation. 2022; 31:s272.

McDonald, HM; Sherman, KA; Kasparian, NA. A mediated model of mindful awareness, emotion regulation, and maternal mental health during pregnancy and postpartum. Australian Journal of Psychology. 2021; 73:368-380.

Chu, KA; Schwartz, C; Towner, E; Kasparian, NA; Callaghan, B. Parenting under pressure: A mixed-methods investigation of the impact of COVID-19 on family life. Journal of Affective Disorders Reports. 2021; 5:100161.

Kan, JM; Dieng, M; Butow, PN; Mireskandari, S; Tesson, S; Menzies, SW; Costa, DS J; Morton, RL; Mann, GJ; Cust, AE; et al. Identifying the 'Active Ingredients' of an Effective Psychological Intervention to Reduce Fear of Cancer Recurrence: A Process Evaluation. Frontiers in Psychology. 2021; 12:661190.

Sood, E; Lisanti, AJ; Woolf-King, SE; Wray, J; Kasparian, N; Jackson, E; Gregory, MR; Lopez, KN; Marino, BS; Neely, T; et al. Parent mental health and family functioning following diagnosis of CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative. Cardiology in the Young. 2021; 31:900-914.

McDonald, HM; Sherman, KA; Kasparian, NA. Factors associated with psychological distress among Australian women during pregnancy. Personality and Individual Differences. 2021; 172:110577.

Tesson, S; Swinsburg, D; Kasparian, NA. Maintaining Momentum in Infant Mental Health Research During COVID-19: Adapting Observational Assessments. Journal of Pediatric Psychology. 2021; 46:254-263.

Verrall, CE; Yang, JY M; Chen, J; Schembri, A; D'Udekem, Y; Zannino, D; Kasparian, NA; Du Plessis, K; Grieve, SM; Welton, T; et al. Neurocognitive Dysfunction and Smaller Brain Volumes in Adolescents and Adults With a Fontan Circulation. Circulation. 2021; 143:878-891.

Kasparian, NA; Bartula, I. Melanoma. In: Lazenby M, Ed. Psycho-Oncology. London: Oxford University Press (OUP); 2021.

Paguinto, S; Kasparian, NA; Bray, P; Farrar, M. "It's not just the wheelchair, it's everything else ": Australian parents' perspectives of wheelchair prescription for children with neuromuscular disorders. Disability and Rehabilitation. 2020; 42:3457-3466.

Wan, HW Y; Carey, KA; D'Silva, A; Vucic, S; Kiernan, MC; Kasparian, NA; Farrar, MA. Health, wellbeing and lived experiences of adults with SMA: a scoping systematic review. Orphanet Journal of Rare Diseases. 2020; 15:70.

Lisy, K; Lai-Kwon, J; Ward, A; Sandhu, S; Kasparian, NA; Winstanley, J; Boyle, F; Gyorki, D; Lacey, K; Bishop, J; et al. Patient-reported outcomes in melanoma survivors at 1, 3 and 5 years post-diagnosis: a population-based cross-sectional study. Quality of Life Research. 2020; 29:2021-2027.

Farrar, MA; Carey, KA; Paguinto, S; Kasparian, NA; Lourenco, RD A. "The Whole Game is Changing and You've Got Hope ": Australian Perspectives on Treatment Decision Making in Spinal Muscular Atrophy. The Patient: Patient Centered Outcomes Research. 2020; 13:389-400.

Kasparian, N; Butow, PN. Psychological responses and coping strategies in patients with skin cancer. In: Rigel DS; Robinson JK; Ross M; Friedman RJ; Cockerell CJ; Lim HW; Stockfleth E; Kirkwood JM, Ed. Cancer of the Skin. London: Elsevier; 2020.

Paida, K; McKay, IR; Coffey, MJ; Kasparian, N; Katz, T; Ooi, CY. P374 Evaluation of anxiety levels in a paediatric cystic fibrosis population. Journal of Cystic Fibrosis. 2020; 19:s160-s161.

Carazo, MR; Kolodziej, MS; DeWitt, ES; Kasparian, NA; Newburger, JW; Duarte, VE; Singh, MN; Opotowsky, AR. Prevalence and Prognostic Association of a Clinical Diagnosis of Depression in Adult Congenital Heart Disease: Results of the Boston Adult Congenital Heart Disease Biobank. Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease. 2020; 9:e014820.

Coffey, MJ; Mckay, IR; Doumit, M; Chuang, S; Adams, S; Stelzer-Braid, S; Waters, SA; Kasparian, NA; Thomas, T; Jaffe, A; et al. Evaluating the Alimentary and Respiratory Tracts in Health and disease (EARTH) research programme: a protocol for prospective, longitudinal, controlled, observational studies in children with chronic disease at an Australian tertiary paediatric hospital. BMJ Open. 2020; 10:e033916.

Dieng, M; Morton, RL; Costa, DS J; Butow, PN; Menzies, SW; Lo, S; Mann, GJ; Cust, AE; Kasparian, NA. Benefits of a brief psychological intervention targeting fear of cancer recurrence in people at high risk of developing another melanoma: 12-month follow-up results of a randomized controlled trial. British Journal of Dermatology. 2020; 182:860-868.

O'Donovan, C; Ingles, J; Broadbent, E; Skinner, JR; Kasparian, NA. How Patient Perceptions Shape Responses and Outcomes in Inherited Cardiac Conditions. Heart, Lung and Circulation. 2020; 29:641-652.

Marshall, KH; D'Udekem, Y; Sholler, GF; Opotowsky, AR; Costa, DS J; Sharpe, L; Celermajer, DS; Winlaw, DS; Newburger, JW; Kasparian, NA. Health-Related Quality of Life in Children, Adolescents, and Adults With a Fontan Circulation: A Meta-Analysis. Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease. 2020; 9:e014172.

Schofield, DJ; Tan, O; Shrestha, RN; Rajkumar, R; West, S; Rice, M; Kasparian, N; Boyle, J; Christie, L; Leffler, M; et al. IDMOD: An Australian microsimulation model of lifetime economic and social factors in familial intellectual disability. The International Journal of Microsimulation. 2020; 13:52-66.

Strange, G; Stewart, S; Farthing, M; Kasparian, NA; Selbie, L; O'Donnell, C; Ayer, J; Cordina, R; Celermajer, D. Living With, and Caring for, Congenital Heart Disease in Australia: Insights From the Congenital Heart Alliance of Australia and New Zealand Online Survey. Heart, Lung and Circulation. 2020; 29:216-223.

Marshall, K; D'Udekem, Y; Sholler, G; Costa, D; Celermajer, D; Winlaw, D; Kasparian, N. 687 Values, Perceived Strengths and Capabilities of People With a Fontan Circulation and Their Families: Insights From the Australian and New Zealand Fontan Registry. Heart, Lung and Circulation. 2020; 29:s345.

Zentner, D; Celermajer, DS; Gentles, T; d'Udekem, Y; Ayer, J; Blue, GM; Bridgman, C; Burchill, L; Cheung, M; Cordina, R; et al. Management of People With a Fontan Circulation: a Cardiac Society of Australia and New Zealand Position statement. Heart, Lung and Circulation. 2020; 29:5-39.

Marshall, K; D'Udekem, Y; Sholler, G; Costa, D; Celermajer, D; Winlaw, D; Kasparian, N. 656 Do You See What I See?: Comparing Child and Parent-Proxy Reported Health-Related Quality of Life and Wellbeing Among People With a Fontan Circulation. Heart, Lung and Circulation. 2020; 29:s332.

Eagleson, K; McCombs, D; Kasparian, N; Justo, R; Bora, S. 650 Appraising Measures Assessing the Psychosocial Impact and Adaptation to Congenital Heart Disease in Families: A Systematic Review. Heart, Lung and Circulation. 2020; 29:s329-s330.

216 WITHDRAWN: Finding a New Rhythm: Child Health-Related Quality of Life and Parental Mental Health in Families Affected by Cardiac Channelopathies. Heart, Lung and Circulation. 2020; 29:s132.

Nielson-jones, C; Sharpe, L; Swinsburg, D; Winlaw, D; Badawi, N; Walker, K; Costa, D; Sholler, G; Kasparian, N. 677 Predictors of Maternal Pregnancy-Specific Anxiety After Fetal Cardiac Diagnosis. Heart, Lung and Circulation. 2020; 29:s341.