O'Grady Residency
Supervisor: Avani Modi, Ph.D.
1. Adherence and Barriers in Children with Epilepsy – This is an ongoing longitudinal study examining adherence with electronic monitors and self-report over a 2-year period of time, as well as factors that predict/influence adherence. Data collection includes measures of family functioning, barriers to adherence, parenting stress, family stress related to epilepsy, epilepsy knowledge, behavioral and emotional functioning, social stigma, generic and epilepsy-specific health-related quality of life, antiepileptic drug side effects, epilepsy specific concerns and fears. Graduate students or residents could become involved in a variety of ways:
a. Data collection in a clinic-based setting/environment
b. Analysis of baseline data and manuscript preparation depending on subject of interest (e.g., can choose constructs)
c. Learning about and analyzing data involving population pharmacokinetic models and electronically measured adherence
2. Evaluating Clinical Outcomes of Children with New-Onset Seizure Disorders This study involves a retrospective chart review of health-related quality of life data for patients seen through the new-onset seizure clinic. PedsQL questionnaires are completed by parents at each visit, resulting in longitudinal HRQOL data from pre-treatment through the course of treatment (e.g., every 3 months). We have entered data for approximately 600 patients with repeat visits for several of these patients. There are multiple opportunities to become involved in data analyses and manuscript preparation.
Supervisor: Kevin Hommel, PhD
TASCC Study: Assessment study examining treatment adherence, behavioral functioning, family functioning, and quality of life in adolescents with inflammatory bowel disease. Opportunities exist for abstract/manuscript writing.
PACCT Study: Randomized controlled clinical trial using family-based group behavioral treatment protocol to improve treatment adherence in adolescents with inflammatory bowel disease. Opportunities exist for training in manualized treatment, assisting with treatment sessions, and exposure to administrative and regulatory requirements for federally funded research.
This placement would be appropriate for Residents with interests in treatment adherence, manualized treatment development and testing, gastrointestinal disorders, and adolescent populations. The Resident would have the opportunity to participate in meetings, treatment protocol training, treatment delivery, data analysis, and abstract/manuscript writing. There may also be opportunities to learn about administrative and budgetary aspects of grant funded research.
Supervisor: Korey Hood, PhD
Dr. Hood's research program focuses on the interaction of psychological conditions, family functioning, adherence, and health outcomes in pediatric type 1 diabetes. There are two active research studies – the Pediatric Diabetes and Family (PDF) study and the Adolescent Diabetes and Depression (ADD) study. The PDF study is a longitudinal examination of psychological (e.g., depression, anxiety), family (e.g., conflict, sharing of responsibilities), and disease-specific variables as they relate to management of type 1 diabetes. The cohort consists of 150 adolescents with type 1 diabetes and their caregivers. Assessments take place every 6 months across a two-year study period. The ADD study is a clinical trial of a family-based, psychosocial intervention for depressed adolescents with type 1 diabetes and their caregivers. The intervention is delivered in a group format and includes a phased approach to target reduction in depressive symptoms and family conflict prior to working on adherence promotion. The overarching goal of the study is to promote strategies for managing depression and family conflict in order to better manage the disease. Both projects are funded by NIDDK. Please contact Dr. Hood about opportunities for clinical research experiences on these projects.
