Participating Centers
The Rare Lung Diseases Consortium (RLDC) is comprised of the following centers.
Cincinnati Children's Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039
Phone: 513-636-6361
Fax: 513-636-3723
Bruce C. Trapnell, MD
Director, Rare Lung Diseases Consortium
Professor, Departments of Medicine and Pediatrics
University of Cincinnati College of Medicine
Division of Pulmonary Biology
Room 4029, CCRF
3333 Burnett Avenue
Cincinnati, OH 45229-3039
Frank X. McCormack, MD
Co-Director, Rare Lung Diseases Consortium
Associate Professor of Medicine
Chief, Pulmonary and Critical Care Medicine
University of Cincinnati College of Medicine
231 Albert Sabin Way, ML 0564
Cincinnati, OH 45267-0564
Bethany Barnett, MSPH CCRC
Principal Research Coordinator
2937 SW 27th Ave., Suite 302
Miami, FL 33133
Phone: 305-567-9888 x237
Fax: 305-567-1317
Email: bbarnett@alphaone.org
Participating Clinical Centers
Cleveland Clinic Foundation
www.clevelandclinic.org
James K. Stoller, MD, MSODA
Site Investigator
Associate Chief of Staff
Department of Pulmonary and Critical Care Medicine
Cleveland Clinic Foundation
9500 Euclid Avenue, Mail Code: A90
Cleveland, OH 44195
Mani Kavuru, MD
Site Investigator
Director, Pulmonary Function Lab
Department of Pulmonary and Critical Care Medicine
Cleveland Clinic Foundation
9500 Euclid Ave., Mail Code: A90
Cleveland, OH 44195
Jeffrey Chapman, MD
Site Investigator
Department of Pulmonary and Critical Care Medicine
Cleveland Clinic Foundation
9500 Euclid Ave., Mail Code: A90
Cleveland, OH 44195
Harvard / Brigham and Women's Hospital
http://www.channing.harvard.edu
Edwin K. Silverman, MD, PhD
Site Investigator
Brigham and Women's Hospital
Channing Laboratory
181 Longwood Avenue
Boston, MA 02115
Niigata University Medical & Dental Hospital, Japan
http://www.niigata-u.ac.jp
Koh Nakata, MD, PhD
Site Investigator
Chairman and Professor,
Bioscience Medical Research Center (BMRC)
1-757 Asahimachi-Dohri
Niigata 951-8510, Japan
Medical University of South Carolina
www.musc.edu
Charles Strange, MD
Site Investigator
Associate Professor of Medicine
Division of Pulmonary and Critical Care Medicine
96 Jonathan Lucas Street
Charleston, SC 29425
National Jewish Medical and Research Center
www.njc.org/
Kevin Brown, MD
Site Investigator
Director, Clinical Interstitial Lung Disease Program
Assistant Professor of Medicine, Division of Pulmonary Sciences and Critical Care Medicine, UCHSC
National Jewish Medical and Research Center
1400 Jackson Street
Denver, CO 80218
Sandy Sandhaus, MD
Site Investigator
National Jewish Medical and Research Center
1400 Jackson Street
Denver, CO 80218
Oregon Health and Sciences University
www.ohsu.edu/som-pulmccm
Alan F. Barker, MD
Site Investigator
Professor of Medicine
Pulmonary and Critical Care
UHN-67
3181 SW Sam Jackson Park Rd.
Portland, OR 97201
Peter MacCallum Cancer Center
www.petermac.org/dept/haema/main.htm
John Seymour, MB, BS, FRACP
Site Investigator
Peter MacCallum Cancer Centre
St Andrews Place
East Melbourne VIC 3002
University of Cincinnati Medical Center
http://medcenter.uc.edu/
Frank X. McCormack, MD
Co-Director, Rare Lung Diseases Consortium
Associate Professor of Medicine
Chief, Pulmonary and Critical Care Medicine
University of Cincinnati College of Medicine
231 Albert Sabin Way, ML 0564
Cincinnati, OH 45267-0564
University of Florida Medical Center
www.medicine.ufl.edu/pulmon/index.shtml
Mark Brantly, MD
Site Investigator
Professor of Medicine, Molecular Genetics and Microbiology
Division of Pulmonary and Critical Care Medicine
J. Hillis Miller Health Center, Room 452-MSB
University of Florida
University of Texas Health Center
www.uthct.edu
James M. Stocks, MD
Site Investigator
Professor of Medicine
Department of Pulmonary Medicine
Director, Clinical Research Center
University of Texas Health Center, Tyler
11937 US Hwy 271
Tyler, TX 75708
National Heart, Lung and Blood Institute
Joel Moss, MD
Chief, Pulmonary and Critical Care Medicine Branch
National Institutes of Health
10 Center Drive, Building 10 / Room 6D05
Bethesda, Maryland 20892-1590
Data and Technology Coordinating Center
Jeffrey P. Krischer, PhD
Principal Investigator
H. Lee Moffitt Cancer Center and Research Institute
12902 Magnolia Drive
Tampa, FL 33612
Participating Patient Foundations
Alpha-1 Foundation
2937 SW 27th Avenue, Suite 302
Miami, FL 33133
www.alphaone.org
Phone: 888-825-7421
Fax: 305-567-1317
John W. Walsh
President, CEO and Co-Founder
LAM Foundation
10105 Beacon Hills Drive
Cincinnati, Ohio 45241
http://lam.uc.edu/
Fax: 513-777-4109
Sue Byrnes
President, LAM Foundation
Pulmonary Fibrosis Foundation
1440 West Washington Blvd.
Chicago, Illinois 60607
www.pulmonaryfibrosis.org
Phone: 312-377-6895
Fax: 312-377-6896
Michael Rosenzweig, PhD
President, Pulmonary Fibrosis Foundation
Pediatric Interstitial Lung Disease Family Network Foundation
9937 Montclaire Dr
Mason, Ohio 45040
www.pildfamilynetwork.org
Phone: 513-459-0127
Gregory R. Porta
President
PAP Foundation
10453 Lincoln Court
Northglenn, CO 80233
Louie Schimpf
President
