Lisa M. Shook, DHPE, MA, MCHES, CCP

Administrative Director, Comprehensive Sickle Cell Center
Assistant Professor, UC Department of Pediatrics

lisa.shook@cchmc.org

About

Biography

I am passionate about improving outcomes for children and adults living with sickle cell disease through my work at the Comprehensive Sickle Cell Center at Cincinnati Children's. My research interests are health education, health disparities, health services, health literacy, newborn screening, sickle cell disease, sickle cell trait, network building and quality improvement.

The health services research and patient/provider education programs that I oversee complement this world-class research and clinical program for sickle cell disease. This includes an Ohio Department of Health-funded newborn screening grant for sickle cell disease and sickle cell trait follow-up, along with community outreach and education.

I also lead the Sickle Treatment and Outcomes Research in the Midwest (STORM) project, an eight-state regional learning network of pediatric and adult providers in Ohio, Indiana, Illinois, Michigan, Minnesota, North Dakota, South Dakota and Wisconsin. This work has been a federally funded Sickle Cell Disease Treatment Demonstration Project since 2014. As part of this, we launched the successful Project Extension for Community Healthcare Outcomes (Project ECHO) that provides monthly telementoring to healthcare providers across the country and world.

I received my doctorate in Health Professions Education in 2020, my master’s degree in Health Education in 2008, and I have been a Master Certified Health Education Specialist since 2012. I have been a researcher for more than 15 years and began working at Cincinnati Children's in 2005.

Services and Specialties

Cancer and Blood Diseases Institute

Research Areas

Publications

Primary Stroke Screening and Hydroxyurea Treatment for Sickle Cell Anemia in Pediatric Healthcare Settings in East and Central Africa: A Narrative Review of Capacity Gaps and Opportunities. Latham, TS; Czabanowska, K; Babich, S; Yego-Kosgei, F; Shook, LM; Ware, RE. Public Health Reviews. 2025; 46:1608359.

Co-designing educational materials about SARS-CoV-2 (COVID-19) vaccines with individuals with sickle cell disease (SCD) and their families. Lang, AC; Mosley, C; Rosen, BL; Oke, E; Thompson, AA; Barriteau, C; Schwartz, L; Smith-Whitley, K; Crosby, LE; Shook, LM. 2025; 2.

Engaging Parents of Children With Sickle Cell Disease in Shared Decision-Making for Hydroxyurea: The ENGAGE-HU Study. Hildenbrand, AK; Mara, CA; Murphy, B; Hood, AM; Johnson, Y; Shook, LM; Real, FJ; Nwankwo, C; Hackworth, R; Badawy, SM; Saving, KL; Treadwell, M; Quinn, CT; Crosby, LE. Pediatric Blood and Cancer. 2025; 72:e31639.

Clinical Utility of the Addition of Molecular Genetic Testing to Newborn Screening for Hemoglobinopathies for Confirmation of Alpha-Thalassemia Trait. Shook, LM; Haygood, D; Quinn, CT. International Journal of Neonatal Screening. 2025; 11:12.

Challenges of Engaging Primary Care Providers in Specialized Telementoring Education About Sickle Cell Disease for Sickle Cell Specialists: Results from the Sickle Cell Disease Training and Mentoring Program for Primary Care Providers (STAMP) Project ECHO. Shook, LM; House, B; Farrell, CB; Stewart, R; Lanzkron, S; King, AA; Varughese, T; Strouse, JJ; Treadwell, M; Kanter, J. AJPM Focus. 2025; 4:100304.

A health equity ECHO for clinicians of individuals with SCD. Shook, LM; Crosby, LE; Farrell, CB; Nelson, SC. 2024; 1:yoae005.

Location, Location(s), Location(s+): Moving from Acute to Chronic Pain in SCD Pain in School-Age Children. Murphy, BN; Hood, AM; Hildenbrand, AK; Shook, LM; Quinn, CT; Smoot, E; Sil, S; Crosby, LE. Blood. 2024; 144:5360.

Attitudes, Beliefs, and Intention to Receive a COVID-19 Vaccine for Pediatric Patients With Sickle Cell Disease. Shook, LM; Rosen, BL; Mara, CA; Mosley, C; Thompson, AA; Smith-Whitley, K; Schwartz, L; Barriteau, C; King, A; Oke, E; Jallow, F; Murphy, B; Crosby, L. Journal of Pediatric Hematology/Oncology. 2024; 46:e305-e312.

Development of a multimodal geomarker pipeline to assess the impact of social, economic, and environmental factors on pediatric health outcomes. Manning, ER; Duan, Q; Taylor, S; Ray, S; Corley, AM S; Michael, J; Gillette, R; Unaka, N; Hartley, D; Beck, AF; Riley, C; Sandoval, L; Shook, L; Steller, J. Journal of the American Medical Informatics Association : JAMIA. 2024; 31:1471-1478.

A Mixed-Methods Evaluation of a Project ECHO Program for the Evidence-Based Management of Sickle Cell Disease. Mosley, C; Farrell, CB; Quinn, CT; Shook, LM. International Journal of Environmental Research and Public Health. 2024; 21:530.

From the Blog

Blog Rare and Complex Conditions

4 Things To Know About Sickle Cell Disease

Lisa M. Shook, DHPE, MA, MCHES, CCP9/9/2025