Thienprayoon Lab

Publications

Autrey, AK; Rifkin-Zenenberg, S; Hills, T; Salant, J; May, R; Rabinowitz, E; Heneghan, C; Drach, L; Jones, E; Thienprayoon, R. Standardized Assessment of Patient Experience in Pediatric Palliative Care: A National Collaboration. Journal of Pain and Symptom Management. 2025; 70(5):e299-e304.

Autrey, A; Thienprayoon, R; Jones, E. Measuring a Patient Reported Outcome: A Pediatric Palliative Care Nationwide QI Collaborative. Journal of Pain and Symptom Management. 2025; 69(5):e463-e464.

Jones, B; Thienprayoon, R; Galchutt, P; Zhang, A; Tate, C; Gray, T. Cambia Leadership Breakfast: Sustaining Your Energy and Vision as a Leader. Journal of Pain and Symptom Management. 2025; 69(5):e532.

Combs, K; Stamm, R; Thienprayoon, R; Foster, KA; Behm, K; Rozcicha, L. Cultural or Spiritual End-of-Life Practice Preference Assessment and Documentation: Identifying Current Practice in Pediatric Hospice. Journal of Hospice and Palliative Nursing. 2025; 27(2):74-80.

Thienprayoon, R. The maturation of grief education in medical training. Journal of Hospital Medicine. 2025; 20(2):207-208.

Bogetz, JF; Strub, B; Bradford, MC; Mcgalliard, J; Shipman, K; Jeyte, A; Patneaude, A; Johnston, EE; Ananth, P; Thienprayoon, R; Rosenberg, AR. Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions. Journal of Pain and Symptom Management. 2024; 68(5):488-498.e1.

Ragsdale, L; Ullrich, CK; Thienprayoon, R; Miller, EG; Humphrey, L; Williams, CSP; Linebarger, J; Ajayi, T; Jones, E; Friebert, S. Leading a Palliative Care Team Through Times of Growth And Change. Journal of Palliative Medicine. 2024; 27(11):1439-1449.

Jarrell, JA; Grossoehme, DH; Friebert, S; Ajayi, TA; Thienprayoon, R; Humphrey, L. Challenges in Pediatric Home-Based Hospice and Palliative Care: A Case Series. Journal of Pain and Symptom Management. 2024; 68(4):e319-e324.

Johnston, EE; Tefera, R; Ananth, P; Martinez, I; Porter, A; Snaman, JM; Thienprayoon, R; Asch, S; Bhatia, S; O'beirne, R. Defining the Denominator for Measuring Quality of End-of-Life Care in Children with Cancer: Results of a Nominal Group Technique. Journal of Pediatrics. 2024; 271:114038.

Thienprayoon, R. Wellness officer, heal thyself: Reflections from a burned-out physician one year later. Journal of Hospital Medicine. 2024; 19(7):642-643.

Jones, MN; Simpson, SL; Beck, AF; Cortezzo, DE; Thienprayoon, R; Corley, AMS; Thomson, J. Racial Inequities in Palliative Referral for Children with High-Intensity Neurologic Impairment. Journal of Pediatrics. 2024; 268:113930.

Thienprayoon, R; Awtrey, E; Pestian, T; Lown, BA; Winick, N; Kanov, J. A Conceptual Model of Organizational Compassion in Healthcare. Journal of Wellness. 2024; 5(2).

Johnston, EE; Tefera, R; Ananth, PJ; Martinez, I; Porter, A; Snaman, JM; Thienprayoon, R; Asch, SM; Bhatia, S; O'beirne, R. Defining the denominator for measuring quality of end-of-life care in children with cancer: Results of a nominal group technique. JCO Oncology Practice. 2023; 19(11_suppl):227-227.

Ramicone, I; Whitford, B; Mosley, L; Thienprayoon, R. Polysymptomatology and Polypharmacy at End of Life in Patients with Duchenne Muscular Dystrophy. Journal of Pediatrics. 2023; 261:113598.

Pestian, T; Awtrey, E; Kanov, J; Winick, N; Thienprayoon, R. The impact of organizational compassion in health care on clinicians: A scoping review. Worldviews on Evidence-Based Nursing. 2023; 20(4):290-305.

Thienprayoon, R. Beyond burnout: Collective suffering and organizational compassion. Journal of Hospital Medicine. 2023; 18(7):646-648.

Farmer, ZJ; Palmaccio-Lawton, SJ; Flint, HA; Whitford, B; Thienprayoon, R; Nee, K. Fetal outcomes and continuity in perinatal palliative care patients at a quaternary care pediatric hospital. Journal of Perinatology. 2023; 43(7):889-894.

Boyden, JY; Bogetz, JF; Johnston, EE; Thienprayoon, R; Williams, CSP; Mcneil, MJ; Patneaude, A; Widger, KA; Rosenberg, AR; Ananth, P. Measuring Pediatric Palliative Care Quality: Challenges and Opportunities. Journal of Pain and Symptom Management. 2023; 65(5):e483-e495.

Weber, M; Thienprayoon, R; Whitford, B; Svoboda, A. Butorphanol and Ketamine Use in Patients with a Diagnosis of Hurler Syndrome Undergoing Bone Marrow Transplantation (BMT) (Sch415) Journal of Pain and Symptom Management. 2023; 65(5):e586-e587.

Palmaccio-Lawton, SJ; Farmer, Z; Nee, K; Thienprayoon, R; Flint, H. Fetal Outcomes and Continuity in Perinatal Palliative Care Patients at a Quaternary Care Pediatric Hospital (TH114D) Journal of Pain and Symptom Management. 2023; 65(3):e259.

Thienprayoon, R; Pestian, T; Kanov, J; Awtrey, E; Winick, N. Creation of a Clinician-Reported Experience Measure of Organizational and Team Compassion in Palliative Care (SA316B) Journal of Pain and Symptom Management. 2023; 65(3):e306-e307.

Thienprayoon, R; Lord, BT; Siedman, J; Hauer, J. Creating a “Journey Map” for Children with Severe Neurologic Impairment: A Collaboration Between Private and Academic Pediatric Palliative Care, Nonprofit Organizations, and Parents. (FR201B) Journal of Pain and Symptom Management. 2023; 65(3):e270-e271.

Bogetz, JF; Johnston, EE; Thienprayoon, R; Patneaude, A; Ananth, P; Rosenberg, AR. Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process. Pediatrics. 2022; 150(6).

Bogetz, JF; Johnston, E; Ananth, P; Patneaude, A; Thienprayoon, R; Rosenberg, AR. Survey of Pediatric Palliative Care Quality Improvement Training, Activities, and Barriers. Journal of Pain and Symptom Management. 2022; 64(3):e123-e131.

Fuller, C; Huang, H; Thienprayoon, R. Managing Pain and Discomfort in Children with Cancer. Current Oncology Reports. 2022; 24(8):961-973.

Thienprayoon, R; Sinclair, S; Lown, BA; Pestian, T; Awtrey, E; Winick, N; Kanov, J. Organizational Compassion: Ameliorating Healthcare Workers' Suffering and Burnout. Journal of Wellness. 2022; 4(1).

Thienprayoon, R; Nee, K; Mosley, L; Tate, M; Meyer, M. Opioid-Sparing in Children with Chronic Pain Who Are Eligible for Palliative Care. Journal of Pediatrics. 2022; 245:230-232.

Grossoehme, DH; Thienprayoon, R; Sawnani, H; Jenkins, R; Rossman, I; Mosher, K; Friebert, S. Assessment of the relationship between disease progression and goals of care by individuals with Duchenne muscular dystrophy and their caregivers. Muscle and Nerve. 2022; 65(6):646-651.

Thienprayoon, R; Jones, E; Humphrey, L; Ragsdale, L; Williams, C; Klick, JC. The Pediatric Palliative Improvement Network: A national Healthcare Learning Collaborative. Journal of Pain and Symptom Management. 2022; 63(1):131-139.

Kamal, AH; Thienprayoon, RM; Aldridge, M; Bull, J; Fazzalaro, K; Meier, DE; Mueller, L; Rodgers, PE; Mckenna, KA; Pantilat, SZ. Specialty Palliative Care in COVID-19: Early Experiences from the Palliative Care Quality Collaborative. Journal of Palliative Medicine. 2021; 24(11):1689-1696.

Bergstraesser, E; Thienprayoon, R; Brook, LA; Fraser, LK; Hynson, JL; Rosenberg, AR; Snaman, JM; Weaver, MS; Widger, K; Zernikow, B; Jones, CA; Schlögl, M. Top Ten Tips Palliative Care Clinicians Should Know About Prognostication in Children. Journal of Palliative Medicine. 2021; 24(11):1725-1731.

Blacker, S; Thienprayoon, R. Quality improvement in paediatric hospice and palliative care. In: Oxford Textbook of Palliative Care for Children. Oxford University Press (OUP); 2021:401-409.

Rogers, MM; Friebert, S; Williams, CSP; Humphrey, L; Thienprayoon, R; Klick, JC. Pediatric Palliative Care Programs in US Hospitals. Pediatrics. 2021; 148(1).