Kasparian Lab

Publications

Syme, S; Schweiberger, K; Chang, JC; Kavanaugh-Mchugh, A; Kasparian, NA; Arnold, RM; Harris, KW. How Clinicians Prenatally Discuss Management Options and Outcomes for Congenital Heart Disease. Journal of Pain and Symptom Management. 2026; 71(3):429-436.

Uzark, K; Yu, S; Afton, K; Atz, AM; Floh, A; Kasparian, NA; Lambert, LM; Morrison, T; Shah, A; Sood, E; Votava-Smith, JK; Williams, J; Newburger, JW; Goldberg, CS. Health-Related Quality of Life in Children with Hypoplastic Left Heart Syndrome: Changes over Time and Associations with Neurodevelopmental and Clinical Factors. Journal of Pediatrics. 2026; 289:114868.

Crombag, NMTH; Teeuwen, B; Teuben, S; Kasparian, NA; Sood, E; Adriaanse, BME; Bekker, MN. Advancing prenatal counseling and support for parents carrying a fetus with a congenital anomaly: a scoping review of key characteristics and practices. American Journal of Obstetrics and Gynecology MFM. 2026; 8(2):101874.

Long, S; Evans, HE; Wakefield, CE; Kasparian, NA; Mcgillivray, G; Roscioli, T; Firriolo, A-M; Parmar, J; Kelada, L. Australian patients' experiences of undergoing whole exome sequencing for fetal structural anomalies prior to receiving results. Journal of Genetic Counseling. 2026; 35(1):e70158.

Ilardi, D; Zaidi, AN; Calderon, J; Choi, JJ; Kasparian, NA; Pike, NA; Plotkin, D; Smorra, C; Woodhouse, K; Gurvitz, M; Cassidy, AR. Neurocognitive and Psychological Interventions for Adults With Congenital Heart Disease: A Consensus Statement From the Adult Congenital Heart Disease/Neuro 2024 Conference. Journal of the American Heart Association. 2026; 15(2):e042921.

Mcelduff, ML; Turner, C; Costa, DSJ; Smith, J; Dengler, L; Kasparian, NA. Finding a new rhythm: child health-related quality of life, parent psychological distress, and unmet needs among families of children with cardiac channelopathies. Quality of Life Research. 2026; 35(1):25.

Dalziel, K; Hulse, ESG; Huang, L; Marshall, KH; Cordina, R; Du Plessis, K; Sholler, G; Celermajer, D; Winlaw, D; D'udekem D'acoz, Y; Kasparian, NA. Health-related quality-of-life for people with a Fontan circulation, their parents, and siblings. European Journal of Cardiovascular Nursing. 2025; 24(8):1237-1246.

Thompson, JR; Gomes, L; Kouvelis, G; Smith, AL; Lo, SN; Kasparian, NA; Saw, RPM; Dieng, M; Seaman, L; Martin, LK; Guitera, P; Milne, D; Schmid, H; Cust, AE; Bartula, I. Effectiveness of a stepped-care model to address fear of cancer recurrence in patients with early-stage melanoma: results at 6- and 12-month follow-up. Supportive Care in Cancer. 2025; 34(1):58.

Gal, DB; Farkas, DK; Laugesen, K; Sørensen, HT; Kasparian, NA; Madsen, NL; Miles, KG. Response by Gal et al to Letter Regarding Article, "Predictors of Neurodevelopmental and Mental Health Diagnoses in Congenital Heart Disease: A Danish Population-Based Cohort Study". Circulation: Cardiovascular Quality and Outcomes. 2025; 18(11):e012690.

Syme, S; Schweiberger, K; Chang, JC; Kavanaugh-Mchugh, A; Soudi, A; Clapp, JT; Kasparian, NA; Arnold, RM; Harris, KW. Discussion of the Fetus in Fetal Cardiology Consultations: A Qualitative Study. Children. 2025; 12(9).

Abell, B; Rodwell, D; Eagleson, KJ; Auld, B; Bora, S; Kasparian, NA; Justo, R; Parsonage, W; Mcphail, SM. Neurodevelopmental follow-up care pathways and processes for children with congenital heart disease in Australia. Pediatric Research. 2025; 98(3):966-975.

Miles, KG; Gal, DB; Farkas, DK; Laugesen, K; Sørensen, HT; Kasparian, NA; Madsen, NL. Predictors of Neurodevelopmental and Mental Health Diagnoses in Congenital Heart Disease: A Danish Population-Based Cohort Study. Circulation: Cardiovascular Quality and Outcomes. 2025; 18(8):e011944.

Syme, S; Schweiberger, K; Kasparian, N; Chang, J; Soudi, A; Arnold, R; Kavanaugh-Mchugh, A; Harris, K. How the fetus is discussed in fetal cardiology consultations: a qualitative study. Patient Education and Counseling. 2025; 137:108970.

Eagleson, KJ; Chin, TI; Larmar, S; Justo, RN; Kasparian, NA; Bora, S. Longer-term experiences of families of children with dextro-transposition of the great arteries: a qualitative study. Pediatric Research. 2025.

Marshall, E; Gramszlo, C; Perez Ramirez, A; Kazak, AE; Shillingford, AJ; Ortinau, CM; Kelly, SL; Kasparian, N; Edwards, LA; Divanovic, AA; Davis, JA; Butler, SC; Braley, K; Riegel, E; Sood, E. Interpersonal relationships after prenatal diagnosis of congenital heart disease: Social stressors and supports. Journal of Perinatology. 2025; 45(7):907-913.

Hansen, SM; Johansen, C; Kasparian, NA; Grand, MK; Bidstrup, PE; Hölmich, LR. Employing skin self-examination and fear of cancer recurrence management in early-stage melanoma follow-up: evaluation of the MELACARE intervention in a randomised controlled trial. Journal of Cancer Survivorship. 2025.

Marshall, KH; D'udekem, Y; Winlaw, DS; Zannino, D; Celermajer, DS; Eagleson, K; Iyengar, AJ; Zentner, D; Cordina, R; Sholler, GF; Woolfenden, SR; Kasparian, NA. Wellbeing and quality of life among parents of individuals with Fontan physiology. Quality of Life Research. 2025; 34(5):1419-1431.

Lefkowitz, DS; Triplett, K; Schneider, L; West, K; Anton, C; Rea, KE; Brosbe, M; Christofferson, ES; Christon, L; Kasparian, N; White, RM; Wichart, J; Wray, J; Cousino, MK. A consensus-based framework for the psychosocial evaluation of pediatric candidates for cardiothoracic transplant and ventricular assist devices. The Journal of Heart and Lung Transplantation. 2025; 44(4):487-502.

Mehdizadeh-Shrifi, A; Menninger, T; Turner, D; Chappell, G; Ahmed, HF; Ryan, TD; Kasparian, N; Lehenbauer, DG; Ashfaq, AG; Morales, DL; Ricci, M. (162) More Than a Transplant: Uncovering the Impact of Mental Health in Pediatric Heart Transplantation. The Journal of Heart and Lung Transplantation. 2025; 44(4):s79-s80.

Mehdizadeh-Shrifi, A; Menninger, T; Faateh, M; Chappell, G; Kasparian, N; Bedard-Thomas, KK; Ashfaq, A; Ricci, M; Morales, D; Burg, G. (122) Quantifying the Mental Health Burden of the Pediatric Lung Transplant Journey in the United States. The Journal of Heart and Lung Transplantation. 2025; 44(4):s61.

Lefkowitz, DS; Triplett, K; Schneider, L; West, K; Anton, C; Rea, K; Brosbe, M; Christofferson, E; Christon, L; Kasparian, N; Prufe, J; Wichart, J; Wray, J; Cousino, M. (159) ISHLT/ACTION/PHTS/IPTA/Transplant Families Consensus-Based Framework for the Psychosocial Evaluation of Pediatric Candidates for Cardiothoracic Transplant and Ventricular Assist Devices. The Journal of Heart and Lung Transplantation. 2025; 44(4):s78.

Sharma, G; Gaffey, AE; Hameed, A; Kasparian, NA; Mauricio, R; Marsh, EB; Beck, D; Skowronski, J; Wolfe, D; Levine, GN. Optimizing Psychological Health Across the Perinatal Period: An Update on Maternal Cardiovascular Health: A Scientific Statement From the American Heart Association. Journal of the American Heart Association. 2025; 14(5):e041369.

Gupta, T; Messmer, M; Singh, K; Cortes, J; Boan, C; Weber, T; Hile, D; Kasparian, NA; D'souza, R; Russo, M; John, AS. Pregnancy care experiences for adults with congenital heart disease in the United States. American Heart Journal. 2025; 280:30-41.

Hansen, SM; Johansen, C; Kasparian, NA; Grand, MK; Bidstrup, PE; Hölmich, LR. A-243 Employing skin self-examination and fear of cancer recurrence management in early-stage melanoma follow-up: Evaluation of the MELACARE intervention in a randomised controlled trial. Skin Cancer. 2025; 3:100591.

Harris, KW; Schweiberger, K; Kavanaugh-Mchugh, A; Arnold, RM; Merlin, J; Chang, JC; Kasparian, NA. An Observational Study of Dialogue about Uncertainty in Clinician-Family Counseling Conversations Following Prenatal Diagnosis of Complex Congenital Heart Disease. PEC Innovation. 2024; 4:100265.

Martin, A; Cust, AE; Lo, S; Morton, RL; Kasparian, N; Collgros, H; Teh, N; Martin, L; Guitera, P. Mobile teledermoscopy for patients at high risk of cutaneous melanoma: A single-arm, feasibility study of a clinical intervention at two tertiary centres (MOBILEMEL). Journal of the European Academy of Dermatology and Venereology. 2024; 38(12):2316-2319.

Thompson, JR; Gomes, L; Kouvelis, G; Smith, AL; Lo, SN; Kasparian, NA; Saw, RPM; Dieng, M; Seaman, L; Martin, LK; Guitera, P; Milne, D; Schmid, H; Cust, AE; Bartula, I. Short-Term Effectiveness of a Stepped-Care Model to Address Fear of Cancer Recurrence in Patients With Early-Stage Melanoma. Psycho-Oncology. 2024; 33(12):e70041.

Hansen, SM; Johansen, C; Obinah, MPB; Kasparian, NA; Genter, P; Bidstrup, PE; Hölmich, LR. MELACARE Nurse-led follow-up after early-stage melanoma: protocol and feasibility. Acta Oncologica. 2024; 63:909-914.

Uzark, K; Yu, S; Afton, K; Atz, A; Floh, A; Kasparian, N; Lambert, L; Morrison, T; Pemberton, V; Shah, A; Votava-Smith, J; Williams, J; Newburger, J; Goldberg, C. Abstract 4122307: Longitudinal Changes in Parent-reported Quality of Life in Children with Single Ventricle. Circulation. 2024; 150(Suppl_1):a4122307-a4122307.

Griffiths, N; Laing, S; Spence, K; Foureur, M; Popat, H; Gittany, H; Sinclair, L; Kasparian, N. Mental health screening for parents following surgical neonatal intensive care unit (NICU) discharge. Early Human Development. 2024; 198:106128.

Siegel, RM; Kist, C; Kirk, S; Kharofa, R; Stackpole, K; Sammons, A; Dynan, L; Mcgrady, ME; Seo, J; Urbina, E; Kasparian, NA. A Randomized Controlled Trial Comparing Loss versus Gain Incentives to Improve Adherence to an Obesity Treatment Intervention in Adolescents. Nutrients. 2024; 16(19).

Paguinto, S-G; Kasparian, NA; Carroll, K; Thomas, N; Bray, P; Farrar, MA. Getting Wheels: development and evaluation of a psychoeducational resource for parents of children with a neuromuscular condition following recommendation of wheelchair equipment. Disability and Rehabilitation: Assistive Technology. 2024; 19(7):2630-2640.

Marshall, KH; D'udekem, Y; Winlaw, DS; Zannino, D; Celermajer, DS; Justo, R; Iyengar, A; Weintraub, R; Wheaton, G; Cordina, R; Sholler, GF; Woolfenden, SR; Kasparian, NA. Wellbeing in Children and Adolescents with Fontan Physiology. Journal of Pediatrics. 2024; 273:114156.

Peterson, JK; Clarke, S; Gelb, BD; Kasparian, NA; Kazazian, V; Pieciak, K; Pike, NA; Setty, SP; Uveges, MK; Rudd, NA. Trisomy 21 and Congenital Heart Disease: Impact on Health and Functional Outcomes From Birth Through Adolescence: A Scientific Statement From the American Heart Association. Journal of the American Heart Association. 2024; 13(19):e036214.

Marshall, KH; D'udekem, Y; Winlaw, DS; Zannino, D; Celermajer, DS; Justo, R; Iyengar, A; Cordina, R; Sholler, GF; Woolfenden, SR; Kasparian, NA. Quality of Life and Well-Being in Adults With Fontan Physiology: Findings From the Australian and New Zealand Fontan Registry Quality of Life Study. Journal of the American Heart Association. 2024; 13(15):e033818.

Phillips, K; Callaghan, BL; Webb, A; Kan, J; Ooi, CY; Kasparian, NA. MEDIC: Development and validation of a new instrument to assess emotional reactivity to medical stimuli in a representative community sample of adults. Journal of Psychiatric Research. 2024; 176:265-275.

Clode, M; Kasparian, N; Mcgrady, M; Aloysius, L; Cordina, R. The Power of Words: Preferred Medical Terminology of People Affected by Congenital Heart Conditions. Heart Lung and Circulation. 2024; 33:s501.

Eagleson, K; Kasparian, N; Justo, R; Bora, S. Correlates of Resilience in Families of Children With Dextro-Transposition of the Great Arteries. Heart Lung and Circulation. 2024; 33:s490.

Akram, F; Webb, AE; Pidcock, M; Farrar, MA; Kasparian, NA. Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings. JAMA Network Open. 2024; 7(7):e2422104.

Chlebowski, MM; Stark, C; Khoury, PR; Zang, H; Baenziger, J; Kasparian, NA. Evaluation of the use of visual storytelling as an educational intervention in the cardiac ICU: reaching parents before they are in crisis. Cardiology in the Young. 2024; 34(6):1190-1198.

Opotowsky, AR; Khairy, P; Diller, G; Kasparian, NA; Brophy, J; Jenkins, K; Lopez, KN; Mccoy, A; Moons, P; Ollberding, NJ; Rathod, RH; Rychik, J; Thanassoulis, G; Vasan, RS; Marelli, A. Clinical Risk Assessment and Prediction in Congenital Heart Disease Across the Lifespan: JACC Scientific Statement. Journal of the American College of Cardiology. 2024; 83(21):2092-2111.

Marshall, KH; Pincus, HA; Tesson, S; Lingam, R; Woolfenden, SR; Kasparian, NA. Integrated psychological care in pediatric hospital settings for children with complex chronic illness and their families: a systematic review. Psychology and Health. 2024; 39(4):452-478.

Verrall, CE; Tran, DL; Kasparian, NA; Williams, T; Oxenham, V; Ayer, J; Celermajer, DS; Cordina, RL. Cognitive Functioning and Psychosocial Outcomes in Adults with Complex Congenital Heart Disease: A Cross-sectional Pilot Study. Pediatric Cardiology. 2024; 45(3):529-543.

Sholler, GF; Selbie, LA; Tallon, M; Keating, J; Ayer, J; Burchill, L; Cheung, MMH; Cordina, R; Culnane, E; Donovan, S; Weintraub, RG; Van Wijk, E; Wheaton, G; Venugopal, P. Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards). 1st Edition. Heart Lung and Circulation. 2024; 33(2):153-196.

Tesson, S; Swinsburg, D; Nielson-Jones, C; Costa, DSJ; Winlaw, DS; Badawi, N; Sholler, GF; Butow, PN; Kasparian, NA. Mother-Infant Dyadic Synchrony and Interaction Patterns After Infant Cardiac Surgery. Journal of Pediatric Psychology. 2024; 49(1):13-26.

Abell, B; Rodwell, D; Eagleson, KJ; Parsonage, W; Auld, B; Bora, S; Kasparian, NA; Justo, R; Mcphail, SM. "It's more than just a conversation about the heart": exploring barriers, enablers, and opportunities for improving the delivery and uptake of cardiac neurodevelopmental follow-up care. Frontiers in Pediatrics. 2024; 12:1364190.

Phillips, K; Callaghan, B; Rajagopalan, V; Akram, F; Newburger, JW; Kasparian, NA. Neuroimaging and Neurodevelopmental Outcomes Among Individuals With Complex Congenital Heart Disease: JACC State-of-the-Art Review. Journal of the American College of Cardiology. 2023; 82(23):2225-2245.

Elhoff, JJ; Kasparian, NA. If Not Now, When? Taking Action to Improve Mental Health Outcomes for Families of Children With Heart Disease. Pediatric Critical Care Medicine. 2023; 24(11):966-969.

Miles, KG; Farkas, DK; Laugesen, K; Sørensen, HT; Kasparian, NA; Madsen, N. Mental Health Conditions Among Children and Adolescents With Congenital Heart Disease: A Danish Population-Based Cohort Study. Circulation. 2023; 148(18):1381-1394.

Schweiberger, K; Harris, KW; Kavanaugh-Mchugh, A; Soudi, A; Arnold, RM; Merlin, JS; Kasparian, NA; Chang, JC. "I Just Want You to Hear That Term": Characterizing Language Used in Fetal Cardiology Consultations. Journal of Cardiovascular Development and Disease. 2023; 10(9).

Eagleson, KJ; Mccombs, D; Gerlich, TM; Justo, RN; Kasparian, NA; Bora, S. Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease. Journal of Pediatric Psychology. 2023; 48(6):537-552.

Kim, ME; Kasparian, NA; Zang, H; Pater, C; Chlebowski, MM; Marcuccio, E; Florez, A; Morales, DLS; Madsen, N; Moore, RA. Are Parent Discharge Readiness Scores Effective for Patients With Congenital Heart Disease After Cardiac Surgery? Journal of Pediatrics. 2023; 257:113361.

Johnson, S; Kasparian, NA; Cullum, AS; Flanagan, T; Ponting, C; Kowalewski, L; Main, EK. Addressing Adverse Childhood and Adult Experiences During Prenatal Care. Obstetrics and Gynecology. 2023; 141(6):1072-1087.

Harris, KW; Schweiberger, K; Kavanaugh-Mchugh, A; Arnold, RM; Merlin, J; Kasparian, NA; Chang, JC. Introducing Uncertainty: An Observational Study of Conversations on Prenatal Diagnosis of Complex Congenital Heart Disease (Sci238) Journal of Pain and Symptom Management. 2023; 65(5):e660-e661.

Verrall, CE; Patel, S; Travitz, L; Tchieu, J; Dale, RC; Kasparian, NA; Winlaw, DS; Blue, GM. Biological and structural phenotypes associated with neurodevelopmental outcomes in congenital heart disease. Translational Pediatrics. 2023; 12(4):768-786.

Kavanaugh-Mchugh, A; Arnold, R; Merlin, J; Kasparian, N; Chang, J. O.O.4.4 “I just want you to hear that term”: Characterizing language used in fetal cardiology consultations Presenter(s): Kelly Harris, University of Pittsburgh School of Medicine, United States; Kelsey Schweiberger, University of Pittsburgh School of Medicine, United States. Patient Education and Counseling. 2023; 109:107.

Akram, F; Pidcock, M; Oake, D; Sholler, GF; Farrar, MA; Kasparian, NA. "The usual challenges of work are all magnified": Australian paediatric health professionals' experiences during the COVID-19 pandemic. International Journal of Cardiology Congenital Heart Disease. 2023; 11:100434.

Paguinto, S-G; Kasparian, NA; Bray, P; Farrar, M. Multidisciplinary perspectives and practices of wheelchair prescription for children with neuromuscular conditions. Disability and Rehabilitation: Assistive Technology. 2023; 18(2):166-174.

Kasparian, NA; Sadhwani, A; Sananes, R; Blumenfeld, E; Butcher, JL; Cassidy, AR; Cox, SM; Kenowitz, J; Miller, TA; Sanz, JH; Wolfe, KR; Ilardi, D. Telehealth services for cardiac neurodevelopmental care during the COVID-19 pandemic: a site survey from the Cardiac Neurodevelopmental Outcome Collaborative. Cardiology in the Young. 2023; 33(2):280-287.

Siegel, R; Mcgrady, ME; Dynan, L; Kharofa, R; Stackpole, K; Casson, P; Siegel, F; Kasparian, NA. Effects of Loss and Gain Incentives on Adherence in Pediatric Weight Management: Preliminary Studies and Economic Evaluation of a Theoretical Trial. International Journal of Environmental Research and Public Health. 2022; 20(1).

Miles, K; Kasparian, NA; Farkas, D; Laugesen, K; Sorensen, HT; Madsen, N. Abstract 10042: Mental Health Conditions In Congenital Heart Disease: A Danish Population Based Cohort Study. Circulation. 2022; 146(Suppl_1):a10042-a10042.

Perazzo, D; Moore, R; Kasparian, NA; Rodts, M; Horowitz-Kraus, T; Crosby, L; Turpin, B; Beck, AF; Hutton, J. Chronic pediatric diseases and risk for reading difficulties: a narrative review with recommendations. Pediatric Research. 2022; 92(4):966-978.

Marshall, KH; D'udekem, Y; Winlaw, DS; Dalziel, K; Woolfenden, SR; Zannino, D; Costa, DSJ; Bishop, R; Celermajer, DS; Sholler, GF; Kasparian, NA. The Australian and New Zealand Fontan Registry Quality of Life Study: Protocol for a population-based assessment of quality of life among people with a Fontan circulation, their parents, and siblings. BMJ Open. 2022; 12(9):e065726.

Tesson, S; Butow, PN; Marshall, K; Fonagy, P; Kasparian, NA. Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis. Health Psychology Review. 2022; 16(3):378-411.

Kovacs, AH; Brouillette, J; Ibeziako, P; Jackson, JL; Kasparian, NA; Kim, YY; Livecchi, T; Sillman, C; Kochilas, LK. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circulation: Cardiovascular Quality and Outcomes. 2022; 15(8):e000110.

Kasparian, NA; Kovacs, AH. Quality of Life and Other Patient-Reported Outcomes Across the Life Span Among People With Fontan Palliation. Canadian Journal of Cardiology. 2022; 38(7):963-976.

Cox, SM; Butcher, JL; Sadhwani, A; Sananes, R; Sanz, JH; Blumenfeld, E; Cassidy, AR; Cowin, JC; Ilardi, D; Kasparian, NA; Kenowitz, J; Kroll, K; Miller, TA; Wolfe, KR. Integrating Telehealth Into Neurodevelopmental Assessment: A Model From the Cardiac Neurodevelopmental Outcome Collaborative. Journal of Pediatric Psychology. 2022; 47(6):707-713.

Carey, KA; Farrar, MA; Kasparian, NA; Street, DJ; De Abreu Lourenco, R. Family, healthcare professional, and societal preferences for the treatment of infantile spinal muscular atrophy: A discrete choice experiment. Developmental Medicine and Child Neurology. 2022; 64(6):753-761.

Tacy, TA; Kasparian, NA; Karnik, R; Geiger, M; Sood, E. Opportunities to enhance parental well-being during prenatal counseling for congenital heart disease. Seminars in Perinatology. 2022; 46(4):151587.

Luigjes-Huizer, YL; Tauber, NM; Humphris, G; Kasparian, NA; Lam, WWT; Lebel, S; Simard, S; Smith, AB; Zachariae, R; Afiyanti, Y; Van Helmondt, SJ; Vatandoust, S; Zdenkowski, N; Van Der Lee, ML. What is the prevalence of fear of cancer recurrence in cancer survivors and patients? A systematic review and individual participant data meta-analysis. Psycho-Oncology. 2022; 31(6):879-892.

Mcdonald, HM; Sherman, KA; Kasparian, NA. How Mindful Awareness and Psychological Distress Influence Mother-Infant Bonding and Maternal Perceptions of Infant Temperament. Mindfulness. 2022; 13(4):955-966.

Thompson, JR; Smith, AL; Lo, SN; Kasparian, NA; Saw, RP; Dieng, M; Seaman, L; Martin, LK; Guitera, P; Milne, D; Schmid, H; Cust, AE; Bartula, I. Protocol for the implementation of a stepped-care model to address fear of cancer recurrence in patients previously diagnosed with early-stage (0-II) melanoma. BMJ Open. 2022; 12(3):e054337.

Sood, E; Gramszlo, C; Perez Ramirez, A; Braley, K; Butler, SC; Davis, JA; Divanovic, AA; Edwards, LA; Kasparian, N; Kelly, SL; Neely, T; Ortinau, CM; Riegel, E; Shillingford, AJ; Kazak, AE. Partnering With Stakeholders to Inform the Co-Design of a Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease. Journal of Patient Experience. 2022; 9:23743735221092488.

Akram, F; Pidcock, M; Oake, D; Sholler, G; Farrar, M; Kasparian, N. “The Usual Challenges of Work Are All Magnified”: Australian Paediatric Health Professionals’ Experiences During the COVID-19 Pandemic. Heart Lung and Circulation. 2022; 31:s278.

Eagleson, K; Chin, T; Justo, R; Kasparian, N; Bora, S. Lucky and Valuing a “Normal” Life: A Qualitative Study of Parents and Siblings of Children With Dextro-Transposition of the Great Arteries. Heart Lung and Circulation. 2022; 31:s272.

Kularatna, S; Jadambaa, A; Sennanayake, S; Brain, D; Hawker, N; Kasparian, N; Abell, B; Auld, B; Eagleson, K; Justo, R; Mcphail, S. Economic Justification for Neurodevelopmental Support for Children With Congenital Heart Disease: A Scoping Review of Economic-Modelling and Recommendations for Future Practice. Heart Lung and Circulation. 2022; 31:s270.

Kularatna, S; Jadambaa, A; Senanayake, S; Brain, D; Hawker, N; Kasparian, NA; Abell, B; Auld, B; Eagleson, K; Justo, R; Mcphail, SM. The Cost of Neurodevelopmental Disability: Scoping Review of Economic Evaluation Methods. ClinicoEconomics and Outcomes Research. 2022; 14:665-682.