Mother-Infant Dyadic Synchrony and Interaction Patterns After Infant Cardiac Surgery. Journal of Pediatric Psychology. 2024; 49(1):13-26.
Neuroimaging and Neurodevelopmental Outcomes Among Individuals With Complex Congenital Heart Disease: JACC State-of-the-Art Review. Journal of the American College of Cardiology. 2023; 82(23):2225-2245.
If Not Now, When? Taking Action to Improve Mental Health Outcomes for Families of Children With Heart Disease. Pediatric Critical Care Medicine. 2023; 24(11):966-969.
Mental Health Conditions Among Children and Adolescents With Congenital Heart Disease: A Danish Population-Based Cohort Study. Circulation. 2023; 148(18):1381-1394.
Addressing Adverse Childhood and Adult Experiences During Prenatal Care. Obstetrics and Gynecology. 2023; 141(6):1072-1087.
Biological and structural phenotypes associated with neurodevelopmental outcomes in congenital heart disease. Translational Pediatrics. 2023; 12(4):768-786.
Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis. Health Psychology Review. 2022; 16(3):378-411.
Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circulation: Cardiovascular Quality and Outcomes. 2022; 15(8):e000110.
Quality of Life and Other Patient-Reported Outcomes Across the Life Span Among People With Fontan Palliation. Canadian Journal of Cardiology. 2022; 38(7):963-976.
Tell me once, tell me soon: parents' preferences for clinical genetics services for congenital heart disease. Genetics in Medicine. 2018; 20(11):1387-1395.
Health-related quality-of-life for people with a Fontan circulation, their parents, and siblings. European Journal of Cardiovascular Nursing. 2025; 24(8):1237-1246.
Effectiveness of a stepped-care model to address fear of cancer recurrence in patients with early-stage melanoma: results at 6- and 12-month follow-up. Supportive Care in Cancer. 2025; 34(1):58.
Advancing prenatal counseling and support for parents carrying a fetus with a congenital anomaly: a scoping review of key characteristics and practices. American Journal of Obstetrics and Gynecology MFM. 2025; 8(2):101874.
How Clinicians Prenatally Discuss Management Options and Outcomes for Congenital Heart Disease. Journal of Pain and Symptom Management. 2025.
Response by Gal et al to Letter Regarding Article, "Predictors of Neurodevelopmental and Mental Health Diagnoses in Congenital Heart Disease: A Danish Population-Based Cohort Study". Circulation: Cardiovascular Quality and Outcomes. 2025; 18(11):e012690.
Health-Related Quality of Life in Children with Hypoplastic Left Heart Syndrome: Changes over Time and Associations with Neurodevelopmental and Clinical Factors. Journal of Pediatrics. 2025; 289:114868.
Discussion of the Fetus in Fetal Cardiology Consultations: A Qualitative Study. Children. 2025; 12(9).
Neurodevelopmental follow-up care pathways and processes for children with congenital heart disease in Australia. Pediatric Research. 2025; 98(3):966-975.
Predictors of Neurodevelopmental and Mental Health Diagnoses in Congenital Heart Disease: A Danish Population-Based Cohort Study. Circulation: Cardiovascular Quality and Outcomes. 2025; 18(8):e011944.
How the fetus is discussed in fetal cardiology consultations: a qualitative study. Patient Education and Counseling. 2025; 137:108970.
Longer-term experiences of families of children with dextro-transposition of the great arteries: a qualitative study. Pediatric Research. 2025.
Interpersonal relationships after prenatal diagnosis of congenital heart disease: Social stressors and supports. Journal of Perinatology. 2025; 45(7):907-913.
Employing skin self-examination and fear of cancer recurrence management in early-stage melanoma follow-up: evaluation of the MELACARE intervention in a randomised controlled trial. Journal of Cancer Survivorship. 2025.
Wellbeing and quality of life among parents of individuals with Fontan physiology. Quality of Life Research. 2025; 34(5):1419-1431.
A consensus-based framework for the psychosocial evaluation of pediatric candidates for cardiothoracic transplant and ventricular assist devices. The Journal of Heart and Lung Transplantation. 2025; 44(4):487-502.
(162) More Than a Transplant: Uncovering the Impact of Mental Health in Pediatric Heart Transplantation. The Journal of Heart and Lung Transplantation. 2025; 44(4):s79-s80.
(122) Quantifying the Mental Health Burden of the Pediatric Lung Transplant Journey in the United States. The Journal of Heart and Lung Transplantation. 2025; 44(4):s61.
(159) ISHLT/ACTION/PHTS/IPTA/Transplant Families Consensus-Based Framework for the Psychosocial Evaluation of Pediatric Candidates for Cardiothoracic Transplant and Ventricular Assist Devices. The Journal of Heart and Lung Transplantation. 2025; 44(4):s78.
Optimizing Psychological Health Across the Perinatal Period: An Update on Maternal Cardiovascular Health: A Scientific Statement From the American Heart Association. Journal of the American Heart Association. 2025; 14(5):e041369.
Pregnancy care experiences for adults with congenital heart disease in the United States. American Heart Journal. 2025; 280:30-41.
A-243 Employing skin self-examination and fear of cancer recurrence management in early-stage melanoma follow-up: Evaluation of the MELACARE intervention in a randomised controlled trial. Skin Cancer. 2025; 3:100591.
An Observational Study of Dialogue about Uncertainty in Clinician-Family Counseling Conversations Following Prenatal Diagnosis of Complex Congenital Heart Disease. PEC Innovation. 2024; 4:100265.
Mobile teledermoscopy for patients at high risk of cutaneous melanoma: A single-arm, feasibility study of a clinical intervention at two tertiary centres (MOBILEMEL). Journal of the European Academy of Dermatology and Venereology. 2024; 38(12):2316-2319.
Short-Term Effectiveness of a Stepped-Care Model to Address Fear of Cancer Recurrence in Patients With Early-Stage Melanoma. Psycho-Oncology. 2024; 33(12):e70041.
MELACARE Nurse-led follow-up after early-stage melanoma: protocol and feasibility. Acta Oncologica. 2024; 63:909-914.
Abstract 4122307: Longitudinal Changes in Parent-reported Quality of Life in Children with Single Ventricle. Circulation. 2024; 150(Suppl_1):a4122307-a4122307.
Mental health screening for parents following surgical neonatal intensive care unit (NICU) discharge. Early Human Development. 2024; 198:106128.
A Randomized Controlled Trial Comparing Loss versus Gain Incentives to Improve Adherence to an Obesity Treatment Intervention in Adolescents. Nutrients. 2024; 16(19).
Getting Wheels: development and evaluation of a psychoeducational resource for parents of children with a neuromuscular condition following recommendation of wheelchair equipment. Disability and Rehabilitation: Assistive Technology. 2024; 19(7):2630-2640.
Wellbeing in Children and Adolescents with Fontan Physiology. Journal of Pediatrics. 2024; 273:114156.
Trisomy 21 and Congenital Heart Disease: Impact on Health and Functional Outcomes From Birth Through Adolescence: A Scientific Statement From the American Heart Association. Journal of the American Heart Association. 2024; 13(19):e036214.
Quality of Life and Well-Being in Adults With Fontan Physiology: Findings From the Australian and New Zealand Fontan Registry Quality of Life Study. Journal of the American Heart Association. 2024; 13(15):e033818.
MEDIC: Development and validation of a new instrument to assess emotional reactivity to medical stimuli in a representative community sample of adults. Journal of Psychiatric Research. 2024; 176:265-275.
The Power of Words: Preferred Medical Terminology of People Affected by Congenital Heart Conditions. Heart Lung and Circulation. 2024; 33:s501.
Correlates of Resilience in Families of Children With Dextro-Transposition of the Great Arteries. Heart Lung and Circulation. 2024; 33:s490.
Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings. JAMA Network Open. 2024; 7(7):e2422104.
Evaluation of the use of visual storytelling as an educational intervention in the cardiac ICU: reaching parents before they are in crisis. Cardiology in the Young. 2024; 34(6):1190-1198.
Clinical Risk Assessment and Prediction in Congenital Heart Disease Across the Lifespan: JACC Scientific Statement. Journal of the American College of Cardiology. 2024; 83(21):2092-2111.
Integrated psychological care in pediatric hospital settings for children with complex chronic illness and their families: a systematic review. Psychology and Health. 2024; 39(4):452-478.
Cognitive Functioning and Psychosocial Outcomes in Adults with Complex Congenital Heart Disease: A Cross-sectional Pilot Study. Pediatric Cardiology. 2024; 45(3):529-543.
Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards). 1st Edition. Heart Lung and Circulation. 2024; 33(2):153-196.
Mother-Infant Dyadic Synchrony and Interaction Patterns After Infant Cardiac Surgery. Journal of Pediatric Psychology. 2024; 49(1):13-26.
"It's more than just a conversation about the heart": exploring barriers, enablers, and opportunities for improving the delivery and uptake of cardiac neurodevelopmental follow-up care. Frontiers in Pediatrics. 2024; 12:1364190.
Neuroimaging and Neurodevelopmental Outcomes Among Individuals With Complex Congenital Heart Disease: JACC State-of-the-Art Review. Journal of the American College of Cardiology. 2023; 82(23):2225-2245.
If Not Now, When? Taking Action to Improve Mental Health Outcomes for Families of Children With Heart Disease. Pediatric Critical Care Medicine. 2023; 24(11):966-969.
Mental Health Conditions Among Children and Adolescents With Congenital Heart Disease: A Danish Population-Based Cohort Study. Circulation. 2023; 148(18):1381-1394.
"I Just Want You to Hear That Term": Characterizing Language Used in Fetal Cardiology Consultations. Journal of Cardiovascular Development and Disease. 2023; 10(9).
Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease. Journal of Pediatric Psychology. 2023; 48(6):537-552.
Are Parent Discharge Readiness Scores Effective for Patients With Congenital Heart Disease After Cardiac Surgery? Journal of Pediatrics. 2023; 257:113361.
Addressing Adverse Childhood and Adult Experiences During Prenatal Care. Obstetrics and Gynecology. 2023; 141(6):1072-1087.
Introducing Uncertainty: An Observational Study of Conversations on Prenatal Diagnosis of Complex Congenital Heart Disease (Sci238) Journal of Pain and Symptom Management. 2023; 65(5):e660-e661.
Biological and structural phenotypes associated with neurodevelopmental outcomes in congenital heart disease. Translational Pediatrics. 2023; 12(4):768-786.
O.O.4.4 “I just want you to hear that term”: Characterizing language used in fetal cardiology consultations Presenter(s): Kelly Harris, University of Pittsburgh School of Medicine, United States; Kelsey Schweiberger, University of Pittsburgh School of Medicine, United States. Patient Education and Counseling. 2023; 109:107.
"The usual challenges of work are all magnified": Australian paediatric health professionals' experiences during the COVID-19 pandemic. International Journal of Cardiology Congenital Heart Disease. 2023; 11:100434.
Multidisciplinary perspectives and practices of wheelchair prescription for children with neuromuscular conditions. Disability and Rehabilitation: Assistive Technology. 2023; 18(2):166-174.
Telehealth services for cardiac neurodevelopmental care during the COVID-19 pandemic: a site survey from the Cardiac Neurodevelopmental Outcome Collaborative. Cardiology in the Young. 2023; 33(2):280-287.
Effects of Loss and Gain Incentives on Adherence in Pediatric Weight Management: Preliminary Studies and Economic Evaluation of a Theoretical Trial. International Journal of Environmental Research and Public Health. 2022; 20(1).
Abstract 10042: Mental Health Conditions In Congenital Heart Disease: A Danish Population Based Cohort Study. Circulation. 2022; 146(Suppl_1):a10042-a10042.
Chronic pediatric diseases and risk for reading difficulties: a narrative review with recommendations. Pediatric Research. 2022; 92(4):966-978.
The Australian and New Zealand Fontan Registry Quality of Life Study: Protocol for a population-based assessment of quality of life among people with a Fontan circulation, their parents, and siblings. BMJ Open. 2022; 12(9):e065726.
Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis. Health Psychology Review. 2022; 16(3):378-411.
Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circulation: Cardiovascular Quality and Outcomes. 2022; 15(8):e000110.
Quality of Life and Other Patient-Reported Outcomes Across the Life Span Among People With Fontan Palliation. Canadian Journal of Cardiology. 2022; 38(7):963-976.
Integrating Telehealth Into Neurodevelopmental Assessment: A Model From the Cardiac Neurodevelopmental Outcome Collaborative. Journal of Pediatric Psychology. 2022; 47(6):707-713.
Family, healthcare professional, and societal preferences for the treatment of infantile spinal muscular atrophy: A discrete choice experiment. Developmental Medicine and Child Neurology. 2022; 64(6):753-761.
Opportunities to enhance parental well-being during prenatal counseling for congenital heart disease. Seminars in Perinatology. 2022; 46(4):151587.
What is the prevalence of fear of cancer recurrence in cancer survivors and patients? A systematic review and individual participant data meta-analysis. Psycho-Oncology. 2022; 31(6):879-892.
How Mindful Awareness and Psychological Distress Influence Mother-Infant Bonding and Maternal Perceptions of Infant Temperament. Mindfulness. 2022; 13(4):955-966.
Protocol for the implementation of a stepped-care model to address fear of cancer recurrence in patients previously diagnosed with early-stage (0-II) melanoma. BMJ Open. 2022; 12(3):e054337.
Partnering With Stakeholders to Inform the Co-Design of a Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease. Journal of Patient Experience. 2022; 9:23743735221092488.
“The Usual Challenges of Work Are All Magnified”: Australian Paediatric Health Professionals’ Experiences During the COVID-19 Pandemic. Heart Lung and Circulation. 2022; 31:s278.
Lucky and Valuing a “Normal” Life: A Qualitative Study of Parents and Siblings of Children With Dextro-Transposition of the Great Arteries. Heart Lung and Circulation. 2022; 31:s272.
Economic Justification for Neurodevelopmental Support for Children With Congenital Heart Disease: A Scoping Review of Economic-Modelling and Recommendations for Future Practice. Heart Lung and Circulation. 2022; 31:s270.
The Cost of Neurodevelopmental Disability: Scoping Review of Economic Evaluation Methods. ClinicoEconomics and Outcomes Research. 2022; 14:665-682.