. Mother-Infant Dyadic Synchrony and Interaction Patterns After Infant Cardiac Surgery. Journal of Pediatric Psychology. 2024; 49:13-26.
. Neuroimaging and Neurodevelopmental Outcomes Among Individuals With Complex Congenital Heart Disease: JACC State-of-the-Art Review. Journal of the American College of Cardiology. 2023; 82:2225-2245.
. If Not Now, When? Taking Action to Improve Mental Health Outcomes for Families of Children With Heart Disease. Pediatric Critical Care Medicine. 2023; 24:966-969.
. Mental Health Conditions Among Children and Adolescents With Congenital Heart Disease: A Danish Population-Based Cohort Study. Circulation. 2023; 148:1381-1394.
. Addressing Adverse Childhood and Adult Experiences During Prenatal Care. Obstetrics and Gynecology. 2023; 141:1072-1087.
. Biological and structural phenotypes associated with neurodevelopmental outcomes in congenital heart disease. Translational Pediatrics. 2023; 12:768-786.
. Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis. Health Psychology Review. 2022; 16:378-411.
. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circulation: Cardiovascular Quality and Outcomes. 2022; 15:e000110.
. Quality of Life and Other Patient-Reported Outcomes Across the Life Span Among People With Fontan Palliation. Canadian Journal of Cardiology. 2022; 38:963-976.
. Tell me once, tell me soon: parents' preferences for clinical genetics services for congenital heart disease. Genetics in Medicine. 2018; 20:1387-1395.
. How the fetus is discussed in fetal cardiology consultations: a qualitative study. Patient Education and Counseling. 2025; 137:108970.
. Interpersonal relationships after prenatal diagnosis of congenital heart disease: Social stressors and supports. Journal of Perinatology. 2025; 45:907-913.
. Wellbeing and quality of life among parents of individuals with Fontan physiology. Quality of Life Research. 2025; 34:1419-1431.
. A consensus-based framework for the psychosocial evaluation of pediatric candidates for cardiothoracic transplant and ventricular assist devices. The Journal of Heart and Lung Transplantation. 2025; 44:487-502.
. (162) More Than a Transplant: Uncovering the Impact of Mental Health in Pediatric Heart Transplantation. The Journal of Heart and Lung Transplantation. 2025; 44:s79-s80.
. (159) ISHLT/ACTION/PHTS/IPTA/Transplant Families Consensus-Based Framework for the Psychosocial Evaluation of Pediatric Candidates for Cardiothoracic Transplant and Ventricular Assist Devices. The Journal of Heart and Lung Transplantation. 2025; 44:s78.
. (122) Quantifying the Mental Health Burden of the Pediatric Lung Transplant Journey in the United States. The Journal of Heart and Lung Transplantation. 2025; 44:s61.
. Optimizing Psychological Health Across the Perinatal Period: An Update on Maternal Cardiovascular Health: A Scientific Statement From the American Heart Association. Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease. 2025; 14:e041369.
. Pregnancy care experiences for adults with congenital heart disease in the United States. American Heart Journal. 2025; 280:30-41.
. A-243 Employing skin self-examination and fear of cancer recurrence management in early-stage melanoma follow-up: Evaluation of the MELACARE intervention in a randomised controlled trial. Skin Cancer -Lisboa-. 2025; 3:100591.
. An Observational Study of Dialogue about Uncertainty in Clinician-Family Counseling Conversations Following Prenatal Diagnosis of Complex Congenital Heart Disease. PEC Innovation. 2024; 4:100265.
. Mobile teledermoscopy for patients at high risk of cutaneous melanoma: A single-arm, feasibility study of a clinical intervention at two tertiary centres (MOBILEMEL). Journal of the European Academy of Dermatology and Venereology. 2024; 38:2316-2319.
. Short-Term Effectiveness of a Stepped-Care Model to Address Fear of Cancer Recurrence in Patients With Early-Stage Melanoma. Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 2024; 33:e70041.
. MELACARE Nurse-led follow-up after early-stage melanoma: protocol and feasibility. Acta Oncologica (Informa). 2024; 63:909-914.
. Abstract 4122307: Longitudinal Changes in Parent-reported Quality of Life in Children with Single Ventricle. Circulation. 2024; 150:a4122307.
. Mental health screening for parents following surgical neonatal intensive care unit (NICU) discharge. Early Human Development. 2024; 198:106128.
. A Randomized Controlled Trial Comparing Loss versus Gain Incentives to Improve Adherence to an Obesity Treatment Intervention in Adolescents. Nutrients. 2024; 16:3363.
. Getting Wheels: development and evaluation of a psychoeducational resource for parents of children with a neuromuscular condition following recommendation of wheelchair equipment. Disability and Rehabilitation-Assistive Technology. 2024; 19:2630-2640.
. Wellbeing in Children and Adolescents with Fontan Physiology. The Journal of Pediatrics. 2024; 273:114156.
. Trisomy 21 and Congenital Heart Disease: Impact on Health and Functional Outcomes From Birth Through Adolescence: A Scientific Statement From the American Heart Association. Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease. 2024; 13:e036214.
. Quality of Life and Well-Being in Adults With Fontan Physiology: Findings From the Australian and New Zealand Fontan Registry Quality of Life Study. Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease. 2024; 13:e033818.
. The Power of Words: Preferred Medical Terminology of People Affected by Congenital Heart Conditions. Heart, Lung and Circulation. 2024; 33:s501.
. Correlates of Resilience in Families of Children With Dextro-Transposition of the Great Arteries. Heart, Lung and Circulation. 2024; 33:s490.
. MEDIC: Development and validation of a new instrument to assess emotional reactivity to medical stimuli in a representative community sample of adults. Journal of Psychiatric Research. 2024; 176:265-275.
. Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings. JAMA Network Open. 2024; 7:e2422104.
. Evaluation of the use of visual storytelling as an educational intervention in the cardiac ICU: reaching parents before they are in crisis. Cardiology in the Young. 2024; 34:1190-1198.
. Clinical Risk Assessment and Prediction in Congenital Heart Disease Across the Lifespan: JACC Scientific Statement. Journal of the American College of Cardiology. 2024; 83:2092-2111.
. "It's more than just a conversation about the heart ": exploring barriers, enablers, and opportunities for improving the delivery and uptake of cardiac neurodevelopmental follow-up care. Frontiers in Pediatrics. 2024; 12:1364190.
. Integrated psychological care in pediatric hospital settings for children with complex chronic illness and their families: a systematic review. Psychology and Health: an international journal. 2024; 39:452-478.
. Cognitive Functioning and Psychosocial Outcomes in Adults with Complex Congenital Heart Disease: A Cross-sectional Pilot Study. Pediatric Cardiology. 2024; 45:529-543.
. Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards). 1st Edition. Heart, Lung and Circulation. 2024; 33:153-196.
. Mother-Infant Dyadic Synchrony and Interaction Patterns After Infant Cardiac Surgery. Journal of Pediatric Psychology. 2024; 49:13-26.
. Neuroimaging and Neurodevelopmental Outcomes Among Individuals With Complex Congenital Heart Disease: JACC State-of-the-Art Review. Journal of the American College of Cardiology. 2023; 82:2225-2245.
. If Not Now, When? Taking Action to Improve Mental Health Outcomes for Families of Children With Heart Disease. Pediatric Critical Care Medicine. 2023; 24:966-969.
. Mental Health Conditions Among Children and Adolescents With Congenital Heart Disease: A Danish Population-Based Cohort Study. Circulation. 2023; 148:1381-1394.
. "I Just Want You to Hear That Term ": Characterizing Language Used in Fetal Cardiology Consultations. Journal of Cardiovascular Development and Disease. 2023; 10:394.
. Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease. Journal of Pediatric Psychology. 2023; 48:537-552.
. Addressing Adverse Childhood and Adult Experiences During Prenatal Care. Obstetrics and Gynecology. 2023; 141:1072-1087.
. Are Parent Discharge Readiness Scores Effective for Patients With Congenital Heart Disease After Cardiac Surgery?. The Journal of Pediatrics. 2023; 257:113361.
. Introducing Uncertainty: An Observational Study of Conversations on Prenatal Diagnosis of Complex Congenital Heart Disease (Sci238). Journal of Pain and Symptom Management. 2023; 65:e660-e661.
. Biological and structural phenotypes associated with neurodevelopmental outcomes in congenital heart disease. Translational Pediatrics. 2023; 12:768-786.
. O.O.4.4 “I just want you to hear that term”: Characterizing language used in fetal cardiology consultations Presenter(s): Kelly Harris, University of Pittsburgh School of Medicine, United States; Kelsey Schweiberger, University of Pittsburgh School of Medicine, United States. Patient Education and Counseling. 2023; 109:107.
. "The usual challenges of work are all magnified ": Australian paediatric health professionals' experiences during the COVID-19 pandemic. International Journal of Cardiology Congenital Heart Disease. 2023; 11:100434.
. Telehealth services for cardiac neurodevelopmental care during the COVID-19 pandemic: a site survey from the Cardiac Neurodevelopmental Outcome Collaborative. Cardiology in the Young. 2023; 33:280-287.
. Multidisciplinary perspectives and practices of wheelchair prescription for children with neuromuscular conditions. Disability and Rehabilitation-Assistive Technology. 2023; 18:166-174.
. Effects of Loss and Gain Incentives on Adherence in Pediatric Weight Management: Preliminary Studies and Economic Evaluation of a Theoretical Trial. International Journal of Environmental Research and Public Health. 2023; 20:584.
. Abstract 10042: Mental Health Conditions In Congenital Heart Disease: A Danish Population Based Cohort Study. Circulation. 2022; 146:a10042.
. The Cost of Neurodevelopmental Disability: Scoping Review of Economic Evaluation Methods. ClinicoEconomics and Outcomes Research. 2022; 14:665-682.
. Chronic pediatric diseases and risk for reading difficulties: a narrative review with recommendations. Pediatric Research. 2022; 92:966-978.
. The Australian and New Zealand Fontan Registry Quality of Life Study: Protocol for a population-based assessment of quality of life among people with a Fontan circulation, their parents, and siblings. BMJ Open. 2022; 12:e065726.
. Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis. Health Psychology Review. 2022; 16:378-411.
. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circulation: Cardiovascular Quality and Outcomes. 2022; 15:e000110.
. Integrating Telehealth Into Neurodevelopmental Assessment: A Model From the Cardiac Neurodevelopmental Outcome Collaborative. Journal of Pediatric Psychology. 2022; 47:707-713.
. Quality of Life and Other Patient-Reported Outcomes Across the Life Span Among People With Fontan Palliation. Canadian Journal of Cardiology. 2022; 38:963-976.
. Family, healthcare professional, and societal preferences for the treatment of infantile spinal muscular atrophy: A discrete choice experiment. Developmental Medicine and Child Neurology. 2022; 64:753-761.
. Opportunities to enhance parental well-being during prenatal counseling for congenital heart disease. Seminars in Perinatology. 2022; 46:151587.
. What is the prevalence of fear of cancer recurrence in cancer survivors and patients? A systematic review and individual participant data meta-analysis. Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer. 2022; 31:879-892.
. How Mindful Awareness and Psychological Distress Influence Mother-Infant Bonding and Maternal Perceptions of Infant Temperament. Mindfulness. 2022; 13:955-966.
. Partnering With Stakeholders to Inform the Co-Design of a Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease. Journal of Patient Experience. 2022; 9:23743735221092488.
. Protocol for the implementation of a stepped-care model to address fear of cancer recurrence in patients previously diagnosed with early-stage (0-II) melanoma. BMJ Open. 2022; 12:e054337.
. “The Usual Challenges of Work Are All Magnified”: Australian Paediatric Health Professionals’ Experiences During the COVID-19 Pandemic. Heart, Lung and Circulation. 2022; 31:s278.
. Economic Justification for Neurodevelopmental Support for Children With Congenital Heart Disease: A Scoping Review of Economic-Modelling and Recommendations for Future Practice. Heart, Lung and Circulation. 2022; 31:s270.
. Lucky and Valuing a “Normal” Life: A Qualitative Study of Parents and Siblings of Children With Dextro-Transposition of the Great Arteries. Heart, Lung and Circulation. 2022; 31:s272.
. A mediated model of mindful awareness, emotion regulation, and maternal mental health during pregnancy and postpartum. Australian Journal of Psychology. 2021; 73:368-380.
. Parenting under pressure: A mixed-methods investigation of the impact of COVID-19 on family life. Journal of Affective Disorders Reports. 2021; 5:100161.
. Identifying the 'Active Ingredients' of an Effective Psychological Intervention to Reduce Fear of Cancer Recurrence: A Process Evaluation. Frontiers in Psychology. 2021; 12:661190.
. Parent mental health and family functioning following diagnosis of CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative. Cardiology in the Young. 2021; 31:900-914.
. Factors associated with psychological distress among Australian women during pregnancy. Personality and Individual Differences. 2021; 172:110577.
. Maintaining Momentum in Infant Mental Health Research During COVID-19: Adapting Observational Assessments. Journal of Pediatric Psychology. 2021; 46:254-263.
. Neurocognitive Dysfunction and Smaller Brain Volumes in Adolescents and Adults With a Fontan Circulation. Circulation. 2021; 143:878-891.
. Melanoma. In: Lazenby M, Ed. Psycho-Oncology. London: Oxford University Press (OUP); 2021.