Publications

Santoro, SL; Esbensen, AJ; Hopkin, RJ; Hendershot, L; Hickey, F; Patterson, B. Contributions to Racial Disparity in Mortality among Children with Down Syndrome. The Journal of Pediatrics. 2016; 174:240-246.e1.

Van Deusen, K; Prince, MA; Walsh, MM; Esbensen, AJ; Patel, LR; Pinks, ME; Thurman, AJ; Abbeduto, L; Daunhauer, LA; Fidler, DJ. Laboratory-based measures of executive function and daily living skills in young children with Down syndrome: informing future interventions. Journal of Intellectual Disability Research. 2024; 68:1301-1315.

Stone-Heaberlin, M; Blackburn, A; Hoffman, EK; Esbensen, AJ. Feasibility study of a parent-driven intervention for youth with Down syndrome. Journal of Intellectual Disability Research. 2024; 68:1077-1086.

Hillerstrom, H; Fisher, R; Janicki, MP; Chicoine, B; Christian, BT; Esbensen, A; Esralew, L; Fortea, J; Hartley, S; Hassenstab, J; Silverman, W; Strydom, A; Zaman, SH; Zetterberg, H. Adapting prescribing criteria for amyloid-targeted antibodies for adults with Down syndrome. Alzheimer's and Dementia. 2024; 20:3649-3656.

Soltani, A; Esbensen, AJ. Role of child demographic, executive functions, and behavioral challenges on feelings about parenting among parents of youth with Down syndrome. Research in Developmental Disabilities. 2024; 148:104717.

Gandy, K; Hall, L; Krull, KR; Esbensen, AJ; Rubnitz, J; Jacola, LM. Neurocognitive and psychosocial outcomes in survivors of childhood leukemia with Down syndrome. Cancer Medicine. 2024; 13:e6842.

Esbensen, AJ; Schworer, EK; Hartley, SL. Down Syndrome. Intellectual and Developmental Disabilities. : Springer Nature; Springer Nature; 2024.

Esbensen, AJ; Schworer, EK; Lee, NR; Hartley, SL; Hoffman, EK; Yamamoto, K; Fidler, D. Implications of Using the BRIEF-Preschool With School-Age Children With Down Syndrome. American Journal on Intellectual and Developmental Disabilities. 2024; 129:41-55.

Van Deusen, K; Prince, MA; Thurman, AJ; Esbensen, AJ; Patel, LR; Abbeduto, L; Walsh, MM; Daunhauer, LA; Feigles, RT; Fidler, DJ. Evaluating an adapted reverse categorisation task to assess cognitive flexibility in young children with Down syndrome. Journal of Intellectual Disability Research. 2023; 67:734-745.

Soltani, A; Schworer, EK; Altaye, M; Fidler, DJ; Beebe, DW; Wiley, S; Hoffman, EK; Voth, K; Esbensen, AJ. Psychometric properties of inhibitory control measures among youth with Down syndrome. Journal of Intellectual Disability Research. 2023; 67:753-769.

Pinks, ME; Van Deusen, K; Prince, MA; Esbensen, AJ; Thurman, AJ; Patel, LR; Abbeduto, L; Walsh, MM; Daunhauer, LA; Feigles, RT; Nguyen, V; Fidler, DJ. Psychometric evaluation of a working memory assessment measure in young children with Down syndrome. Research in Developmental Disabilities. 2023; 139:104564.

Soltani, A; Schworer, EK; Amin, R; Hoffman, EK; Esbensen, AJ. Executive Functioning, Language, and Behavioral Abilities Related to Obstructive Sleep Apnea in Down Syndrome. Journal of Developmental and Behavioral Pediatrics. 2023; 44:e429-e435.

Xanthopoulos, MS; Nelson, MN; Eriksen, W; Barg, FK; Byars, KC; Ishman, SL; Esbensen, AJ; Meinzen-Derr, J; Heubi, CH; Gurbani, NS; Bradford, R; Hicks, S; Tapia, IE. Caregiver experiences helping children with Down syndrome use positive airway pressure to treat obstructive sleep apnea. Sleep Medicine. 2023; 107:179-186.

Shaffer, RC; Reisinger, DL; Schmitt, LM; Lamy, M; Dominick, KC; Smith, EG; Coffman, MC; Esbensen, AJ. Systematic Review: Emotion Dysregulation in Syndromic Causes of Intellectual and Developmental Disabilities. Journal of the American Academy of Child and Adolescent Psychiatry. 2023; 62:518-557.

Channell, MM; Mattie, LJ; Schworer, EK; Fidler, DJ; Esbensen, AJ. Using the Social Skills Improvement System (SSiS) Rating Scales to assess social skills in youth with Down syndrome. Frontiers in Psychology. 2023; 14:1105520.

Schworer, EK; Altaye, M; Fidler, DJ; Beebe, DW; Wiley, S; Hoffman, EK; Esbensen, AJ. Evaluating Processing Speed and Reaction Time Outcome Measures in Children and Adolescents with Down Syndrome. International Journal of Environmental Research and Public Health. 2023; 20:5202.

Soltani, A; Schworer, EK; Jacobson, LA; Channell, MM; Lee, NR; Faught, GG; Grzadzinski, R; Fidler, D; Esbensen, AJ. Confirmatory factor analysis of the BRIEF2 in a sample of youth with Down syndrome. Journal of Intellectual Disability Research. 2023; 67:148-158.

Schworer, EK; Soltani, A; Altaye, M; Fidler, DJ; Esbensen, AJ. Cognitive flexibility assessment in youth with Down syndrome: Reliability, practice effects, and validity. Research in Developmental Disabilities. 2023; 133:104416.

Soltani, A; Schworer, EK; Esbensen, AJ. The Mediatory Role of Executive Functioning on the Association Between Sleep and Both Everyday Memory and ADHD Symptoms in Children and Youth With Down Syndrome. American Journal on Intellectual and Developmental Disabilities. 2023; 128:82-95.

Soltani, A; Schworer, EK; Esbensen, AJ. Executive functioning and verbal fluency performance in youth with Down syndrome. Research in Developmental Disabilities. 2022; 131:104358.

Schworer, EK; Esbensen, AJ; Nguyen, V; Bullard, L; Fidler, DJ; Daunhauer, LA; Mervis, CB; Becerra, AM; Abbeduto, L; Thurman, AJ. Patterns and predictors of adaptive skills in 2- to 7-year-old children with Down syndrome. Journal of Neurodevelopmental Disorders. 2022; 14:18.

Van Deusen, K; Prince, MA; Esbensen, AJ; Edgin, JO; Schworer, EK; Thurman, AJ; Patel, LR; Daunhauer, LA; Fidler, DJ. Profiles of Caregiver-Reported Executive Function in Children with Down Syndrome. Brain Sciences. 2022; 12:1333.

Smeyne, CN; Esbensen, AJ; Schworer, EK; Belizaire, S; Hoffman, EK; Beebe, DW; Wiley, S. Evaluating Verbal Fluency Outcome Measures in Children With Down Syndrome. American Journal on Intellectual and Developmental Disabilities. 2022; 127:328-344.

Schworer, EK; Ahmed, A; Hogenkamp, L; Moore, S; Esbensen, AJ. Associations among co-occurring medical conditions and cognition, language, and behavior in Down syndrome. Research in Developmental Disabilities. 2022; 126:104236.

Thurman, AJ; Bullard, L; Kelly, L; Wong, C; Nguyen, V; Esbensen, AJ; Bekins, J; Schworer, EK; Fidler, DJ; Daunhauer, LA; Mervis, CB; Holley Pitts, C; Becerra, AM; Abbeduto, L. Defining Expressive Language Benchmarks for Children with Down Syndrome. Brain Sciences. 2022; 12:743.

Esbensen, AJ; Vincent, LB; Epstein, JN; Kamimura-Nishimura, K; Wiley, S; Angkustsiri, K; Abbeduto, L; Fidler, D; Anixt, JS; Froehlich, TE. Co-occurring medical and behavioural conditions in children with Down syndrome with or without ADHD symptom presentation. Journal of Intellectual Disability Research. 2022; 66:282-296.

Esbensen, AJ; Hoffman, EK; Beebe, DW; Byars, K; Carle, AC; Epstein, JN; Johnson, C. Randomized Behavioral Sleep Clinical Trial to Improve Outcomes in Children With Down Syndrome. American Journal on Intellectual and Developmental Disabilities. 2022; 127:149-164.

Fidler, DJ; Prince, MA; Van Deusen, K; Esbensen, AJ; Thurman, AJ; Abbeduto, L; Patel, L; Mervis, C; Schworer, EK; Lee, NR; Edgin, JO; Hepburn, S; Davis, S; Daunhauer, LA. Latent profiles of autism symptoms in children and adolescents with Down syndrome. Journal of Intellectual Disability Research. 2022; 66:265-281.

Schworer, EK; Voth, K; Hoffman, EK; Esbensen, AJ. Short-term memory outcome measures: Psychometric evaluation and performance in youth with Down syndrome. Research in Developmental Disabilities. 2022; 120:104147.

Esbensen, AJ; Schworer, EK; Fidler, DJ; Thurman, AJ. Considerations for measuring individual outcomes across contexts in Down syndrome: Implications for research and clinical trials. International review of research in developmental disabilities. 2022; 62:191-225.

Schworer, EK; Esbensen, AJ; Fidler, DJ; Beebe, DW; Carle, A; Wiley, S. Evaluating working memory outcome measures for children with Down syndrome. Journal of Intellectual Disability Research. 2022; 66:195-211.

Fidler, DJ; Riggs, NR; Esbensen, AJ; Jackson-Cook, C; Rosser, T; Cohen, A. Outreach and Engagement Efforts in Research on Down Syndrome: An NIH INCLUDE Working Group Consensus Statement. International review of research in developmental disabilities. 2022; 63:247-267.

Esbensen, AJ; Schworer, EK. Preface. International review of research in developmental disabilities. 2022; 62:xiii-xiv.

Esbensen, AJ; Schworer, EK. Preface. Contemporary Issues in Evaluating Treatment Outcomes in Neurodevelopmental Disorders. : Elsevier; Elsevier; 2022.

Schworer, EK; Belizaire, S; Hoffman, EK; Esbensen, AJ. Semantic Verbal Fluency in Youth with Down Syndrome: Analysis of Conventional and Contextual Cluster Formation. Brain Sciences. 2022; 12:9.

White, AN; Chevette, M; Hillerstrom, H; Esbensen, A. Parental perspectives on research for Down syndrome. Journal of Applied Research in Intellectual Disabilities. 2022; 35:179-187.

Esbensen, AJ; Epstein, JN; Vincent, LB; Kamimura-Nishimura, K; Wiley, S; Angkustsiri, K; Abbeduto, L; Fidler, D; Froehlich, TE. Comparison of Attention-Deficit Hyperactivity Disorder in Typically Developing Children and Children with Down Syndrome. Journal of Developmental and Behavioral Pediatrics. 2022; 43:1-8.

Hartley, SL; Esbensen, AJ. Chapter 12 Sleep in aging adults with Down syndrome and its association with Alzheimer's disease. The Neurobiology of Aging and Alzheimer Disease in Down Syndrome. : Elsevier; Elsevier; 2022.

Will, EA; Schworer, EK; Esbensen, AJ. [Formula: see text] The role of distinct executive functions on adaptive behavior in children and adolescents with Down syndrome. Child Neuropsychology. 2021; 27:1054-1072.

Esbensen, AJ; Schworer, EK; Hoffman, EK; Wiley, S. Child Sleep Linked to Child and Family Functioning in Children with Down Syndrome. Brain Sciences. 2021; 11:1170.

Schworer, EK; Hoffman, EK; Esbensen, AJ. Psychometric Evaluation of Social Cognition and Behavior Measures in Children and Adolescents with Down Syndrome. Brain Sciences. 2021; 11:836.

Esbensen, AJ; Hoffman, EK; Shaffer, RC; Patel, LR; Jacola, LM. Relationship Between Parent and Teacher Reported Executive Functioning and Maladaptive Behaviors in Children With Down Syndrome. American Journal on Intellectual and Developmental Disabilities. 2021; 126:307-323.

Dierssen, M; Herault, Y; Helguera, P; Martínez De Lagran, M; Vazquez, A; Christian, B; Carmona-Iragui, M; Wiseman, F; Mobley, W; Fisher, EM C; Haydar, TF; Sherman, SL; Strydom, A; Bhattacharyya, A. Building the Future Therapies for Down Syndrome: The Third International Conference of the T21 Research Society. Molecular Syndromology. 2021; 12:202-218.

Hendrix, JA; Airey, DC; Britton, A; Burke, AD; Capone, GT; Chavez, R; Chen, J; Chicoine, B; Costa, AC S; Dage, JL; Woodward, J; Zimmer, JA; Feldman, HH; Mobley, W. Cross-Sectional Exploration of Plasma Biomarkers of Alzheimer's Disease in Down Syndrome: Early Data from the Longitudinal Investigation for Enhancing Down Syndrome Research (LIFE-DSR) Study. Journal of Clinical Medicine. 2021; 10:1907.

Hendrix, JA; Amon, A; Abbeduto, L; Agiovlasitis, S; Alsaied, T; Anderson, HA; Bain, LJ; Baumer, N; Bhattacharyya, A; Bogunovic, D; Warren, SF; White, AN; Wong, GW; Yi, JS. Opportunities, barriers, and recommendations in down syndrome research. Translational Science of Rare Diseases. 2021; 5:99-129.

Snyder, HM; Bain, LJ; Brickman, AM; Carrillo, MC; Esbensen, AJ; Espinosa, JM; Fernandez, F; Fortea, J; Hartley, SL; Head, E; Rosas, HD; Strydom, A; Whitten, MS; Rafii, MS. Further understanding the connection between Alzheimer's disease and Down syndrome. Alzheimer's and Dementia. 2020; 16:1065-1077.

Bangerter, A; Ness, S; Lewin, D; Aman, MG; Esbensen, AJ; Goodwin, MS; Dawson, G; Hendren, R; Leventhal, B; Shic, F; Opler, M; Ho, KF; Pandina, G. Clinical Validation of the Autism Behavior Inventory: Caregiver-Rated Assessment of Core and Associated Symptoms of Autism Spectrum Disorder. Journal of Autism and Developmental Disorders. 2020; 50:2090-2101.

Bangerter, A; Chatterjee, M; Manyakov, NV; Ness, S; Lewin, D; Skalkin, A; Boice, M; Goodwin, MS; Dawson, G; Hendren, R; Leventhal, B; Shic, F; Esbensen, A; Pandina, G. Relationship Between Sleep and Behavior in Autism Spectrum Disorder: Exploring the Impact of Sleep Variability. Frontiers in Neuroscience. 2020; 14:211.