Why are we doing this research?
The purpose of this research study is to collect information on the natural course of benign vascular tumors and their response to treatment.
This study data information may also be used to track the outcomes of various treatments, to determine which ones are the most helpful, and for future benign vascular tumor research.
What will happen in the study?
You will not need to have any additional tests or examinations to participate in this study.
The Registry will use medical information that has already been collected for your clinical care. The form will be completed at the time of enrollment in the study. Follow up forms will be requested annually to monitor for any changes over time.
You may be contacted about future research projects. So that we can find you in the future, we will ask you to provide your name, address, and contact phone numbers.
We may contact you for other information. This is voluntary; you do not have to give us this information to remain in the Registry.
Women who become pregnant while on the Registry will be asked for information about their pregnancy. This information is important to help physicians learn to care for pregnant women who have vascular tumors.
If questions arise about your benign vascular tumor or your treatment, one of the researchers for the Registry will be available to talk with your physician and provide advice based on the shared information the Registry has summarized on vascular tumors.