Care for All Aspects of Your Child’s Needs
Achieving the best outcome for your child with cystic fibrosis (CF) is a long-term commitment. Our nationally accredited care center develops treatment plans crafted to your child’s unique needs while helping you coordinate home care services, educational support and more. We also provide access to the latest discoveries as one of only 10 specially-designated CF Foundation Research Centers in the United States.
Why Choose Us?
CF Foundation Accreditation
The Cystic Fibrosis Center at Cincinnati Children's is one of more than 110 accredited CF centers throughout the nation. These centers are accredited by the Cystic Fibrosis Foundation, a not-for-profit organization founded in 1955 to fund research to cure CF and improve the quality of life for people with the disease. This accreditation guarantees quality care for your entire family.
A Diverse Team of Experts
CF care is complex and requires a unique approach for each individual. Thanks to our team’s combination of experts from a variety of specialties, we have the knowledge and skills to address the unique issues your child may face. The treatment plan we prepare will cover all aspects of your child’s care needs.
Your child’s care team will include pulmonary physicians and nurse practitioners who specialize in caring for individuals with CF, nurses to coordinate routine care and sick visits, respiratory therapists to measure pulmonary function and teach airway clearance, nutritionists to monitor nutritional status, social workers, psychologists and a chaplain to assure the emotional health and well-being of your child and your family, and an exercise physiologist to evaluate fitness levels and develop personalized exercise plans. The CF Center is also home to the Cystic Fibrosis Non-Tuberculous Mycobacterium (CF-NTM) Clinic, a comprehensive clinic specifically focused on providing NTM treatment to children with CF.
Our team also helps coordinate outside resources such as home health services and school / educational planning. In addition, families affected by CF are a crucial part of this process. We learn from you and we count on you to be involved. You are the most important members of the team. Our goal is to make sure your child has the best possible quality of life.
Education
You will meet medical students, residents, fellows and other health care providers-in-training during your time with us. Education is an essential component of the Cincinnati Children's mission, and we take seriously our commitment to train the next generation of CF caregivers.
Research
Cincinnati Children's is one of only 10 specially-designated CF Foundation Research Centers in the United States. We were one of the first care centers to join the CF Foundation's Therapeutics Development Network, and continue to support the full spectrum of CF drug development – from the discovery of promising drugs to their clinical testing and evaluation.
The goals of our research are to gain a better understanding of CF, improve quality of life, discover new therapies and, ultimately, to find a cure. As we care for your child, we will provide information about opportunities to participate in research activities. Our team will answer any questions you may have to help you decide which projects are right for you.
Online Second Opinions
Our nationally-recognized specialists provide online second opinions for families. They will review your case and answer specific questions about a diagnosis or treatment options. It’s easy, convenient and secure. Plus, you don’t have to leave home. Our case manager will collect your medical records and guide you through the process.
