Specialized Care for Children With Lupus
Focused on Childhood-Onset Lupus
Systemic lupus erythematosus (SLE) accounts for more than half of our patient encounters at the Lupus Center. SLE is a long-term autoimmune disease. This means the immune system mistakenly attacks healthy parts of the body.
SLE can affect the kidneys, brain, skin, joints and other organs. Symptoms and disease activity vary from one child to another. Our specialists understand how lupus can affect children and young adults. We work with families to choose the best treatment based on each patient’s needs.
Specialists With Different Areas of Expertise
Lupus can involve several parts of the body. A child may need input from doctors with different areas of expertise. Our lupus specialists work closely with experts across Cincinnati Children's, including kidney care, brain and nerve health, skin conditions and eye care.
In addition, families can also access a dietitian, social worker, clinical pharmacist, and physical and occupational therapists. These professionals help with concerns beyond medical treatment. They can offer support with nutrition, daily activities, medication questions and other needs.
Testing During Your Child’s Visit
Our clinic offers several ways to assess and monitor lupus. On-site lab testing helps doctors check for changes in your child’s health. And point-of-care ultrasound lets doctors view images during a clinic visit.
For example, nailfold capillaroscopy uses a special camera to examine tiny blood vessels near the fingernails. These images can help doctors look for signs of blood vessel changes. Computerized cognitive testing checks skills such as memory and attention.
Your child’s doctor will explain which tests may be useful. The results can help guide decisions about treatment and follow-up.
Clinical Trials and New Treatment Research
Research is a key part of our effort to improve outcomes for children with lupus. Our team leads and takes part in studies of childhood-onset lupus and related conditions.
Some studies look at new medicines and other treatment options. Others explore cellular therapies, including CAR-T treatment. Not every study is right for every patient. Your child’s doctor can discuss available trials and whether your child may qualify.
Also, our researchers study kidney disease, brain inflammation, memory and thinking changes, blood disorders, pain and fatigue. This work helps them better understand lupus and identify ways to improve treatment.
Support for Your Family
Lupus can change how a child feels and takes part in everyday life. Pain and fatigue may make school, common activities and daily routines harder. Emotional health can also be a concern for children and parents.
Our team considers all of these needs when discussing treatment. Families can connect with social work, nutrition, pharmacy and therapy services. These resources can help address practical concerns and support a child’s health at home, at school and during daily activities.
Consistent Point of Contact for Patients and Family
The Lupus Center team includes a dedicated nurse care coordinator who serves as a consistent point of contact for our patients and families.
The nurse coordinator helps families arrange appointments and connect with the services their child needs. They can also help find resources, explain next steps and answer questions about the care plan. Having one person to contact can make it easier to keep track of appointments and understand who to call when questions come up.
Planning for Care as Your Child Grows
Lupus care often continues into adulthood. As children get older, they can take on more responsibility for their health and treatment. Our team helps young people build the skills they need to manage their condition.
We also work with patients and families as they prepare to move from pediatric to adult care. Planning ahead can help make this change easier to understand and manage.
