Neurofibromatosis Expertise, Treatments and Family Support
Recognized Neurofibromatosis Specialists
Our program includes nationally and internationally recognized experts in neurofibromatosis care and research. Cincinnati Children’s is also recognized by the Children’s Tumor Foundation as a Comprehensive NF Center through the NF Clinic Network.
Each year, our team cares for about 500 patients with neurofibromatosis and related conditions. Families come to us for expert evaluations, long-term care and trusted second opinions.
Our program is part of the Cincinnati Children’s Cancer and Blood Diseases Institute, which is ranked No. 2 in the nation for pediatric cancer care in the U.S. News & World Report 2026-2027 Best Children's Hospitals rankings.
Advanced Research and Clinical Trials
Our specialists lead and participate in national clinical trials focused on neurofibromatosis and schwannomatosis. These studies help us improve treatment options and better understand how these conditions affect children over time.
Because Cincinnati Children’s is a leading pediatric research hospital, eligible patients may have access to innovative therapies that are not widely available elsewhere.
Coordinated Care from Many Specialists
Neurofibromatosis can affect many parts of a child’s body. That is why team-based care is central to our program.
Your child’s care team may include specialists in oncology, neurology, genetics, ophthalmology, orthopaedics, neuropsychology, pain management, plastic surgery, rehabilitation medicine and neurosurgery. These experts work together to create a unified care plan that supports your child’s changing needs.
Support for the Whole Child and Family
We focus on more than treating tumors or symptoms. Our team supports your child’s development, daily function, emotional well-being and long-term quality of life.
Families also work with a clinic nurse and care manager who helps coordinate follow-up visits, answer questions and connect families with helpful resources throughout their care journey.
Expert Second Opinions for Neurofibromatosis
Many patients come to Cincinnati Children’s Neurofibromatosis Program for a second opinion. Families often seek our expertise when facing complex diagnoses, new symptoms or questions about treatment options.
Our specialists provide detailed evaluations and clear recommendations to help families feel confident about next steps and long-term care decisions.
