The Neurofibromatosis Program within the Cancer and Blood Diseases Institute at Cincinnati Children’s accepts referrals from physicians and families.

Families can call 513-636-4760, option 1, to make an  appointment.

Physicians making referrals should contact the Physician Priority Link, 1-888-636-7997 or 1-888-7997. 

If you have general questions about our programs or our clinical trials, contact us at

Before the first appointment, a nurse works with families and referring physicians to obtain a detailed medical history, test results and radiology reports. This allows us to plan the first appointment and ensure that all appropriate specialists are available to see the child that day. The nurse also works directly with the family to schedule appointments, follow up on insurance pre-certifications with billing personnel and assist in making travel arrangements, if needed.

Consultation Services

Experts in the Neurofibromatosis Program can serve as a resource for other physicians by providing second opinions, consultations and guidance on the management of patients with neurofibromatosis. For more information, contact the Physician Priority Link, 1-888-636-7997 or 1-888-7997.

Cincinnati Children’s Hospital Medical Center
Neurofibromatosis Program
MLC 7015
3333 Burnet Ave.
Cincinnati, OH 45229-3039