The Neurofibromatosis (NF) Program at Cincinnati Children’s accepts referrals from physicians and families.

Families can call the NF nurse coordinator at 513-636-8826 with questions about the program. For appointments, families can call 513-636-4760, option 1. You may also reach us at NFreferral@cchmc.org.

Physicians making referrals or seeking consultation should contact the Physician Priority Link at 1-888-636-7997 or 513-636-7997. 

Before the first appointment, a nurse works with families and referring physicians to obtain a detailed medical history, test results and radiology reports. This allows us to plan the first appointment and ensure that all appropriate specialists are available to see the child that day. The nurse also works directly with the family to schedule appointments, follow up on insurance pre-certifications with billing personnel and assist in making travel arrangements, if needed.

Mailing Address

Cincinnati Children’s Hospital Medical Center
Neurofibromatosis Program
MLC 4006
3333 Burnet Ave.
Cincinnati, OH 45229-3039