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Toby Schry has been fighting his entire life. In fact, the fight began before he was born.
An early brush with death occurred while still in utero when a sepsis infection nearly killed him and his mom, Amy. Both survived, but things didn’t become much easier for Toby, who was born premature and was constantly in and out of the hospital with various ailments.
Amy found herself at odds with local doctors near where they lived at the time in Georgetown, Ky., arguing that something was wrong with her baby. Toby never left the house, yet was constantly sick.
“It was one thing after the next and they [doctors in Lexington] were wanting to just explain things away. But something kept telling me, this isn’t all of it. I don’t care what the reasoning is, something is up and we need to fix it,” said Amy.
“I stayed vigilant and followed my gut and advocated for the proper care. And that led us to Cincinnati Children’s.”
At 18 months old, Toby became a patient at Cincinnati Children’s.
“It was only when we came to Cincinnati Children’s that Toby was finally diagnosed with immune deficiency,” said Amy, recalling their early visits with Neurology. “It then was one diagnosis after the next and [his doctors] said, ‘Something is connecting all of this.’ ”