CS is complex and effects many body systems. It is helpful to involve multiple experts who can coordinate care. Treatment will address each child’s needs and focus on:
- The nature of the medical problems
Early on, infants and toddlers with CS often need medical care. This is due to major health issues (such as: airway, breathing, heart defects, tracheal and esophageal malformations, feeding issues). As an infant’s medical conditions stabilize, a focus on hearing, vision and development is vital. This will help the child to communicate and learn. Without the ability to effectively communicate, children with CS often have challenging behaviors. This is often due to frustration or used as another way to communicate. Some of these likely stem from chronic health issues and challenges with vision and hearing.
As the care of children with CS improves, the goal is to provide the right treatment as early as possible. It can be overwhelming to think about all of the child’s needs at once. It can help to think of all the ways that day-to-day events can be used to build the child's skills. Families know their child best, and their priorities and goals should stay at the forefront of their child’s care.
Development of effective communication skills is a common challenge for children with CS. This can affect their day-to-day life. Most babies with CS have hearing and vision challenges that can delay their development. They often need long-term medical and educational support. Early and effective care and support helps children with CS participate meaningfully at home, school and in their community.