Coordinated, Advanced Evaluations
Children with CHARGE syndrome often need care from many specialists. Our team includes experts in aerodigestive and feeding care, otolaryngology (ear, nose and throat), audiology, ophthalmology, genetics, cardiology, endocrinology, rehabilitation therapies and more.
Before your visit, our providers meet to review records and design a customized itinerary. This streamlined scheduling reduces travel burden and often condenses evaluations into a four-day visit.
We also provide integrated anesthesia and preoperative cardiology planning tailored to children with CHARGE syndrome, improving safety during procedures.
Dedicated Support at Every Step
From your first call through follow-up care, a nurse coordinator serves as your main point of contact. They collect and review medical records, organize appointments, and help you understand next steps.
Families often ask: What happens after the visit? You will leave with a unified care plan and clear recommendations to share with your local providers. We remain available for questions and ongoing guidance.
Whole-Child, Future-Focused Care
CHARGE syndrome can affect many body systems. Our goal is to look at the full picture, not just one symptom at a time. We evaluate the systems most involved and help establish a strong baseline for growth and development.
We are also expanding our research registry and long-term outcomes tracking. This work helps us better understand CHARGE syndrome and improve care for future families.
Because more than half of our patients travel from outside the region, we carefully coordinate care to reduce stress. Our team helps families plan for overnight stays and ensures each visit is as organized and efficient as possible.
