When Leeann Fitzpatrick learned her son had a rare Chiari brain malformation, her own brain spun with questions. Her husband was a doctor, but their medical saga was just like any other parent's when facing uncertainties about their child's health. They later discovered their second son had a Chiari malformation as well, and Dr. Kerry Crone, a pediatric neurosurgeon at Cincinnati Children's, helped them tackle the problem. Dr. Crone performed surgery on both boys and helped the Fitzpatricks identify and define the unknowns of the condition. The family has made it their mission to help other families going through the same journey. They established a website (www.nfcfchiari.com) that raises money for research at Cincinnati Children's.