Center for Innovation in Chronic Care Delivery and Decision Making

Publications

Baird, TA; Wright, DR; Britto, MT; Lipstein, EA; Trout, AT; Hayatghaibi, SE. Patient Preferences in Diagnostic Imaging: A Scoping Review. The Patient: Patient Centered Outcomes Research. 2023; 16:579-591.

Matula, KA; Blumling, AA; Myers, MF; McGowan, ML; Lipstein, EA. Adolescents' and Parents' Perspectives on a Novel Decision-Making Process for Return of Results in Genomic Research. Journal of Empirical Research on Human Research Ethics. 2023; 18:278-283.

MacKenzie, NE; Tutelman, PR; Chambers, CT; Parker, JA; Boland, L; Lipstein, EA; Jordan, I; Jordan, Z; Finley, GA; Toupin April, K; et al. Can Sharing Improve Caring? A Call to Prioritize Shared Decision Making in Pediatric Pain Management. Clinical Practice in Pediatric Psychology. 2023; 11:253-261.

Terrizzi, BF; Lambert, AS; Conard, LA E; Vaughn, LM; Lipstein, EL. Providers' Perspectives on Decision-Making About Care for Transgender Youth. 2023; 8:337-343.

Kappelman, MD; Wohl, DA; Herfarth, HH; Firestine, AM; Adler, J; Ammoury, RF; Aronow, JE; Bass, DM; Bass, JA; Benkov, K; et al. Comparative Effectiveness of Anti-TNF in Combination With Low-Dose Methotrexate vs Anti-TNF Monotherapy in Pediatric Crohn's Disease: A Pragmatic Randomized Trial. Gastroenterology. 2023; 165:149-161.e7.

Lambert, A; Pratt, A; Conard, LA E; Grigg Dean, E; Page, E; Vaughn, LM; Lipstein, EA. Supporting Gender-Related Medical Decision Making for Transgender and Gender-Diverse Individuals: A Scoping Review. 2023; 8:113-123.

Mazzola, A; Vaughn, LM; Chelvakumar, G; Conard, LA E; Fortenberry, DJ; Voss, RV; Lipstein, EA. Decision Support Needs for Transgender and Gender-Diverse Youth and Families: A Patient-Centered Needs Assessment. Journal of Adolescent Health. 2023; 72:452-459.

Prows, C; McGowan, M; Blumling, A; Brinkman, W; Childers-Buschle, K; Dufendach, K; Lipstein, E; Myers, M. P695: Adolescents’ state anxiety and decisional regret one week after learning carrier results for autosomal recessive disorders. 2023; 1:100767.

Lynch, JA; Idleburg, MJ; Butsch Kovacic, M; Childers-Buschle, KE; Dufendach, KR; Lipstein, EA; McGowan, ML; Myers, MF; Prows, CA. Developing video education materials for the return of genomic test results to parents and adolescents. PEC Innovation. 2022; 1:100051.

Matula, KA; Minar, P; Daraiseh, NM; Lin, L; Recker, M; Lipstein, EA. Pilot trial of iBDecide: Evaluating an online tool to facilitate shared decision making for adolescents and young adults with ulcerative colitis. Health Expectations. 2022; 25:3105-3113.

Valentine, KD; Lipstein, EA; Vo, H; Cosenza, C; Barry, MJ; Sepucha, K. Pediatric Caregiver Version of the Shared Decision Making Process Scale: Validity and Reliability for ADHD Treatment Decisions. Academic Pediatrics. 2022; 22:1503-1509.

Daraiseh, NM; Black, A; Minar, P; Meisman, A; Saxe, M; Lipstein, EA. iBDecide: A web-based tool to promote engagement in shared decision-making among adolescents with ulcerative colitis. Patient Education and Counseling. 2022; 105:1628-1633.

Lipstein, EA; Brinkman, WB; Zhang, Y; Hommel, KA; Ittenbach, RF; Liu, C; Denson, LA. Decision making about anti-TNF therapy: A pilot trial of a shared decision-making intervention. Patient Education and Counseling. 2022; 105:1075-1081.

Lin, JL; Lipstein, EA; Wittenberg, E; Tay, D; Lundstrom, R; Lundstrom, GL; Sediqzadah, S; Wright, DR. Intergenerational Decision Making: The Role of Family Relationships in Medical Decision Making. MDM Policy and Practice. 2021; 6:23814683211039468.

Lipstein, EA; Breslin, M; Dodds, CM; Kappelman, MD; Ollberding, NJ; Margolis, P; Xu, Y; Brinkman, WB. Integrating shared decision making into trial consent: A nested, cluster-randomized trial. Patient Education and Counseling. 2021; 104:1575-1582.

David, JG; Daly, BP; Chute, D; Katz-Buonincontro, J; Clemente, I; Lipstein, EA. Use of language in the medical decision-making process for biologic therapy: Youth and parent perspectives. Child: Care, Health and Development. 2021; 47:208-217.

Meisman, A; Daraiseh, NM; Minar, P; Saxe, M; Lipstein, EA. The Gray Zone: Adolescent and Young Adult Decision Support Needs for Ulcerative Colitis. MDM Policy and Practice. 2020; 5:2381468320940708.

Jordan, Z; Tremblay, C; Lipstein, E; Jordan, I; Boland, L. Is sharing really caring? Viewpoints on shared decision-making in paediatrics. Journal of Paediatrics and Child Health. 2020; 56:672-674.

Fox, JC; Lipstein, EA. Shared Decision Making in Gastroenterology: Challenges and Opportunities. Mayo Clinic Proceedings: Innovations, Quality and Outcomes. 2020; 4:183-189.

Schuler, CL; Dodds, C; Hommel, KA; Ittenbach, RF; Denson, LA; Lipstein, EA. Shared decision making in IBD: A novel approach to trial consent and timing. Contemporary Clinical Trials Communications. 2019; 16:100447.

Daley, T; Grossoehme, D; McGuire, JK; Corathers, S; Conard, LA; Lipstein, EA. "I Couldn't See a Downside ": Decision-Making About Gender-Affirming Hormone Therapy. Journal of Adolescent Health. 2019; 65:274-279.

Michel, HK; Noll, RB; Siripong, N; Kim, SC; Lipstein, EA. Shared Decision Making About Starting Anti-TNFs: A Pediatric Perspective. Journal of Pediatric Gastroenterology and Nutrition. 2019; 68:339-342.