Lipstein Lab

Publications

Anderson, CB; Gorecki, M; Bailes, A; Vargus-Adams, J; Lipstein, EA. Healthcare Decision-Making and Evolving Autonomy in Adolescents and Young Adults with Cerebral Palsy. Journal of Pediatrics. 2025; 114953.

Lipstein, EA; Lee, S; Anderson, C; Beck, AF; Brinkman, WB; Britto, MT; Hyland-Brown, R; Liu, C; Tegtmeyer, K; Zhang, N; Ray, KN. Shared Decision Making in Telehealth Versus In-Person Pediatric Primary Care. Telemedicine Journal and e-Health. 2025; 31(11):1385-1392.

Delaney, RK; Alexander, AJ; Lindsay, IM; Beck, K; Mcnall, S; Pinto, NM; Lipstein, EA; Thomas, TH; Altizer, R; Shepherd, T; Fagerlin, A. Are Patients Game? Investigating the Role of Game Technology in Transition Education for Congenital Heart Disease. Journal of the American Heart Association. 2025; 14(20):e043809.

Raynal, EA; Pallotto, IK; Brady, JM; Cortezzo, DE; Lipstein, EA. Balancing survival and suffering: factors influencing parental decision making after periviable consultation. Journal of Perinatology. 2025; 45(6):739-744.

Lipstein, EA; Pallotto, IK; Anderson, CB; Ammon, MA; Carle, AC. Health Care Provider Perspectives on Shared Decision Making With Parents and Adolescents. Clinical Pediatrics. 2025; 64(6):809-815.

Opel, DJ; Gerstein, MT; Carle, AC; Fournier, AK; Hargraves, I; Lafata, JE; Lipstein, EA; Mallinson, T; Moise, N; Neuman, HB; Simpson, M; Schwartz, A; Stevens-Lapsley, JE; Dickert, NW. Saving Shared Decision-Making. Journal of General Internal Medicine. 2025; 40(8):1844-1847.

Grimes, HN; Mcgowan, ML; Sinclair, JA; Prows, CA; Lipstein, EA; Myers, MF. Adolescents' and young adults' reactions to and perceived utility of carrier screening results in the context of a genomic research study. Journal of Genetic Counseling. 2025; 34(3):e70027.

Anderson, CB; Pallotto, IK; Dominguez, L; Ammon, MA; Carle, A; Lipstein, EA. Evolving Roles: Adolescent Perspectives on Shared Decision Making With Their Parents and Health Care Providers. Academic Pediatrics. 2025; 25(4):102778.

Orellana-Villazon, VI; Desante-Bertkau, JE; Smith, N; Previtera, M; Lipstein, EA. Exploring Shared Decision-Making Training in Pediatrics: A Scoping Review. Academic Pediatrics. 2025; 25(4):102805.

Blumling, AA; Mcgowan, ML; Prows, CA; Childers-Buschle, K; Martin, LJ; Lynch, JA; Dufendach, KR; Lipstein, EA; Kovacic, MB; Brinkman, WB; Myers, MF. Engaging adolescents and young adults in decisions about return of genomic research results: study protocol for a mixed-methods longitudinal clinical trial protocol. BMC Medical Informatics and Decision Making. 2024; 24(1):391.

Pascal, JM; Mcgowan, ML; Blumling, AA; Prows, CA; Lipstein, EA; Myers, MF. Young adults' reasoning for involving a parent in a genomic decision-making research study. Journal of Genetic Counseling. 2024; 33(3):653-665.

Valentine, KD; Lipstein, EA; Vo, H; Cosenza, C; Barry, MJ; Mancini, B; Brinkman, WB; Sepucha, K. Measure of Caregiver Attention-Deficit/Hyperactivity Disorder Knowledge Is Responsive to Decision Aid on Treatment for Attention-Deficit/Hyperactivity Disorder. Academic Pediatrics. 2024; 24(3):417-423.

Rasooly, IR; Marshall, TL; Cifra, CL; Catchpole, K; Kuzma, NC; Brady, PW; Melton, K; Khan, A; Chien, AT; Lipstein, EA; Landrigan, CP; Walsh, KE. Developing methods to identify resilience and improve communication about diagnosis in pediatric primary care. Frontiers in Medicine. 2024; 11:1414892.

Baird, TA; Wright, DR; Britto, MT; Lipstein, EA; Trout, AT; Hayatghaibi, SE. Patient Preferences in Diagnostic Imaging: A Scoping Review. Patient. 2023; 16(6):579-591.

Matula, KA; Blumling, AA; Myers, MF; Mcgowan, ML; Lipstein, EA. Adolescents' and Parents' Perspectives on a Novel Decision-Making Process for Return of Results in Genomic Research. Journal of Empirical Research on Human Research Ethics. 2023; 18(4):278-283.

Terrizzi, BF; Lambert, AS; Conard, LAE; Vaughn, LM; Lipstein, EL. Providers' Perspectives on Decision-Making About Care for Transgender Youth. Transgender Health. 2023; 8(4):337-343.

Mackenzie, NE; Tutelman, PR; Chambers, CT; Parker, JA; Boland, L; Lipstein, EA; Jordan, I; Jordan, Z; Finley, GA; April, KT; Witteman, HO; Birnie, KA. Can Sharing Improve Caring? A Call to Prioritize Shared Decision Making in Pediatric Pain Management. Clinical Practice in Pediatric Psychology. 2023; 11(3):253-261.

Kappelman, MD; Wohl, DA; Herfarth, HH; Firestine, AM; Adler, J; Ammoury, RF; Aronow, JE; Bass, DM; Bass, JA; Benkov, K; Zikry, M; Weinberger, M; Saeed, SA; Bousvaros, A. Comparative Effectiveness of Anti-TNF in Combination With Low-Dose Methotrexate vs Anti-TNF Monotherapy in Pediatric Crohn's Disease: A Pragmatic Randomized Trial. Gastroenterology. 2023; 165(1):149-161.e7.

Lambert, A; Pratt, A; Conard, LAE; Grigg Dean, E; Page, E; Vaughn, LM; Lipstein, EA. Supporting Gender-Related Medical Decision Making for Transgender and Gender-Diverse Individuals: A Scoping Review. Transgender Health. 2023; 8(2):113-123.

Mazzola, A; Vaughn, LM; Chelvakumar, G; Conard, LAE; Fortenberry, DJ; Voss, RV; Lipstein, EA. Decision Support Needs for Transgender and Gender-Diverse Youth and Families: A Patient-Centered Needs Assessment. Journal of Adolescent Health. 2023; 72(3):452-459.

Prows, C; Mcgowan, M; Blumling, A; Brinkman, W; Childers-Buschle, K; Dufendach, K; Lipstein, E; Myers, M. P695: Adolescents’ state anxiety and decisional regret one week after learning carrier results for autosomal recessive disorders. Genetics in Medicine Open. 2023; 1(1):100767.

Lynch, JA; Idleburg, MJ; Kovacic, MB; Childers-Buschle, KE; Dufendach, KR; Lipstein, EA; Mcgowan, ML; Myers, MF; Prows, CA. Developing video education materials for the return of genomic test results to parents and adolescents. PEC Innovation. 2022; 1.

Matula, KA; Minar, P; Daraiseh, NM; Lin, L; Recker, M; Lipstein, EA. Pilot trial of iBDecide: Evaluating an online tool to facilitate shared decision making for adolescents and young adults with ulcerative colitis. Health Expectations. 2022; 25(6):3105-3113.

Daraiseh, NM; Black, A; Minar, P; Meisman, A; Saxe, M; Lipstein, EA. iBDecide: A web-based tool to promote engagement in shared decision-making among adolescents with ulcerative colitis. Patient Education and Counseling. 2022; 105(6):1628-1633.

Lipstein, EA; Brinkman, WB; Zhang, Y; Hommel, KA; Ittenbach, RF; Liu, C; Denson, LA. Decision making about anti-TNF therapy: A pilot trial of a shared decision-making intervention. Patient Education and Counseling. 2022; 105(5):1075-1081.

Valentine, KD; Lipstein, EA; Vo, H; Cosenza, C; Barry, MJ; Sepucha, K. Pediatric Caregiver Version of the Shared Decision Making Process Scale: Validity and Reliability for ADHD Treatment Decisions. Academic Pediatrics. 2022; 22(8):1503-1509.

Lipstein, EA; Breslin, M; Dodds, CM; Kappelman, MD; Ollberding, NJ; Margolis, P; Xu, Y; Brinkman, WB. Integrating shared decision making into trial consent: A nested, cluster-randomized trial. Patient Education and Counseling. 2021; 104(7):1575-1582.

David, JG; Daly, BP; Chute, D; Katz-Buonincontro, J; Clemente, I; Lipstein, EA. Use of language in the medical decision-making process for biologic therapy: Youth and parent perspectives. Child: Care, Health and Development. 2021; 47(2):208-217.

Lin, JL; Lipstein, EA; Wittenberg, E; Tay, D; Lundstrom, R; Lundstrom, GL; Sediqzadah, S; Wright, DR. Intergenerational Decision Making: The Role of Family Relationships in Medical Decision Making. MDM Policy & Practice. 2021; 6(2):23814683211039468.