Adult Congenital Heart Disease Program
Patient Stories

Adult Congenital Heart Disease Program Patient Stories

Read stories of hope and inspiration from patients and families who were cared for by our team at Cincinnati Children's Adult Congenital Heart Disease Program.

ACHD and Pregnancy

Bethany's Story

Learn about Bethany and how her care team helped her feel confident throughout pregnancy, leading up to the big day.

Hypoplastic Left Heart Syndrome

David's Story

Learn about David and how he reclaimed his adventurous life after the treatment he received from our experts.

Ventricular Septal Defect

Glenn's Story

After receiving care as a child, Glenn fell "out of care" in college. Read why he says you should continue care into adulthood.

Congenital Heart Disease

Gurpreet's Story

Read how the ACHD team provided Gurpreet with new care options to help fit his lifestyle as he transitioned into adulthood.

Joan Schuman.

Transposition of the Great Arteries

Joan's Story

Read how, after 52 years, Joan was able to meet the surgeon who saved her life with the U.S.'s first successful Senning operation.

Katie smiles during a clinic visit.

Atrial Septal Defects

Katie's Story

Learn how Katie's care team helped ease the transition when she transferred from pediatric to adult care.

Lauren smiles.

Long QT Syndrome

Laruen's Story

Read how Lauren's symptoms are controlled with just medication--and how our doctors are now caring for Lauren's daughter.

Tetralogy of Fallot/Heart Valve Cyst

Randy's Story

Learn about Randy and how our experts cared for him as a child, then through early adulthood and even now, as a grandfather.

Ebstein Anomaly

Rebekah's Story

Rebekah's stomach pain was actually her CHD coming back to haunt her. Read how she's now thriving in our ACHD Program.

Tricuspid Atresia

Russell’s Story

Read about the ongoing, coordinated care Russell receives at Cincinnati Children's, many years after his Fontan Procedure.

Research / Clinical Trials