HHT (Hereditary Hemorrhagic Telangiectasia) Center of Excellence
Patient and Family Resources

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HHT (Hereditary Hemorrhagic Telangiectasia) Resources

Our patient and family resources provide information and support for you and your family throughout your journey with the HHT Center at Cincinnati Children's.

NjoyItAll Camp

A yearly summer camp for kids aged 7-16 at Joy Outdoor Education Center in Clarksville, OH. The staff works closely with the Cincinnati Children’s medical team to create a safe, supportive environment for children, no matter what their abilities.

Prepare for Your Visit

Child Life.

Child Life

We work with patients of all ages in different medical settings to help support emotional safety and normalize the process of receiving medical care.

Pay Your Bill.

Billing and Insurance Information

Pay your bill online or over the phone, and find information on insurance and financial support.

Spiritual Care and Grief Support Center.

Spiritual and Grief Care Center

The Department of Pastoral Care provides comfort and spiritual support for patients and their families.

School Services.

School Services

We offer bedside and classroom instruction to help your child keep up with their schoolwork during an extended hospital stay.

Social Services.

Social Services

As members on every medical team, clinical social workers provide ongoing support and counseling, crisis intervention, advocacy and education.

Concierge Services.

Concierge Services

Traveling? Concierge Services can help arrange your transportation, lodging and entertainment needs while you are here.

Family Resource Center.

Family Resource Center

We provide space to read, catch up on work, grab a cup of coffee or play a game with your child.

Find Accommodations.

Find Accommodations

We partner with many Cincinnati hotels to offer discounted rates to families who live out of the area.

Patient Resources at Cincinnati Children's.

View All Patient Resources

Explore the wide-ranging resources Cincinnati Children's offers its patients: before, during and after your visit.

Adaptive Care.

Cincinnati Children's Health Library

Cincinnati Children's offers a Health Library with topics on general health and wellness, as well as condition-specific information and guidance.

Ongoing Support Resources.

Ongoing Support Resource Directory

Cincinnati Children's has compiled resources to provide information, services and support from trusted sources for you and your child throughout their healthcare journey.

Additional Resources

HHT-related Support Resources

International HHT Guidelines: An international panel of HHT experts and patients has issued updated guidelines for the diagnosis and management of HHT. The guidelines, including the first for pediatric patients, are published in the Annals of Internal Medicine.
Cure HHT: A worldwide, non-profit organization whose purpose is to support patients and families and educate medical professionals
GeneTests: A medical genetics information resource

Meet the Team