Phelan-McDermid Syndrome Clinic
Patient and Family Resources

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Phelan-McDermid Syndrome Clinic Resources

Our patient and family resources provide information and support for you and your family throughout your journey with the Phelan-McDermid Syndrome Clinic at Cincinnati Children's.

Prepare for Your Visit

Adaptive Care.

Adaptive Care Team

We are dedicated to improving healthcare experiences for patients with developmental disability and/or behavioral needs.

Child Life.

Child Life

We work with patients of all ages in different medical settings to help support emotional safety and normalize the process of receiving medical care.

Concierge Services.

Concierge Services

Traveling? Concierge Services can help arrange your transportation, lodging and entertainment needs while you are here.

Family Resource Center.

Family Resource Center

We provide space to read, catch up on work, grab a cup of coffee or play a game with your child.

Find Accommodations.

Find Accommodations

We partner with many Cincinnati hotels to offer discounted rates to families who live out of the area.

Patient Resources at Cincinnati Children's.

View All Patient Resources

Explore the wide-ranging resources Cincinnati Children's offers its patients: before, during and after your visit.

Adaptive Care.

Cincinnati Children's Health Library

Cincinnati Children's offers a Health Library with topics on general health and wellness, as well as condition-specific information and guidance.

Ongoing Support Resources.

Ongoing Support Resource Directory

Cincinnati Children's has compiled resources to provide information, services and support from trusted sources for you and your child throughout their healthcare journey.

Additional Resources

Resources for Phelan-McDermid Syndrome

Research