At the Thrombosis Center at Cincinnati Children’s Hospital Medical Center, we encourage families to take advantage of the following resources.
Family Support Network
The Family Support Network at Cincinnati Children’s includes specialists from Child Life, Financial Services, Pastoral Care and Social Work. They can provide:
- Emotional, psychosocial and spiritual support
- Assistance with school concerns
- Community outreach and education
- Information about additional resources (financial, insurance, community)
Guest Services at Cincinnati Children’s helps make a stay in Cincinnati more comfortable and convenient. The team will provide assistance with lodging, ground transportation and other concerns.
Our Clinical Concierge team schedules multiple medical appointments for families traveling to Cincinnati Children’s from outside the region.
Hem / Onc Kids Camp
The Cancer and Blood Diseases Institute at Cincinnati Children’s hosts a week-long summer camp every year. “Hem / Onc Kids Camp” takes place at Joy Outdoor Education Center in Clarksville, OH. The staff works closely with the Cincinnati Children’s medical team to create a safe, supportive environment for children, no matter what their abilities. The camp is an opportunity for kids ages 7-16 to develop new skills, form lasting friendships and build their self-esteem, all while having a great time. Patients are encouraged to bring a sibling.
Other organizations provide extensive support and education for patients and families dealing with thrombosis and thrombophilia, including:
- CarePages, a free service that allows families to easily create web pages during a health challenge to keep friends and family informed
International Education, Advocacy and Support