What Our Families Are Saying
Rogelle Hackworth: “I choose to participate in the Cincinnati Children’s advisory groups, including research, because it provides an opportunity for me to give back to those who have greatly supported and cared for my children when they needed it most. It also allows me to make a long-term positive difference in the lives of those who seek care from Cincinnati Children’s. When I volunteer, I gain new perspective and a stronger connection to the hospital and the community. I get a tremendous amount of joy in being able to give back and make a difference in the lives of others.”
Carla Howard: “The Research Participant Advisory Council (RPAC) is a unique opportunity. It allows its members to have a voice in tough and engaging conversations that ultimately lead to the advancement of research. Being involved gives me the ability to help those who may not be in a position to help themselves. I'm personally committed to having a voice for my community and RPAC helps me do that. I use my voice and experiences to provide better care and access to the great things going on at Cincinnati Children’s. There were no therapeutic offerings like there are today when I was growing up, so to help develop new treatment options is invaluable. It's a voice that I don't take lightly.”
Wynne Philippe: “Both of my girls are patients at Cincinnati Children’s, and we have been part of the Champions Program for about six years. We are so thankful for the unsurpassed care that we get at the medical center! The Champions Program gives us the opportunity to give back to the hospital which has done so much for us! Through the Champions Program, we have been able to help raise money for the hospital, express our thanks to medical workers and hospital donors, advocate for patient care, and help raise awareness about hospital programs. The Champions Program has also provided so many fun and special experiences for my girls, like throwing out the first pitch at a Cincinnati Reds game, a fun outing at Kings Island, photoshoots, painting parties, and even being part of a commercial!”
Anna Grace (8 years old): “The Champions program is awesome and super fun because you get to do lots of different cool things! I get to meet new friends. And I get to help Cincinnati Children’s help kids like me and my sister. Champions is the best!”
Amanda Fusinato: “I have been a part of the Family Advisory Council (FAC) for a little over three years and have had the opportunity to meet so many amazing staff members and families. Through the FAC I have been able to share my family’s journey and use our experiences to have an impact on current and future families care. It has been such a blessing to be involved in a group of staff and families who care so much for each other and feel so passionate about advocating and helping to provide the best possible care to the patients and families at Cincinnati Children’s.”
Tom Cappel: “Being a member of the (Cincinnati Children's) Research Participant Advisory Council allows me to work with others in the Cincinnati area to help our hospital inform, educate and improve the research process in our community to increase participation of others.”
