Patient and Family Resources
Ongoing Support Resources

Formerly known as the Special Needs Resource Directory, these Ongoing Support Resources connect you to local, state, national and international websites - no matter where you or your child are in your care journey.

A family sitting at a table looking at a smartphone.

Resources for Every Step of Your Care Journey

At Cincinnati Children’s, we know that caring for you or your children’s health doesn’t only happen at the hospital. That’s why we’ve compiled these resources to help you for every step of the way.

These resources identify and provide access to information, services and supports for patients and families, including children and youth with special health care needs (CYSHCN).

Frequently Asked Questions (FAQs)

"A family without information cannot take responsibility and feels helpless; a family who is given information cannot help but to be empowered and take responsibility." - Family Voices, Utah 

Cincinnati Children's wants to empower you with information and resources so that you can best care, and advocate, for your child.

We offer a comprehensive compilation of resources in the Southwest Ohio area. Resources unique to Kentucky and Indiana are also featured, as well as national and international website links.

The Ongoing Support Resources provide comprehensive information and support for patients, families, and healthcare providers.

Many of the resources relate to caring for someone with special/complex health care needs.

These resources are primarily organized by categories, then subdivided into topics. Click on each of the categories on the left to find more specific topics.

You can also use the search box on each page to type keywords that describe the subject or resource you are trying to locate.

The information, resources and services needed by a patient or family may not always be specific to a particular condition or disease. This means that there is information on almost every one of the sections of this resource directory that may benefit you. We encourage you to take some time and check out other topics besides the one that brought you here.

CYSHCN stands for Children and Youth with Special Health Care Needs. See the links below for more information.

A medical home is not a building, house, or hospital, but rather an approach to providing comprehensive primary care. Determining a medical home can be helpful in organizing and coordinating health care and support resources.

Health homes were created by the Affordable Care Act of 2010. They coordinate care for people with Medicaid who have chronic health conditions.

It can be difficult to go through various stages in life. Those with special healthcare needs will have even more challenges.

We can help you navigate these life stages, so you can plan for current and future needs.

To assist physicians and caregivers of children with specialized healthcare needs, we provide the following tools to keep you organized. These forms and lists can be downloaded and printed, for future reference.

See also Health Information Management for medical records and authorization forms.