Research to Improve Outcomes for Children with Developmental Disabilities

The goal of our research is to identify and address barriers to the successful navigation of the healthcare system for children with developmental disabilities who are from minority and socioeconomically disadvantaged backgrounds.

Lab Projects (8)

A Family Navigator Intervention to Improve ADHD-Related Treatment Adherence (I2-ART) for Minority Children

This study aims to develop and pilot test a novel, systematic intervention to improve ADHD treatment adherence for Black and Latinx children that will be delivered using a culturally tailored family navigator approach.

This project is funded by the National Institute of Mental Health (NIMH) and is a collaboration with family navigators who are caregivers of children with ADHD diagnosis.

Engaging Mental Health Services for Preschoolers at Risk

This study has the goal to tailor and preliminary test the Navigate-Train-Referral-Intervention Mental Health (NTRIMH) intervention to promote access, engagement, coordination, and optimization of services for HeadStart preschoolers with mental health symptoms.

This project is funded by the National Institute of Mental Health (NIMH), and is a collaboration with family navigators who are caregivers of children with mental health conditions, HeadStart teachers and staff, and primary care providers.

Multilingual Shared Decision-Making tool for ADHD

The study aims to update and enhance the current ADHD decision aid by integrating the latest scientific research, clinical guidelines, and treatment options to ensure its accuracy and relevance.

It also seeks to improve cultural and linguistic accessibility by translating the aid into Spanish, making it a valuable resource for the growing Spanish-speaking population affected by ADHD.

These efforts seek to promote access to reliable information, support informed decision-making, and foster collaboration between patients, families, and healthcare providers, ensuring that treatment choices align with patient values and preferences.

Supporting Spanish-speaking families in Developmental and Behavioral Pediatrics

Previous satisfaction surveys among families who received outpatient care through Developmental and Behavioral Pediatrics yielded suboptimal satisfaction with visit length and feeling unsafe during their experience among Spanish-speaking caregivers.

The purpose of this study was to gather detailed information about their experiences while receiving ambulatory services in our clinic.

This study also addressed a gap in the literature of investigating the poor healthcare experiences of Spanish-speaking caregivers of children with developmental-behavioral disorders.

We collaborated with a multidisciplinary team of Developmental and Behavioral Pediatrics faculty and clinical fellows, a psychologist, a speech pathologist, a social worker, two clinical research coordinators and a family advocate.

Transforming Students Mental Health by Supporting Schools (Co-Investigator)

This proposal builds on an existing and promising pilot project (PROMISE) and aims to refine, evaluate, and pilot an expanded school mental health-based program which engages parents, teachers, and students to better understand the mental health needs of youth and support them in accessing care.

  • Phase 1: Identify specific needs of teachers at 2 Northeast Ohio Schools and refinements needed to PROMISE (“supporting teacheRs fOr iMprovIng Students mental hEalth”).
  • Phase 2: Identify specific needs of parents and students to include a student and parent component.
  • Phase 3: Pilot test PROMISE+ feasibility and collect initial efficacy data in the middle school of the same school system where the initial curriculum was developed.

This study is funded by a Case Western Reserve University philanthropic grant and State of Ohio. Molly McVoy, MD, is the PI.

Behavior Measure for Children and Adolescents with Down Syndrome (Co-Investigator)

The objective of this study is to develop a novel measure of maladaptive behavior, the Behavior Inventory for Down Syndrome (BIDS), in both English and Spanish, which can be used in research, clinical practice, and treatment studies focused on children and adolescents with Down Syndrome ages 2-17 years.

This study is funded by the Eunice Kennedy Shriver National Institute of Child Health and Human Development and is a collaboration with Children's Hospital Colorado. Anna Esbensen, PhD, FAPA, FAAIDD, is the PI.

Parental Self-Efficacy Parental Investment, and Early Child Development in an Urban Setting in Peru (Co-Investigator)

This project has the goals to study the correlation of parental self-efficacy, parental investment, and early childhood development in an urban setting in Peru.

In addition, secondary objectives will be to investigate other parental and children’s sociodemographic characteristics affecting parental self-efficacy, and to investigate other parental and children’s sociodemographic characteristics affecting parental investment.

This study is funded by the Cincinnati Children's GROW Award. Leslie Cabrera-Toribio is the PI.

A Pilot Study for Training Promotores de Salud to Increase Awareness of Autism Spectrum Disorder in Spanish-speaking Communities (Co-PI)

The goal of this project was to test a promotores de salud pilot intervention to increase autism spectrum disorder awareness in Latino communities.

The study was funded by The Jack H. Rubinstein Foundation. Results were included in the 2023 Ohio Latino Community Report: The Promise of Promotores.

2023 Ohio Latino Community Report