Heart Institute

Heart Institute

Outcomes Research

Looking at Results to Improve Care

The ultimate goal of our research is to give children with heart disease the best possible quality of life over the long term. To this end, we have developed a strong research component focused on outcomes. The goal of outcomes research at the Heart Institute is to measure the long-term effect our care has on children and to make adjustments and improvements based on what we find.


The Quality of Life (QOL) Outcomes Research Group seeks to characterize the relationship between the many factors that affect heart patients and how those factors shape their quality of life. This research is led by Bradley Marino, MD, MPP, MSCE.

Features being looked at include the genetic, demographic, clinical, neuro-developmental, psychosocial and physical morbidity of children treated for congenital and acquired heart disease.  Studying the relationships among these traits and children’s quality of life will allow clinicians to modify care for better long-term results.

Learn more about the specifics of the QOL Outcomes Research Group.

Faculty Conducting Outcomes Research in the Heart Institute


Faculty Focus of Research
Jeffrey B. Anderson, MD, MPH Quality improvement in infants and children with congenital heart disease
Robert H. Beekman, III, MD  Chair of the JCCHD National Pediatric Cardiology Quality Improvement Collaborative
Stuart L. Goldstein, MD Acute kidney injury (AKI)
James P. Spaeth, MD Congenital cardiac disease and cardiac surgery effects on neurodevelopmental outcomes
Elaine M. Urbina, MD CV risk factors and vascular function


Outcomes Research.