Living with a chronic pediatric condition affects the patient and their family both physically and emotionally. Patients and family members can face significant stress and may experience difficulty coping. Their mounting strain poses challenges to taking care of themselves, and can make symptoms worse. With support from the American Board of Pediatrics Foundation, the Roadmap Project is committed to improving the emotional health and resilience of pediatric patients living with chronic conditions and their families by working with the medical teams who care for them.
The Roadmap Project aims to:
- Increase awareness about the need to provide emotional support for children with chronic conditions and their families
- Build will and a sense of urgency to address this issue
- Develop tools to support clinicians in having important conversations
- Educate families, pediatricians, sub-specialists, trainees, networks, and organizations about existing tools and strategies
Learn more about the Roadmap Project and its current resources and future efforts.
Questions? Contact the Roadmap project team: ABP_Fdn_Project@cchmc.org