Living with a chronic condition affects children, adolescents, and young adult patients and their families both physically and emotionally. Patients and family members can face significant stress and may experience difficulty coping. Their mounting strain poses challenges to taking care of themselves, and can make symptoms worse.

With support from the American Board of Pediatrics Foundation and the David R. Clare and Margaret C. Clare Foundation, The Roadmap Project provides health professionals, patients, and families the tools and resources to ensure that addressing emotional health is a routine part of excellent care.

Roadmap Project logo.

Our Global Aim

As a routine part of excellent care, patients with chronic conditions and their families receive proactive support from clinical teams to foster emotional health.

Our Approach

  • Raising awareness among patients, families, and clinical teams to validate, assess, and address emotional stress during routine care.
  • Building confidence and capability among clinical teams to assess and address emotional health needs, and helping patients and families feel safe sharing emotional health concerns.
  • Providing resources, connections, and strategies to patients, families, and clinical teams to help build a roadmap that improves the emotional health of children with chronic conditions.

Learn more about the Roadmap Project and its current resources and future efforts.

Questions? Contact the Roadmap project team: