Publications

Ahmed, H; Anderson, JB; Bates, KE; Fleishman, CE; Natarajan, S; Ghanayem, NS; Sleeper, LA; Lannon, CM; Brown, DW; Imp, NP C Q. Development of a validated risk score for interstage death or transplant after stage I palliation for single-ventricle heart disease. Journal of Thoracic and Cardiovascular Surgery. 2020; 160:1021-1030.

Alsaied, T; Allen, KY; Anderson, JB; Anixt, JS; Brown, DW; Cetta, F; Cordina, R; D'udekem, Y; Didier, M; Ginde, S; et al. The Fontan outcomes network: First steps towards building a lifespan registry for individuals with Fontan circulation in the United States. Cardiology in the Young. 2020; 30:1070-1075.

Anixt, JS; Murray, DS; Coury, DL; Kuhlthau, KA; Eskra, D; Seide, J; Kelly, A; Hess, A; Lipkin, PH; Law, JK; et al. Improving behavior challenges and quality of life in the autism learning health network. Pediatrics. 2020; 145:S20-S29.

Ardura, M; Hartley, D; Dandoy, C; Lehmann, L; Jaglowski, S; Auletta, JJ; Bhatt, N; Huber, J; Juckett, MB; Mueller, M; et al. Addressing the Impact of the Coronavirus Disease 2019 (COVID-19) Pandemic on Hematopoietic Cell Transplantation: Learning Networks as a Means for Sharing Best Practices. Biology of Blood and Marrow Transplantation. 2020; 26:e147-e160.

Auger, KA; Shah, SS; Richardson, T; Hartley, D; Hall, M; Warniment, A; Timmons, K; Bosse, D; Ferris, SA; Brady, PW; et al. Association between Statewide School Closure and COVID-19 Incidence and Mortality in the US. Journal of the American Medical Association. 2020; 324:859-870.

Bevans, KB; Moon, J; Becker, BD; Carle, A; Forrest, CB. Development of patient-reported outcome measures of children’s oral health aesthetics. Community Dentistry and Oral Epidemiology. 2020; 48:423-432.

Bigelow, AM; Koh, W; Kinstler, A; Conn, SM; Geiser, L; Wright, CC; LaMantia, SP; France, A; Cooper, DS. Eliminating catheter-associated urinary tract infections in a pediatric cardiac ICU. Pediatric Critical Care Medicine. 2020; 21:e819-e826.

Brady, PW; Giambra, BK; Sherman, SN; Clohessy, C; Loechtenfeldt, AM; Walsh, KE; Shah, SS; Lannon, C. The Parent Role in Advocating for a Deteriorating Child: A Qualitative Study. Hospital Pediatrics. 2020; 10:728-742.

Brown, CM; Samaan, ZM; Mansour, ME; Glance, A; Morehous, JF; Taylor, S; Hawke, J; Kahn, RS. A Framework to Measure and Improve Well-Being in Primary Care. Pediatrics. 2020; 145:e20191531-e20191531.

Carr, RM; Quezada, SM; Gangarosa, LM; Cryer, B; Abreu, MT; Teixeira, K; Springer, J; Margolis, P; Serena, TJ; Weinstein, M; et al. From Intention to Action: Operationalizing AGA Diversity Policy to Combat Racism and Health Disparities in Gastroenterology. Gastroenterology. 2020; 159:1637-1647.

Clay-Williams, R; Stephens, JH; Williams, H; Hallahan, A; Dalton, C; Hibbert, P; Ting, HP; Arnolda, G; Wiles, L; Braithwaite, J; et al. Assessing the appropriateness of the management of otitis media in Australia: A population-based sample survey. Journal of Paediatrics and Child Health. 2020; 56:215-223.

Crosby, LE; Hood, A; Kidwell, K; Nwankwo, C; Peugh, J; Strong, H; Quinn, C; Britto, MT. Improving self-management in adolescents with sickle cell disease. Pediatric Blood and Cancer. 2020; 67.

Dang, AT; Chundi, PK; Mousa, NA; Beyer, AI; Chansakulporn, S; Venter, C; Mersha, TB; Assa'ad, AH. The effect of age, sex, race/ethnicity, health insurance, and food specific serum immunoglobulin E on outcomes of oral food challenges. World Allergy Organization Journal. 2020; 13:100100-100100.

Desai, AD; Zhou, C; Simon, TD; Mangione-Smith, R; Britto, MT. Validation of a parent-reported hospital-to-home transition experience measure. Pediatrics. 2020; 145:e20192150-e20192150.

DeWire, M; Fuller, C; Hummel, TR; Chow, LM L; Salloum, R; de Blank, P; Pater, L; Lawson, S; Zhu, X; Dexheimer, P; et al. A phase I/II study of ribociclib following radiation therapy in children with newly diagnosed diffuse intrinsic pontine glioma (DIPG). Journal of Neuro-Oncology. 2020; 149:511-522.

Fjeldstad, OD; Johnson, JK; Margolis, PA; Seid, M; Hoeglund, P; Batalden, PB. Networked health care: Rethinking value creation in learning health care systems. Learning Health Systems. 2020; 4.

Foster, CB; Ackerman, K; Hupertz, V; Mustin, L; Sanders, J; Sisson, P; Wenthe, RE. Catheter-Associated Urinary Tract Infection Reduction in a Pediatric Safety Engagement Network. Pediatrics. 2020; 146:e20192057-e20192057.

Fox, JC; Lipstein, EA. Shared Decision Making in Gastroenterology: Challenges and Opportunities. Mayo Clinic Proceedings: Innovations, Quality and Outcomes. 2020; 4:183-189.

Gittelman, MA; Fluitt, K; Anzeljc, S; Rajanbabu, A; Carle, AC; Arnold, MW; Mahabee-Gittens, EM. A pilot QI primary care practice program to help reduce infant mortality risks. Injury Epidemiology. 2020; 7.

Goldstein, SL; Dahale, D; Kirkendall, ES; Mottes, T; Kaplan, H; Muething, S; Askenazi, DJ; Henderson, T; Dill, L; Somers, MJ G; et al. A prospective multi-center quality improvement initiative (NINJA) indicates a reduction in nephrotoxic acute kidney injury in hospitalized children. Kidney International. 2020; 97:580-588.

Gurria, JP; Simpson, B; Tuncel-Kara, S; Bates, C; McKenna, E; Rogers, T; Kraemer, A; Platt, M; Mecoli, M; Garcia, VF; et al. Standardization of clinical care pathway leads to sustained decreased length of stay following Nuss pectus repair: A multidisciplinary quality improvement initiative. Journal of Pediatric Surgery. 2020; 55:2690-2698.

Hagerman, TK; Carle, AC; Houtrow, AJ. Differences in Reporting Child Health Needs and Status and Developmental Concerns between Mothers and Fathers: Findings from the National Survey of Children's Health. The Journal of Pediatrics. 2020; 220:254-257.

Hartley, DM; Jonas, S; Grossoehme, D; Kelly, A; Dodds, C; Alford, SM; Shenkman, E; Simmons, J; Bailey, LC; Razzaghi, H; et al. Use of EHR-Based Pediatric Quality Measures: Views of Health System Leaders and Parents. American Journal of Medical Quality. 2020; 35:177-185.

Hartley, DM; Perencevich, EN. Public Health Interventions for COVID-19: Emerging Evidence and Implications for an Evolving Public Health Crisis. Journal of the American Medical Association. 2020; 323:1908-1909.

Hartley, DM; Reisinger, HS; Perencevich, EN. When infection prevention enters the temple: Intergenerational social distancing and COVID-19. Infection Control and Hospital Epidemiology. 2020; 41:868-869.

Hoehn, EF; Cabrera-Thurman, MK; Oehler, J; Vukovic, A; Frey, M; Helton, M; Geis, G; Kerrey, B. Enhancing CPR during transition from prehospital to emergency department: A QI initiative. Pediatrics. 2020; 145:e20192908-e20192908.

Houtrow, AJ; Carle, A; Perrin, JM; Stein, RE K. Children With Special Health Care Needs on Supplemental Security Income for Disability Have More Health Impacts and Needs Than Other Children With Special Health Care Needs on Medicaid. Academic Pediatrics. 2020; 20:258-266.

Jordan, Z; Tremblay, C; Lipstein, E; Jordan, I; Boland, L. Is sharing really caring? Viewpoints on shared decision-making in paediatrics. Journal of Paediatrics and Child Health. 2020; 56:672-674.

Kaplan, HC; Kuhnell, P; Walsh, MC; Crowley, M; McClead, R; Wexelblatt, S; Ford, S; Provost, LP; Lannon, C; Macaluso, M. Orchestrated Testing of Formula Type to Reduce Length of Stay in Neonatal Abstinence Syndrome. Pediatrics. 2020; 146:e20190914-e20190914.

Khare, R; Kappelman, MD; Samson, C; Pyrzanowski, J; Darwar, RA; Forrest, CB; Bailey, CC; Margolis, P; Dempsey, A; Worki, PC P. Development and evaluation of an EHR-based computable phenotype for identification of pediatric Crohn's disease patients in a National Pediatric Learning Health System. Learning Health Systems. 2020; 4.

Kirkendall, ES; Timmons, K; Huth, H; Walsh, K; Melton, K. Human-Based Errors Involving Smart Infusion Pumps: A Catalog of Error Types and Prevention Strategies. Drug Safety. 2020; 43:1073-1087.

Klugman, D; Melton, K; Maynord, PO; Dawson, A; Madhavan, G; Montgomery, VL; Nock, M; Lee, A; Lyren, A. Assessment of an Unplanned Extubation Bundle to Reduce Unplanned Extubations in Critically Ill Neonates, Infants, and Children. JAMA Pediatrics. 2020; 174:e200268-e200268.

Lannon, C; Nichols, DG. The role of certifying boards in improving health: The example of the american board of pediatrics. Journal of the American Board of Family Medicine. 2020; 33:S36-S41.

Lawson, S; Redel, JM; Smego, A; Gulla, M; Schoettker, PJ; Jolly, M; Mostajabi, F; Hornung, L. Assessment of a Day Hospital Management Program for Children With Type 1 Diabetes. JAMA Network Open. 2020; 3:e200347-e200347.

Leach, JL; Roebker, J; Schafer, A; Baugh, J; Chaney, B; Fuller, C; Fouladi, M; Lane, A; Doughman, R; Drissi, R; et al. MR imaging features of diffuse intrinsic pontine glioma and relationship to overall survival: report from the International DIPG Registry. Neuro-Oncology. 2020; 22:1647-1657.

Long, JT; Neogi, S; Vidonish, W; Badylak, J; Reder, RD. Therapy workloads in pediatric health: Preliminary findings and relevance for defining practice. Pediatric Physical Therapy. 2020; 32:52-59.

Macdonald, DW; Grossoehme, DH; Mazzola, A; Pestian, T; Schwartz, SB. Oral Sex Knowledge and Experience of Transgender Youth: An Opportunity for Dental Education. Journal of Dental Education. 2020; 84:473-477.

Meisman, A; Daraiseh, NM; Minar, P; Saxe, M; Lipstein, EA. The Gray Zone: Adolescent and Young Adult Decision Support Needs for Ulcerative Colitis. MDM Policy and Practice. 2020; 5:2381468320940708-238146832094070.

Morgan, EM; Carle, AC. Measures of Health Status and Quality of Life in Juvenile Idiopathic Arthritis. Arthritis Care and Research. 2020; 72 Suppl 10:565-576.

Opipari-Arrigan, L; Dykes, DM H; Saeed, SA; Thakkar, S; Burns, L; Chini, BA; McPhail, GL; Eslick, I; Margolis, PA; Kaplan, HC. Technology-enabled health care collaboration in pediatric chronic illness: Pre-post interventional study for feasibility, acceptability, and clinical impact of an electronic health record–linked platform for patient-clinician partnership. JMIR mHealth and uHealth. 2020; 8:e11968-e11968.

Pickles, D; Lannon, C; Wooton, S; Eversole, M; Rychik, J; Wright, G. The future is now for transforming outcomes nationally: the Fontan Outcomes Network. Progress in Pediatric Cardiology. 2020; 59:101302-101302.

Pickles, DM; Lihn, SL; Boat, TF; Lannon, C. A roadmap to emotional health for children and families with chronic pediatric conditions. Pediatrics. 2020; 145:e20191324-e20191324.

Progovac, AM; Cortes, DE; Chambers, V; Delman, J; Delman, D; McCormick, D; Lee, E; De Castro, S; Sanchez Roman, MJ; Kaushal, NA; et al. Understanding the Role of Past Health Care Discrimination in Help-Seeking and Shared Decision-Making for Depression Treatment Preferences. Qualitative Health Research. 2020; 30:1833-1850.

Sawhney, PN; Davis, LS; Daraiseh, NM; Belle, L; Walsh, KE. Barriers and facilitators of adverse event reporting by adolescent patients and their families. Journal of Patient Safety. 2020; 16:232-237.

Schondelmeyer, AC; Dewan, ML; Brady, PW; Timmons, KM; Cable, R; Britto, MT; Bonafide, CP. Cardiorespiratory and pulse oximetry monitoring in hospitalized children: A delphi process. Pediatrics. 2020; 146:e20193336-e20193336.

Seid, M; Hartley, DM; Dellal, G; Myers, S; Margolis, PA. Organizing for collaboration: An actor-oriented architecture in ImproveCareNow. Learning Health Systems. 2020; 4.

Sitzman, TJ; Carle, AC; Lundberg, JN; Heaton, PC; Helmrath, MA; Trotman, C; Britto, MT. Marked Variation Exists Among Surgeons and Hospitals in the Use of Secondary Cleft Lip Surgery. The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association. 2020; 57:198-207.

Sitzman, TJ; Tse, RW; Allori, AC; Fisher, DM; Samson, TD; Beals, SP; Matic, DB; Marcus, JR; Grossoehme, DH; Britto, MT. Feasibility of Surgeon-Delivered Audit and Feedback Incorporating Peer Surgical Coaching to Reduce Fistula Incidence following Cleft Palate Repair: A Pilot Trial. Plastic and Reconstructive Surgery. 2020; 146:144-153.

Smitherman, EA; Huang, B; Furnier, A; Taylor, J; Burns, MB; Brunner, HI; Morgan, EM. Quality of care in childhood-onset systemic lupus erythematosus: Report of an intervention to improve cardiovascular and bone health screening. The Journal of rheumatology. 2020; 47:1506-1513.

Sonik, RA; Creedon, TB; Progovac, AM; Carson, N; Delman, J; Delman, D; Lê Cook, B; Soffer, TF; Chambers, V; Quinerly, CR; et al. Depression treatment preferences by race/ethnicity and gender and associations between past healthcare discrimination experiences and present preferences in a nationally representative sample. Social Science and Medicine. 2020; 253:112939-112939.

Torabi, E; Cayirli, T; Froehle, CM; Klassen, KJ; Magazine, M; White, DL; Ward, MJ. FASStR: A framework for ensuring high-quality operational metrics in health care. American Journal of Managed Care. 2020; 26:E172-E178.

Wadhwani, SI; Beck, AF; Bucuvalas, J; Gottlieb, L; Kotagal, U; Lai, JC. Neighborhood socioeconomic deprivation is associated with worse patient and graft survival following pediatric liver transplantation. American Journal of Transplantation. 2020; 20:1597-1605.

Wadhwani, SI; Nichols, M; Klosterkemper, J; Cirincione, R; Whitesell, K; Owen, D; Rengering, R; Walz, B; Heubi, J; Hooper, DK. Implementing a Process to Systematically Identify and Address Poor Medication Adherence in Pediatric Liver Transplant Recipients. Pediatric Quality and Safety. 2020; 5:e296-e296.