James M Anderson Center for Health Systems Excellence

Publications

Adler, J; Galanko, JA; Ammoury, R; Benkov, KJ; Bousvaros, A; Boyle, B; Cabrera, JM; Chun, KY; Dorsey, J; Ebach, DR; Strople, JA; Sullivan, JS; Wali, PD; Kappelman, MD. HLA DQA1*05 and Risk of Antitumor Necrosis Factor Treatment Failure and Anti-Drug Antibody Development in Children With Crohn's Disease. American Journal of Gastroenterology. 2025; 120(5):1076-1086.

Anderson, CB; Gorecki, M; Bailes, A; Vargus-Adams, J; Lipstein, EA. Healthcare Decision-Making and Evolving Autonomy in Adolescents and Young Adults with Cerebral Palsy. Journal of Pediatrics. 2025; 291:114953.

Anderson, CB; Pallotto, IK; Dominguez, L; Ammon, MA; Carle, A; Lipstein, EA. Evolving Roles: Adolescent Perspectives on Shared Decision Making With Their Parents and Health Care Providers. Academic Pediatrics. 2025; 25(4):102778.

Autrey, AK; Rifkin-Zenenberg, S; Hills, T; Salant, J; May, R; Rabinowitz, E; Heneghan, C; Drach, L; Jones, E; Thienprayoon, R. Standardized Assessment of Patient Experience in Pediatric Palliative Care: A National Collaboration. Journal of Pain and Symptom Management. 2025; 70(5):e299-e304.

Autrey, A; Thienprayoon, R; Jones, E. Measuring a Patient Reported Outcome: A Pediatric Palliative Care Nationwide QI Collaborative. Journal of Pain and Symptom Management. 2025; 69(5):e463-e464.

Beck, AF; Mattingly, T; Brokamp, C; Sahay, R; Manning, ER; Taylor, S; Kuhnell, P; Kegley, B; Trabue, K; Margolis, PA; Kahn, RS; Hartley, DM. The Test and Protect Program: A Data-Driven, Community-Engaged Approach to COVID-19 Testing Site Localization. Journal of Public Health Management and Practice. 2025; 31(1):61-64.

Benscoter, D; Voos, K; Schuler, CL; Hoberman, AJ; Kaplan, HC; Kuhnell, P; Lannon, CM. Transitioning medically complex infants home: lessons learned from quality improvement efforts. Journal of Perinatology. 2025; 45(3):404-410.

Berrigan, D; Hartley, DM. Ten Simple Rules for Making a Career Transition from Basic Science to Public Health Research. International Journal of Environmental Research and Public Health. 2025; 22(2).

Bhatt, NS; Lehmann, L; Dandoy, CE; Auletta, JJ; Badia, P; Ballard, SA; Blacken, R; Daraiseh, NM; Desmond, C; Dunseath, C; Tarquini, S; Phelan, R; Pai, A; Rotz, S. Multicenter Study on Caregiver Experiences in Pediatric Hematopoietic Stem Cell Transplantation Part I: Integrative Analysis of Mental Health, Psychosocial Stressors, and Support Mechanisms. Transplantation and Cellular Therapy. 2025; 31(7):456.e1-456.e16.

Bogdewic, S; Cronin, S; Ramaswamy, R. From parallel tracks to integrated practice: advancing the integration of quality improvement and implementation science. BMJ Quality and Safety. 2026; 35(2):75-77.

Carle, AC; Phillips, RL; Bazemore, A; Peterson, LE. Demonstrating the Reliability and Structural Validity of Creating Patient-Level and Clinician-Level Scores on the Person Centered Primary Care Measure. Medical Care. 2026; 64(2):68-76.

Colegate, SP; Seid, M; Hartley, D; Flicker, A; Bruce, J; Michael, J; Udoko, M; Beck, AF; Brokamp, C. Formulating and evaluating time series algorithms to forecast daily asthma hospital admissions. Journal of Clinical and Translational Science. 2025; 9(1):e185.

Colman, RJ; Dotson, JL; Mock, M; Sandberg, K; Saeed, S; Margolis, P; Dhaliwal, J. Therapeutic Drug Monitoring in Pediatric Inflammatory Bowel Disease: A Nationwide Survey of Anti-TNF Therapy Practices, Attitudes, and Barriers. Crohn's & Colitis 360. 2025; 7(3):otaf050.

Combs, J; Lin, P-I; Delbello, MP; Carle, AC; Bridge, JA; Axelson, DA; Fornari, V; Feuer, V; Emslie, GJ; Kennard, BD; Porter, SC; Sorter, MT; Barzman, D. Examining Alternative Treatment Settings for Adolescents With Suicidal Thoughts During the COVID-19 Pandemic. JAACAP Open. 2025; 3(3):567-575.

Combs, K; Stamm, R; Thienprayoon, R; Foster, KA; Behm, K; Rozcicha, L. Cultural or Spiritual End-of-Life Practice Preference Assessment and Documentation: Identifying Current Practice in Pediatric Hospice. Journal of Hospice and Palliative Nursing. 2025; 27(2):74-80.

Cook, E; Rotz, SJ; Auletta, JJ; Bidgoli, A; Blacken, R; Johnson, D; Badia, P; French, K; Hartley, DM; Kent, GR; Schoettler, ML; Sampson, M; Dandoy, CE; Fitch, TJ. Central Venous Catheter Removal After Hematopoietic Stem Cell Transplant: A Review and Perspective. Pediatric Blood and Cancer. 2025; e70001.

Cortés, DE; Progovac, AM; Lu, F; Lee, E; Tran, NM; Moyer, MA; Odayar, V; Rodgers, CRR; Adams, L; Chambers, V; Carson, N; Carle, AC; Cook, BL; Mccormick, D. Eliciting patient past experiences of healthcare discrimination as a potential pathway to reduce health disparities: A qualitative study of primary care staff. Health Services Research (HSR). 2025; 60(2):e14373.

Dandoy, CE; Auletta, JJ; Badia, P; Bidgoli, A; Daraiseh, NM; Desalvo, AM; Diaz, J; Davies, SM; Demmel, K; Cook, E; Salem, BM; Snyder, A; Juckett, M; Hartley, D. Engraft: A Collaborative Learning Health Network for Enhanced Transplant and Cellular Therapy Outcomes. Transplantation and Cellular Therapy. 2025; 31(3):123-134.

Delaney, RK; Alexander, AJ; Lindsay, IM; Beck, K; Mcnall, S; Pinto, NM; Lipstein, EA; Thomas, TH; Altizer, R; Shepherd, T; Fagerlin, A. Are Patients Game? Investigating the Role of Game Technology in Transition Education for Congenital Heart Disease. Journal of the American Heart Association. 2025; 14(20):e043809.

Donahue, MA; Akram, H; Brooks, JD; Modi, AC; Veach, J; Kukla, A; Benard, SW; Herman, ST; Farrell, K; Ficker, DM; Pellinen, J; Buchhalter, J; Moura, L; Fureman, BE. Barriers to Medication Adherence in People Living With Epilepsy. Neurology: Clinical Practice. 2025; 15(1):e200403.

Dunning, JM; Khondker, A; Cooper, CS; Hansen, J; Rickard, M; Erdman, L; Santos, JD; Lorenzo, AJ; Storm, DW. Predicting non-response to urotherapy in pediatric bowel and bladder dysfunction: A machine learning approach. Journal of Pediatric Urology. 2025.

Excellent, ML; Yu, M; Hartranft, A; Fleming, WO; Ahsan, KZ; Schenck, AP; Ramaswamy, R. Advancing Pedagogy in Leadership Practice to Enhance Public Health Impact. Journal of Public Health Management and Practice. 2025; 31(4):515-526.

Farrar, DS; Pell, LG; Muhammad, Y; Hafiz Khan, S; Erdman, L; Bassani, DG; Tanner, Z; Chauhadry, IA; Karim, M; Madhani, F; Spitzer, RF; Abu Fadaleh, SM; Bhutta, ZA; Morris, SK. Estimation of unconfirmed COVID-19 cases from a cross-sectional survey of >10 000 households and a symptom-based machine learning model in Gilgit-Baltistan, Pakistan. BMJ Public Health. 2025; 3(1):e001255.

Giambra, BK; Knafl, K; Haas, S; Zhang, Y; Zhang, N; Pickler, RH; Britto, MT. Effects of Family Caregiver-Nurse Communication on Family Management and Family Caregiver Uncertainty Regarding the Care of Children With Long-Term Ventilator Dependence. Journal of Family Nursing. 2025; 31(2):106-121.

Grimes, HN; Mcgowan, ML; Sinclair, JA; Prows, CA; Lipstein, EA; Myers, MF. Adolescents' and young adults' reactions to and perceived utility of carrier screening results in the context of a genomic research study. Journal of Genetic Counseling. 2025; 34(3):e70027.

Hayatghaibi, SE; Trout, AT; Iyer, R; Britto, MT. Clinician perspectives on imaging decisions for children with vesicoureteral reflux: A qualitative study. Journal of Pediatric Urology. 2025.

He, S; Zhu, F; Kumar, R; Hui, W; Vargas-Gutierrez, M; Mertens, L; Erdman, L. Deep Learning for Pediatric Right Ventricle Segmentation in Echocardiography: Challenges and Strategies. In: Machine Learning Methods in Biomedical Field. Springer Nature; 2026:137-159.

Heekin, S; Lopez-Nunez, O; Smith, J; Denson, N; Denson, L; Miethke, A; Collins, MH; Dillman, J; Miraldi, E; Kofron, JM; Dhaliwal, J; Erdman, L. Implications of Model Loss and Configuration for Sparse Histological Segmentation. In: Machine Learning Methods in Biomedical Field. Springer Nature; 2026:189-217.

Hill, CM; Mancl, LA; Carpiano, RM; Carle, AC; Rothen, M; Crowder, K; Yoo, M; Chi, DL. Associations between neighborhood social capital, oral health risk factors, and tooth decay among Medicaid-enrolled adolescents: A hypothesis-generating preliminary study. PLoS ONE. 2025; 20(8):e0329830.

Hu, A; Erdman, L; Bonilla, D; Li, Q; Whittall-Garcia, L; Gladman, DD; Touma, Z. CHARACTERIZING SLE PATIENTS INTO TYPE 1 AND TYPE 2 DISEASE STATES: INSIGHTS FROM A SINGLE LUPUS COHORT. Journal of Rheumatology. 2025; 52(Suppl 1):210-211.

Huber, J; Auletta, JJ; Cook, E; Culbertson, C; Diaz, J; Fitch, T; Flesch, L; French, K; Jaglowski, S; Jodele, S; Snyder, AJ; Hartley, D; Dandoy, CE; Liang, WH. Establishing the Engraft Multi-Center Tri-Use Registry. Transplantation and Cellular Therapy. 2025; 31(2):s529-s530.

Jones, B; Thienprayoon, R; Galchutt, P; Zhang, A; Tate, C; Gray, T. Cambia Leadership Breakfast: Sustaining Your Energy and Vision as a Leader. Journal of Pain and Symptom Management. 2025; 69(5):e532.

Jun, J; Frogner, BK; Carle, AC; Tubbs-Cooley, HL. Preventive Care Utilization, Employer-Sponsored Benefits, and Influences on Utilization by Healthcare Occupational Groups. Workplace Health and Safety. 2026; 21650799251408100.

Kapadia, M; Nishitani, M; Alkhouli, L; Badia, P; Blacken, R; Cook, E; Culbertson, C; Dandoy, CE; Daraiseh, N; Davies, SM; Staton, S; Stuckey, R; Young, K; Craddock, J. A Multicenter Quality Improvement Initiative to Reduce Central Venous Catheter Line Days after Transplant Cellular Therapy across the Engraft Learning Health Network. Transplantation and Cellular Therapy. 2026; 32(2):s360-s361.

Khondker, A; Kaushal, S; Wu, J; Gupta, N; Kwong, JC; Li, T; Erdman, L; Rickard, M; Lorenzo, AJ. Predicting vesicoureteral reflux outcomes using artificial intelligence: A critical appraisal using APPRAISE-AI. PLOS Digital Health. 2026; 5(2):e0001237.

Khondker, A; Ahmad, I; Dhalla, R; Kaushal, S; Kwong, JCC; Rickard, M; Erdman, L; Gabrielson, AT; Nguyen, D-D; Kim, JK; Nelson, CP; Wang, H-HS; Weaver, J; Lorenzo, AJ. The 2025 update on artificial intelligence models in pediatric urology: Results from the AI-PEDURO collaborative. Journal of Pediatric Urology. 2025.

Khondker, A; Hua, SBZ; Kwong, JCC; Sheth, K; Alvarez, D; Velaer, KN; Weaver, J; Xiang, A; Tasian, GE; Lorenzo, AJ; Goldenberg, A; Rickard, M; Erdman, L. Longitudinal image-based prediction of surgical intervention in infants with hydronephrosis using deep learning: Is a single ultrasound enough? PLOS Digital Health. 2025; 4(8):e0000939.

Khondker, A; Kwong, JC; Ahmad, I; Rajesh, Z; Dhalla, R; Macnevin, W; Rickard, M; Erdman, L; Gabrielson, AT; Nguyen, D-D; Wang, H-HS; Weaver, J; Yadav, P; Lorenzo, AJ. A living scoping review and online repository of artificial intelligence models in pediatric urology: Results from the AI-PEDURO collaborative. Journal of Pediatric Urology. 2025; 21(3):765-772.

Khondker, A; Kwong, JCC; Rickard, M; Erdman, L; Gabrielson, AT; Nguyen, D-D; Kim, JK; Abbas, T; Fernandez, N; Fischer, K; Wang, H-HS; Weaver, J; Yadav, P; Lorenzo, AJ. AI-PEDURO - Artificial intelligence in pediatric urology: Protocol for a living scoping review and online repository. Journal of Pediatric Urology. 2025; 21(2):532-538.

Kim, S; Jun, J; Carle, AC; Hall, P; Tubbs-Cooley, HL. Association Between Perceived Stress and Burnout Among Neonatal Intensive Care Nurses. Advances in Neonatal Care. 2025.

Ko, A; Carle, AC; Tanbonliong, TS; Chi, DL. The Association Between Intensive Parenting Attitudes and Topical Fluoride Opposition. Journal of Public Health Dentistry. 2026.

Li, Z; Chen, IC-Y; Centonze, L; Magyar, CTJ; Choi, WJ; Ivanics, T; O'kane, GM; Vogel, A; Erdman, L; De Carlis, L; Agopian, VG; Mehta, N; Chen, C-L; Sapisochin, G. Validation of the Toronto recurrence inference using machine-learning for post-transplant hepatocellular carcinoma model. Communications Medicine. 2025; 5(1):284.

Lim, J; Carle, AC; Carpiano, RM; Chi, DL. Topical fluoride hesitancy and opposition are significantly and positively associated: A cross-sectional study. PLoS ONE. 2025; 20(4):e0322027.

Lin, P-ID; Combs, J; Delbello, MP; Bridge, J; Axelson, D; Fornari, VM; Feuer, V; Kennard, BD; Emslie, GJ; Carle, AC; Barzman, DH. 5.44 Harnessing Cumulative Risk Scores to Identify Optimal Treatment Settings for Suicidal Adolescents. Journal of the American Academy of Child and Adolescent Psychiatry. 2025; 64(10):s290.

Lipstein, EA; Lee, S; Anderson, C; Beck, AF; Brinkman, WB; Britto, MT; Hyland-Brown, R; Liu, C; Tegtmeyer, K; Zhang, N; Ray, KN. Shared Decision Making in Telehealth Versus In-Person Pediatric Primary Care. Telemedicine Journal and e-Health. 2025; 31(11):1385-1392.

Lipstein, EA; Pallotto, IK; Anderson, CB; Ammon, MA; Carle, AC. Health Care Provider Perspectives on Shared Decision Making With Parents and Adolescents. Clinical Pediatrics. 2025; 64(6):809-815.

Madara, JL; Miyamoto, S; Dowdy, SC; Greene, SM; Tarrant, J; Margolis, PA. Transforming Health Care - Shared Commitments for a Learning Health System. New England Journal of Medicine. 2025; 393(2):192-197.

Maier, S; Auletta, JJ; Badia, P; Cook, E; Craddock, JA; Culbertson, C; Daraiseh, N; Davies, SM; Desalvo, AM; Diaz, J; Nishitani, M; Snyder, AJ; Dandoy, CE; Parker, L. Establishing a Quality Improvement Education Platform in the Engraft Learning Network. Transplantation and Cellular Therapy. 2025; 31(2):s501.

Mccradden, MD; London, AJ; Gichoya, JW; Sendak, M; Erdman, L; Stedman, I; Oakden-Rayner, L; Akrout, I; Anderson, JA; Farmer, L-A; Tikhomirov, L; Van Der Vegt, AH; Verspoor, K; Liu, X. CANAIRI: the Collaboration for Translational Artificial Intelligence Trials in healthcare. Nature Medicine. 2025; 31(1):9-11.

Moses, J; Adler, J; Saeed, SA; Firestine, AM; Galanko, JA; Ammoury, RF; Bass, DM; Bass, JA; Bastidas, M; Benkov, KJ; Wohl, DA; Zikry, M; Boyle, BM; Kappelman, MD. Low Anti-Tumor Necrosis Factor Levels During Maintenance Phase Are Associated With Treatment Failure in Children With Crohn's Disease. Inflammatory Bowel Diseases. 2025; 31(7):1841-1850.

Munce, SEP; Jarrett, C; Senthilnathan, V; Luong, D; Allemang, B; Bailey, K; Biddiss, E; Britto, MT; Buchanan, F; Cassidy, C; Micsinszki, S; Niles, C; Wright, FV; Toulany, A. Development of a Framework for Youth- and Family-Specific Engagement in Research: Proposal for a Scoping Review and Qualitative Descriptive Study. JMIR Research Protocols. 2025; 14:e65733.

Murphy, BN; Crosby, LE; Kinebrew, VR; Roswick-Didier, M; Lannon, C. Partnering With Patients and Families on the Roadmap for Emotional Health. Journal of Participatory Research Methods. 2025; 6(4).

Nidey, N; Kaplan, HC; Ford, S; Prasad, M; Lannon, C. Perinatal Naloxone Care Practices: Survey Results From Persons With OUD and Providers. Journal of Addiction Medicine. 2025; 19(1):62-67.

Opel, DJ; Gerstein, MT; Carle, AC; Fournier, AK; Hargraves, I; Lafata, JE; Lipstein, EA; Mallinson, T; Moise, N; Neuman, HB; Simpson, M; Schwartz, A; Stevens-Lapsley, JE; Dickert, NW. Saving Shared Decision-Making. Journal of General Internal Medicine. 2025; 40(8):1844-1847.

Orellana-Villazon, VI; Desante-Bertkau, JE; Smith, N; Previtera, M; Lipstein, EA. Exploring Shared Decision-Making Training in Pediatrics: A Scoping Review. Academic Pediatrics. 2025; 25(4):102805.

Pallotto, IK; Carle, AC; Anderson, CB; Ennin, N; Ammon, MA; Lipstein, EA. "The Doctor Only Knows What He Knows, but I Know What I Know:": Parent Perspectives on Shared Decision Making with Adolescents. MDM Policy & Practice. 2026; 11(1):23814683251409819.

Phan, T-LT; Rhodes, ET; Arasteh, K; Lewis, AM; Eneli, I; Haemer, MA; Kirk, S; Stoll, JM; Werk, LN; Lannon, CM; Forrest, CB. Association Between Obesity-Related Health Factors and Patient-Reported Outcomes: Linking Patient-Reported Outcomes to PEDSnet Electronic Health Record Data. Childhood Obesity. 2025; 21(5):438-448.

Phelan, R; Rotz, S; Dandoy, CE; Auletta, JJ; Badia, P; Bhatt, NS; Ballard, SA; Blacken, R; Daraiseh, NM; Desmond, C; Pai, A; Tarquini, S; Fitch, TJ; Hartley, D. Multicenter Study on Caregiver Experiences in Pediatric Hematopoietic Stem Cell Transplantation: Part II. Treatment Challenges, Communication Barriers, and Caregiver-Driven Approaches to Mitigation. Transplantation and Cellular Therapy. 2025; 31(8):590.e1-590.e16.

Plevinsky, JM; Lois, BH; Sood, E; Lannon, CM; Peterson, LE; Crosby, LE. Increasing Capacity to Address Emotional Health for Children with Chronic Conditions and their Families: Roles for Pediatric Psychologists. Translational Behavioral Medicine. 2025; 15(1).

Prideaux, J; Britto, MT; Vaughn, LM; Auger, KA; Fetters, CD; Hoffman, JM; Kim, JM; Walsh, KE. Key partner priorities for measures of safe outpatient paediatric medication use. BMJ Quality and Safety. 2025.

Raynal, EA; Pallotto, IK; Brady, JM; Cortezzo, DE; Lipstein, EA. Balancing survival and suffering: factors influencing parental decision making after periviable consultation. Journal of Perinatology. 2025; 45(6):739-744.

Sampson, M; Parker, L; Dandoy, CE; Auletta, JJ; Chapman, LR; Cook, E; Craddock, J; Culbertson, C; Daraiseh, N; Diaz, J; Snyder, AJ; Staton, S; Wall, SA; Badia, P. Variation in Central Venous Catheter Practices and Complications after Stem Cell Transplant: A Multi-Center Survey of the Engraft Learning Network. Transplantation and Cellular Therapy. 2025; 31(2):s535-s536.

Seid, M; Gamel, B; Woolf, B; Hartley, DM; Dunn, M; Vinson, AH. Engagement as a mechanism of action in collaborative learning health systems. Learning Health Systems. 2025; 9(2):e10459.

Seid, M; Bridgeland, D; Schuler, CL; Hartley, DM. An agent-based model to advance the science of collaborative learning health systems. PLoS ONE. 2025; 20(9):e0332054.

Sitzman, TJ; Chee-Williams, JL; Singh, DJ; Cordero, KN; Beals, P; Britto, MT. Achieving and Sustaining Standardized Measurement of Treatment Outcomes in Children With Cleft Lip/Palate: Pilot Study of a Multifaced Implementation Strategy. Cleft Palate-Craniofacial Journal. 2025; 10556656251382528.

Sokolowski, DJ; Mai, M; Verma, A; Morgenshtern, G; Subasri, V; Naveed, H; Yampolsky, M; Wilson, MD; Goldenberg, A; Erdman, L. iModEst: disentangling -omic impacts on gene expression variation across genes and tissues. NAR Genomics and Bioinformatics. 2025; 7(1):lqaf011.

Subasri, V; Brew, B; Laverty, B; Erdman, L; Guha, T; Hansford, JR; Cairney, E; Portwine, C; Elser, C; Finlay, JL; Schiffman, JD; Pugh, TJ; Malkin, D; Goldenberg, A. Peripheral blood DNA methylation predicts the early onset of primary tumor in TP53 mutation carriers. Nature Communications. 2025; 16(1):7976.

Thienprayoon, R. The maturation of grief education in medical training. Journal of Hospital Medicine. 2025; 20(2):207-208.

Thomson, JE; Musial, A; Steuart, R; Benscoter, D; Callahan, S; Haslam, DB; Rafferty, M; White, CM; Bosse, D; Timmons, KM; Britto, MT; Schondelmeyer, AC; Shah, SS. Recommendations for Pneumonia in Hospitalized Children With Neurologic Impairment. Pediatrics. 2025; 155(4).

Tubbs-Cooley, HL; Carle, AC; Mark, BA; Gurses, AP; Pickler, RH; Hall, PD; Bartman, T. Nurse Workload and Missed Nursing Care in Neonatal Intensive Care Units. JAMA pediatrics. 2025; 179(12):1335-1342.

Venne, DM; Hartley, DM; Dorris, CS; Torres, LM; Malchione, MD; Mitgang, EA; Goodman, JL. Strategies for identifying and using diverse global health data: perspectives from data searching and meta-analyses on antimicrobial resistance. Discover Public Health. 2025; 22(1):853.

Weaver, JK; Logan, J; Van Batavia, JP; Weiss, DA; Long, CJ; Smith, AL; Zderic, SA; Gan, Z; Godlewski, K; Broms, R; Martin-Olenski, M; Huang, J; Fan, Y; Tasian, GE. Machine Learning Analysis of Videourodynamics to Predict Incident Hydronephrosis in Patients With Spina Bifida. Journal of Urology. 2025; 214(1):80-89.

Weaver, JK; Logan, J; Van Batavia, JP; Weiss, DA; Long, CJ; Smith, AL; Zderic, SA; Gan, Z; Godlewski, K; Broms, R; Martin-Olenski, M; Huang, J; Fan, Y; Tasian, GE. Reply by Authors. Journal of Urology. 2025; 214(1):88-89.