When you contact us, a nurse coordinator will discuss your child’s previous care and arrange to have medical records forwarded to the center.

Once the necessary information has been gathered, all the specialists on the CHARGE team meet to review your child’s case and, together, develop a plan of action.

The nurse coordinator will then confer with your family to arrange a visit. During this visit, your child may be seen by multiple caregivers who have reviewed the records and are familiar with the medical needs of children with CHARGE syndrome.

Results of these examinations and any new testing are then relayed to you, your primary care provider and the team for further review and action as needed.  

Throughout this process, you may contact our nurse coordinator if you have questions. You also may arrange for findings to be sent to your child’s primary physician, if you wish.