Diagnosis and Evaluation

Most patients come to the Center through a referral from their pediatrician. Parents can also reach out to us. Once we receive your child’s information, our team will review all medical notes and imaging tests.

In most cases, we’ll schedule a visit to meet with your child and assess their condition in person. Depending on your child’s age, symptoms and needs, you may meet with several experts at once in our multidisciplinary clinic. These specialists can include:

  • Neurosurgeons
  • Plastic surgeons
  • Neurologists
  • Ophthalmologists
  • Audiologists
  • Geneticists
  • Aerodigestive experts

After the assessment, we may have your child undergo more imaging tests, such as a computed tomography (CT) scan, head ultrasound or 3D laser scan. We use detailed 3D imaging to confirm a diagnosis and help us plan the best treatment path.

We’ll work with you to coordinate any pre-surgery appointments, such as blood tests or imaging. In some cases, we may start to coordinate these appointments during your first visit.

Once we determine what type of craniosynostosis your child has, our team will work with you to choose the right treatment plan for your child’s needs. Craniosynostosis treatment involves surgery to open and expand the fused skull bones. The type of surgery we recommend will depend on your child’s age and specific diagnosis. Learn more about our craniosynostosis treatments and services.

After Surgery

After surgery, your child may spend some time in the intensive care unit (ICU). Once your child is out of the initial recovery period, we will move them to a different floor in the hospital. Most kids stay in the hospital between one and five nights depending on their type of surgery.

Once your child leaves the hospital, you’ll come back for a follow-up appointment with your child’s surgeon two weeks later. Most children who undergo open surgery will also return for a three-month follow-up. Additional appointments will be scheduled as needed. After that, you will have yearly follow-up appointments until your child is about 6 years old.

If your child needs a helmet, we’ll check in every three months until your child no longer needs the helmet. After that, we’ll schedule yearly follow-ups until your child is about 6 years old.

Our team will share all treatment details with your pediatrician or referring doctor. This process will help make sure you receive seamless care throughout your child’s development.