At the Comprehensive Epilepsy Center, our team takes a holistic approach. This is important, because epilepsy and the therapies used to treat it can affect many aspects of a child’s life—physical, psychological and social.
The members of our highly specialized team work together to evaluate each child’s condition from multiple perspectives.
- Neurologists who specialize in epilepsy care meet with patients and families during their first visit. They lead the multidisciplinary team in creating an individualized treatment plan and sharing it with the family.
- Nurse practitioners hold advanced degrees and have extensive experience in caring for children with epilepsy. After patients have been diagnosed and have started their treatment plan, these nurse practitioners provide follow-up care in the clinic. Our physicians are always available when questions or concerns arise.
- Clinical psychologists are part of the initial evaluation process, and also meet with patients and families at every follow-up visit. Their expertise is essential, since children with epilepsy are at increased risk for difficulties in learning, attention, development, mood and behavior. A psychologist screens each patient regularly to identify any problems early, when treatment often can be most successful.
- Our clinical pharmacist monitors each patient’s medications. This is especially helpful for patients with hard-to-control seizures and for those who are taking medications for other health concerns, since their drug regimens can be quite complex.
- A genetic counselor meets with families when it seems that the child’s epilepsy may be caused by genetic factors. She asks questions about the family’s health history and explains what genetic testing involves. The results of genetic testing can help the team determine which type of treatment will be most beneficial for the child.
- Dietitians support patients and families who are interested in adopting a ketogenic diet.
- Social workers help families address non-medical obstacles to care. This can include anything from helping them obtain financial assistance to meeting with a school nurse to discuss the child’s care plan.
Before and After Your Visit
Here is some information about our clinic practices so that you know what to expect. You can reach anyone in our clinics by calling 513-636-4222.
Non-urgent Question or Concern
If you have a non-urgent question or concern about your child’s condition, please call the clinic and ask to speak with your nurse or medical assistant by name. Their names are on the summary you receive at the end of each clinic visit. If the nurse or medical assistant is not available when you call, please leave a voicemail message, and your call will be returned as soon as possible.
We ask that you call if your child:
- Has a seizure (if your child has many seizures over the course of the day/week, we will work with you to determine how often you need to call in)
- Experiences medication side effects
- Or if you have any questions about your child’s care or condition
If you are calling the clinic with an urgent matter during office hours, please ask for the “urgent nurse.” If you are calling after hours, call the clinic and follow the telephone prompts, and the answering service will page the doctor on call. After speaking to the doctor, please call the clinic and leave a detailed voicemail message to explain the reason you called and any changes that were made to your child’s regimen.
Your child’s care team will establish a follow-up schedule for your child after the initial appointment. You are responsible for making your child’s follow-up appointments and scheduling tests, unless otherwise specified.
Follow-up appointments are handled by a nurse practitioner and/or your child’s epileptologist (neurologist who specializes in the treatment of epilepsy).
Canceling an Appointment
If you know ahead of time that you will be unable to keep an appointment, please call as soon as possible so that we can offer it to another patient. Please call us even if you are canceling the day of your appointment.
If You Are Running Late
If your child arrives late for an appointment, he or she may be asked to wait until the end of clinic hours to be seen. Please call if you are running late, so that we can let you know if this is the case. We may ask you to reschedule your child’s appointment for another day.
Your Child’s Medication
Please bring a complete list of all of your child’s medications to every clinic appointment, including the name of the drug(s) and the dosage in milligrams.
Keeping us Updated
Please supply your cell phone number or another number where you can be reached. Also, call the clinic if your telephone number or address changes.