We will do our best to make your first visit to the DSD Center as informative, comprehensive and convenient as possible for you and your family.
Depending on your or your child’s specific medical condition, you will meet with one to five DSD specialists from our interdisciplinary team. Before the initial visit, your or your child’s primary care physician or our DSD clinic coordinator may arrange for testing to be done ahead of time. Sometimes, testing occurs during your visit, after the clinical assessment. Test results may be reviewed with you during your scheduled visit.
New patient visits are scheduled as one-hour appointments to help us get to know you and meet your or your child’s needs. This visit gives you the chance to ask as many questions as needed to help you understand the DSD diagnosis and the treatment options available. We hope to answer all your questions and provide a complete evaluation to best care for you or your child and family.
Care for Patients from Birth to Adolescence
The care we provide for our patients, from birth through adolescence, is focused on the needs of the entire family. This includes medical care for our patients and the psychosocial support needed to ensure families’ well-being while caring for a child with complex medical needs. During this time of growth and development, we encourage parents to be active partners in the care team.
- Clinic visits include parents or guardians to be present and to provide us with accurate health information regarding their child. Teens may request the physical exam without the presence of their parents to ensure privacy.
- Education related to diagnosis, testing and treatment is directed to parents or guardians, and the child or teen as appropriate.
- Psychosocial support is available to help counsel parents or guardians and patients regarding issues related to their DSD diagnosis, care and outcomes.
Care for the Young Adult
- Clinic visits may include parents or guardians to be present only at the direction of the young adult patient to ensure autonomy and privacy.
- Each patient is provided with the most up-to-date education and resources related to his or her specific condition.
- Psychosocial support is available to patients and / or families, emphasizing the importance of treatment adherence and follow-up for medical care.
- Psychosocial assessment and support are available to equip patients with skills to achieve healthy emotional, physical and sexual outcomes.