A family with a child newly diagnosed with
faces many levels of anxiety and stress. In addition, children who grow up with heart disease face significant physical and emotional challenges.
Because we're committed to family-centered care at Cincinnati Children's Heart Institute, we provide support groups tailored specifically for families of children with heart disease. Families are invited to participate in these support groups in which parents and children can learn from each other. Support group members sponsor an annual summer picnic, and they are involved in other events including a family camp weekend, a week-long summer camp for kids with heart conditions and a family education day.
Mended Little Hearts of Cincinnati
Mended Little Hearts of Cincinnati provides families, caregivers and patients with heart defects and heart disease an outlet through which they can find answers, education, resources and access to local-based peer-to-peer support. With Mended Little Hearts, patients with congenital heart defects (CHD) and their families find strength and understanding from those who share the same experience. The Cincinnati chapter is one of 85 Mended Little Hearts chapters around the nation. It is volunteer based and is organized and run by local Heart families and CHD patients, who can truly relate to the concerns of Congenital Heart Disease.
Join Mended Little Hearts at their quarterly meetings at Cincinnati Children's. For upcoming meeting details, visit the calendar page or email firstname.lastname@example.org for more information. Childcare is provided for our families.
Membership is free and has no obligation. To connect with others, visit Mended Little Hearts of Cincinnati and follow them on Facebook.
You can also reach out to the organization co-chairs to learn more:
Lisa Butler, Lead Coordinator
Leslie Sams, Co-Coordinator
Disclaimer: Although Mended Little Hearts of Cincinnati collaborates with Cincinnati Children's Hospital Medical Center, it is not affiliated with the hospital. Mended Little Hearts is a program of the nationally recognized nonprofit organization, Mended Hearts, Inc.
Adult CHD Survivors of Cincinnati
Adult CHD Survivors of Cincinnati is a collaboration effort to provide Adult Congenital Heart Disease (ACHD) patients, family and friends with a support and educational program. We provide one-on-one support, community outreach/fundraising opportunities, educational opportunities, social events and advocacy for CHD families. We are based in Cincinnati and directly serve patients at Cincinnati Children's, however we provide online support through email and social media to patients outside the Cincinnati area.
The grassroots effort is lead by a small group of passionate ACHD patients dedicated to bringing a voice to the ACHD community. To provide the best support and most up to date education, we collaborate with several ACHD/CHD organizations including the Heart Institute's Adult and Adolescent Congenital Heart Disease Clinic, Adult Congenital Heart Association, Children's Heart Association of Cincinnati and Mended Little Hearts of Cincinnati. Through these professional relationships we are able to provide support or refer support, to anyone impacted by Congenital Heart Disease.
Join us each month for the Adult CHD Survivors meetings at Cincinnati Children's and connect with us on Facebook.
To learn more about Adult CHD Survivors of Cincinnati, contact Danielle:
Danielle Fritsch, Coordinator