Cardiac Tube Weaning Care and Expertise
National Expertise in Cardiac Tube Weaning
Our program focuses specifically on tube weaning for children with congenital heart disease. These children often have unique feeding challenges related to heart surgery, growth and recovery. Our team studies cardiac tube weaning outcomes and shares what we learn with other programs across the country.
Team-Based Feeding Evaluation
Your child is evaluated by a coordinated team that may include a cardiology provider, nurse, registered dietitian, speech therapist and lactation specialist. During the visit, we review your child’s medical history, check vital signs and observe a feeding. This team-based care helps us understand how heart health, nutrition and feeding skills work together.
Personalized Tube Weaning Plan
Every child receives a personalized weaning plan based on their heart condition, growth and feeding abilities. Parents track daily feedings and weight. Our team reviews progress and adjusts the plan to help your child transition safely.
Telehealth and Remote Monitoring Support
Many families complete tube weaning at home with guidance from our team. Families track weight, hydration and feeding progress. Our specialists review this information and provide regular video visits and check-ins to ensure your child stays safe and continues to grow.
Dedicated Support for Families
Families receive one-on-one support from a dedicated nurse coordinator throughout the process. Before your appointment, the nurse gathers records and prepares your child’s case for our weekly team review. During the weaning process, families receive regular check-ins, messaging support and video visits.