The 2017 Matthew and Andrew Akin Foundation 700 Miles to Hope Bike Ride was held Sept. 16-22, 2017.
Parents, survivors, friends and supporters each have a story to share as to why they ride. Some of the cyclists rode to raise awareness about hemophagocytic lymphohistiocytosis (HLH). Some are parents whose children have died from the immune disorder. Some have children who survived. One is a survivor himself. The cyclists have formed a bond based on a shared experience of loss and love and a desire to do something about it. Meet the 2017 riders.
Benefiting the HLH Center of Excellence at Cincinnati Children's
The Matthew and Andrew Akin Foundation continues to raise awareness for HLH and funding toward a cure. The bike ride supports the HLH Center of Excellence and all of the funds raised through the bike ride will go directly to the HLH Center of Excellence.
Cincinnati Children’s HLH Center is home to the most experienced care team in North America treating HLH. The center provides a single resource for complete, family-centered care, from diagnosis to curative treatments and long-term follow-up support. Emphasis is placed on educating families on the complexities of HLH while their children are diagnosed and treated. The team believes that it is this knowledge that empowers families, providing some control over their difficult situation.
HLH patients receive coordinated care from a team experienced in managing this complex disease. Onsite labs mean quick results for blood tests which are crucial to a definitive diagnosis of HLH. The only two clinical laboratories in North America to test for all known genetic causes of HLH are here at Cincinnati Children's.
Researchers at Cincinnati Children's are conducting many studies that could change the face of diagnosis and care for HLH. The HLH Center of Excellence has physician scientists who are focused solely on basic and translational research in HLH. The clinical and research pioneers at Cincinnati Children's are committed to changing the outcome for children with HLH.
An HLH Journey