Rasopathy Expertise and Coordinated Care
Nationally Ranked Pediatric Hospital
Cincinnati Children’s is ranked among the best children’s hospitals in the nation by U.S. News & World Report for more than 15 years. Families from across the country trust our expertise for rare genetic conditions.
Advanced and Targeted Therapies
Our team has led the use of targeted medicines for children whose symptoms have not improved with standard care. Because we are part of a leading research hospital, families may have access to advanced treatment options not widely available elsewhere.
We also tailor recommendations based on your child’s specific gene change. This helps us match care to your child’s exact diagnosis.
Coordinated, Whole-Child Care
Rasopathies can affect many parts of the body. That is why your child may see experts in genetics, cardiology, endocrinology, gastroenterology and neurology in one coordinated visit.
Our specialists meet together the same day to adjust the plan in real time. This reduces repeat appointments and gives you one clear message.
We also provide developmental screening, neuropsychological testing referrals and long-term monitoring for concerns such as heart changes or tumor risk.
Dedicated Support from Start to Finish
You will work closely with our genetic counselor and study coordinator, who help manage scheduling and communication across specialties. They also connect families with advocacy groups and national Rasopathy researchers when desired.
About 20% of our families come to us for a second opinion, and many travel from outside the region. We partner with Concierge Services to support travel needs and make visits easier.
