Tuberous Sclerosis Clinic
Patient Stories

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Tuberous Sclerosis Patient Stories

The Tuberous Sclerosis Clinic at Cincinnati Children's helps improve the quality of children's lives. Through the journeys we've shared with patients and families, we understand that reassurance and support can come from stories shared by families in similar situations.

Tuberous Sclerosis

Abigail's Story

Tammy and her daughter, Abby, who has tuberous sclerosis, share their thoughts on the importance of participating in research studies.

Aiden baseball smiling.

Tuberous Sclerosis

Aiden’s Story

Tuberous sclerosis patient remains seizure-free following successful epilepsy surgery at Cincinnati Children’s.

Tuberous sclerosis (TS) patient, Cameron Rawlings.

Tuberous Sclerosis

Cameron's Story

The Rawlings family travels 2,000 miles each year to visit the Tuberous Sclerosis Clinic at Cincinnati Children’s.

Tuberous Sclerosis

Frannie's Story

Brain surgery at Cincinnati Children's helped this tuberous sclerosis patient find relief.

Research