I’ll never forget the date that changed our lives forever—July 9, 2014. With my mom on one side and my husband, Kenyon, on the other, I cradled our youngest daughter, Saniya, and listened to the disturbing and overwhelming news that she had sickle cell disease (SCD). She was only 1 week old and facing a life-threatening, chronic condition that could cause severe pain, organ failure or even strokes.
I felt helpless and so fearful for her health and future.
On Christmas Day, just short of turning 6 months old, Saniya experienced her first SCD crisis and was admitted to Cincinnati Children’s. That was the first of many times we’d be there, watching her doctors and nurses care for her. What amazed me, though, was how their care extended beyond Saniya—they cared for our family, too.
I truly believe Saniya is thriving today because of the grace of God and the incredible researchers, doctors and nurses at Cincinnati Children’s. They are working hard to discover new and better treatments for SCD and are even close to curing this life-threatening and debilitating disease.
We’re so thankful for both the treatment and care received from our team at Cincinnati Children’s. That’s why our family is dedicated to raising awareness, support and money for SCD research and patient programs. We invite others to contribute to raising awareness and money to support SCD at Cincinnati Children’s. Together, we’re giving our daughter and children like her a brighter, healthier future.
By Rogelle, grateful mom of Saniya.