Bladder exstrophy is treated with surgery by a pediatric urologist. A pediatric orthopedic surgeon will work with the urologist to put the child’s pubic bones in the proper place.
Different hospitals offer different approaches to surgery for bladder exstrophy. Sometimes the repair can take place in one surgery. At other times the repair takes several surgeries over months or years. The goal is to plan the surgical approach that will best meet your child’s needs as they grow.
What Happens after Surgery?
After surgery, children with bladder exstrophy will require lifelong follow-up care. This helps ensure the best health and quality of life possible.
Children with bladder exstrophy benefit greatly when they receive ongoing care from a variety of team members.
The care team will provide a personalized care plan. They will monitor your child throughout childhood and adolescence. Your child will be scheduled for regular follow-up visits and testing to ensure their bladder and kidneys continue to develop in a healthy way.
It is very common for children with bladder exstrophy to experience emotional issues related to their condition. Parents may struggle with complicated feelings about having a child with this condition. A psychologist can be part of the care team to help your family understand these feelings and deal with them together.