Going Home / Follow-Up
Although it is exciting to go home from the hospital after the kidney transplant, most children are also nervous about it. It takes some time for your child to get used to their new kidney and all the new medications they are taking.
Don’t worry. You’ll be able to reach someone at Cincinnati Children’s 24 hours a day if you have questions or concerns. You will be able to call the transplant coordinator during the weekdays or the kidney doctor who is on-call every night and weekend. Don’t ever feel that your question is unimportant.
We want to make sure you are comfortable knowing what to do to take care of your child and that your questions and concerns are addressed.
For the first several months after the transplant, your child will return to the hospital for clinic visits several times a week. Your child will have blood tests and be examined at each visit so that the transplant team can check kidney function, adjust medications and detect complications.
Over time, the frequency of the clinic visits will decrease, but it is important for you to understand that your child will always need regular follow-ups with the kidney doctor to check the transplant function.
First 4-6 Weeks after Kidney Transplant
For the first four to six weeks after the kidney transplant, the Pediatric Kidney Transplant Program team makes the following recommendations:
- Wear a mask when coming in and out of the hospital and while in any waiting area. This is to protect your child from the germs of others in the building.
- Do not send your child to school or day care. This is the time that transplant recipients are most at risk for infection.
- Avoid crowded indoor places, such as movie theaters, malls or restaurants.
- Avoid being around people with an obviously contagious illness.
- Good hand washing is always important, but the family needs to be extra careful during this time. Wash your hands often.
Discharge / Clinic Information
During the first few weeks following the kidney transplant, the Pediatric Kidney Transplant Program team will probably make many medication changes.
It is good for you to know exactly what your child is taking. Bring the pill bottles with you to clinic if you have questions. Also, bring your child’s medication record to each visit.
If you have questions or concerns, call the Nephrology Division:
- 8:30 am-5 pm, Monday-Friday, 513-636-4531, or 1-800-344-2462, ext. 64531
- Evenings, nights and weekends, call the hospital operator, 513-636-4200, or 1-800-344-2462, and ask for the nephrology doctor on-call.
Remember: No question or symptom is silly. We want to hear from you even if it seems trivial or insignificant. We care about your child and want the best recovery possible.
Once you have been discharged from the hospital, your child will need to be seen in clinic at least three times a week for the first several weeks. The Nephrology Clinic is on the first floor of Location A.
- Your child may take all of their medications prior to clinic except their anti-rejection medicine. Bring this medicine with you to take after your child’s blood is drawn.
- Every time you come to clinic you will need to stop at the Test Referral Center (TRC) first to have your child’s blood drawn. The center is on the first floor of Location A. If you have a hemodialysis catheter, central venous line or port, your labs will be drawn in clinic.
- Your child’s blood needs to be drawn in the morning within 30-60 minutes of their anti-rejection medication dose time so that we can get the results back the same day.