Improving Nutritional Outcomes in Cystic Fibrosis

Our lab has been investigating barriers to dietary adherence for children (ages 3 to 12) with cystic fibrosis for more than 25 years. We have utilized these findings to develop and test interventions to improve dietary adherence. A large randomized clinical trial published in Archives of Pediatrics and Adolescent Medicine demonstrated the efficacy of the intervention, Be-In-CHARGE!, over dietary education only for improving caloric intake and weight gain. 

Be-In-CHARGE! Website Intervention

To provide nationwide access to Be-In-CHARGE! for children with CF, the CF Foundation supported our lab as we translated the face-to-face program into a web-based intervention. This required novel approaches to dietary monitoring. Thus, this program included the development of an iPod touch application for keeping food records and allows two-way interaction and feedback between the user and the web-based intervention.

The lab received a Place Outcome Award to conduct a pilot randomized trial of 20 participants to demonstrate the feasibility of the program and to collect data on the effectiveness of the intervention. Patients are being enrolled from the Cincinnati Children’s CF and the Johns Hopkins CF Centers.