We will do our best to make your first visit to the DSD Center as informative, comprehensive and convenient as possible for you and your family.
Depending on your or your child’s specific disorder, you will meet with one to five DSD specialists from our interdisciplinary team. Before the initial visit, your or your child’s primary care physician or our DSD nurse coordinator may arrange for testing to be done ahead of time. Sometimes, testing occurs during your visit, after the clinical assessment. Test results may be reviewed with you during your scheduled visit.
New patient visits are scheduled as one-hour appointments to help us get to know you and meet your or your child’s needs. This visit gives you the chance to ask as many questions as needed to help you understand a DSD diagnosis and the treatment options available. We hope to answer all of your questions and provide the most complete evaluation necessary to care for you or your child and family.
Care for Patients from Birth to Adolescence
The care provided for our patients, from birth through adolescence, is focused on the needs of the entire family. This includes medical care for the patient and the psychosocial support necessary to ensure your family’s well-being while caring for a child with complex medical needs. During this time of growth and development, parents are encouraged to take an active role as a partner in the care team.
- Clinic visits include parental or guardian presence and interaction with our team to provide us with the most accurate health information regarding your child. Teens may request the physical exam without the presence of the parent to ensure privacy.
- Education related to diagnosis, treatments and testing is directed to parents or guardians, and the child or teen as appropriate.
- Psychosocial support is available to help counsel parents or guardians and patients regarding issues related to DSD diagnosis, management and outcomes.
Care for the Young Adult
- Clinic visits may be done with parental or guardian presence only at the direction of the young adult patient to ensure autonomy and privacy.
- Each patient is provided with the most up-to-date education and resources related to his or her specific condition.
- Psychosocial support is available to the patients and / or families, emphasizing the importance of treatment compliance and routine follow-up medical care.
- Psychosocial assessment and support are available to equip the patient with the skills needed to achieve a healthy emotional and sexual well-being.