Resources for Patients and Families

Children who are Deaf-Blind with Cochlear Implants: Determining the Benefits and Challenges of Cochlear Implants for Children with Combined Hearing and Vision Loss

This website describes the study on cochlear implants in children who are deaf-blind. It includes resources to help understand a child’s communication needs in order to guide therapeutic intervention.

This is Ohio’s project to support families, schools, and therapists in effective interventions for children with dual sensory impairment. They provide technical assistance, learning sessions and have a lending library.

This organization is a partnership with families and professionals. This website includes excellent resources for families, medical professionals, and educators regarding the needs and gifts of children with CHARGE syndrome.

OCALI strives to build state-and system-wide capacity to improve outcomes of children with complex needs through leadership, training and professional development, technical assistance, collaboration, and technology. They view the importance of partnership with families as vital to the success of children they serve.

They have a number of webinars and provide training across the state.