Support and Resources
The Hemophilia and Bleeding Disorders Program provides extensive support for families dealing with issues related to their bleeding disorders.
Support at School
We support patients and families in the school setting by offering:
- Personalized information for school staff or school visits by a nurse care manager, who can talk to teachers and staff about your child’s condition
- The Cincinnati Children’s School Intervention Program, which offers services to help children succeed in the academic setting
Cancer and Blood Diseases Institute Summer Camp
The Cancer and Blood Diseases Institute at Cincinnati Children’s hosts a week-long summer camp at Camp Joy Outdoor Education Center in Clarksville, Ohio. The staff works closely with the Cincinnati Children’s medical team to create a safe, supportive environment for children, no matter what their abilities. The camp is an opportunity for kids ages 7-17 years to develop new skills, form lasting friendships and build their self-esteem, all while having a great time. Questions? Email our team.
Sports and Fitness
People with a bleeding disorder who exercise regularly in a safe manner can experience fewer bleeds because exercise makes their muscles stronger and their joints more stable.
Activity Recommendations:
Infants (birth to 1 year) should have:
- Floor play in a safe environment every day
- No screen time (TV, smart phones, tablets, etc.)
Children (2-5 years) should have:
- Three hours of active play that can be spread throughout the day
- Less than one hour of screen time a day. Screen time should be high quality, educational programming.
Kids and teens (5-17 years) should have:
- 60 minutes of exercise a day that can be broken up into smaller amounts
- Limited screen time
Before starting a new activity, check with your child’s hematologist or physical therapist. They can help you choose which sports or activities are best for your child’s abilities and joint health.
They also can provide you with information about how to make sure your child is exercising safely and what to do if an injury happens.
Videos:
Hemophilia: Sports and Fitness
Hemophilia: Keeping the Motivation
Hemophilia: Healthy Choices
Additional Resources
Other organizations provide extensive support and education for patients and families dealing with hemophilia, including:
- National Hemophilia Foundation’s Steps for Living: Education for all life stages
- National Hemophilia Foundation’s Playing It Safe Manual
- Tri-State Bleeding Disorder Foundation
- FAMOHIO
- The Hemophilia Federation of America
- Hemophilia of Georgia Inc. Handbook
- National Hemophilia Foundation
- The World Federation of Hemophilia
