At the Hemophilia Treatment Center at Cincinnati Children’s, we provide extensive support for families dealing with issues related to hemophilia.
Preparing for an Emergency
Our commitment to holistic care includes helping patients prepare for emergencies. For example, all patients receive a personalized emergency card stating their type of bleeding disorder, its severity, appropriate treatment, factor dosage, allergies and other specialized medical information. This card is updated at clinic visits to ensure that the information is current.
We partner with our local hemophilia chapter, the Tristate Bleeding Disorders Foundation, to provide Medic Alert memberships and identification tags, such as bracelets and necklaces, to hemophilia patients seen at Cincinnati Children’s Hemophilia Treatment Center. This is a service we provide as a convenience to our patients.
Travel letters can be provided, upon request, for patients who are going out of town. This letter explains the patient’s hemophilia type and treatment and can help facilitate rapid and appropriate therapy in an emergency. In addition, we can provide the names of hospitals nearest a patient’s travel route that offer hemophilia treatment.
Support at School
The Hemophilia Treatment Center at Cincinnati Children’s offers additional support to help patients and families in a school setting. These include:
- School visits by a nurse care manager, who can make an informal presentation about hemophilia for teachers and staff at the child’s school
- The School Intervention Program, whose services are designed to help children succeed in the academic setting