“These types of disorders can affect various parts of the body, and we have to use patterns and clues to figure out the primary cause of what’s going on,” Dr. Ogbu said. “Working with a multidisciplinary team helps us get as comprehensive a picture as possible to the extent of the disease and how we can best treat it.”
Addison Benefits from Multidisciplinary Care Approach
Addison’s treatment falls under the umbrella of the Cincinnati Children’s Multiple Sclerosis and Neuroimmunology Center, a dedicated hub for children with neuroinflammatory conditions.
The center, created in 2021, combines a coordinated team of experts with cutting-edge treatments and a compassionate approach to care, Dr. Ogbu said. Specialists include neurologists, neuroimmunologists, neuro-ophthalmologists, rheumatologists, neuroradiologists, geneticists, psychiatrists, psychologists, and pathologists.
“Sometimes these types of diseases take a while to manifest what they truly are,” Dr. Ogbu said. “And sometimes there can be profound manifestations from the disease that can be devastating before we’re able to see the whole picture. We don’t have the benefit to watch and wait and see. We have to act quickly. The center allows us to do that.”
In Addison’s case, the definitive treatment decisions made by her care team at Cincinnati Children’s allowed her to not only recover most of her eyesight, but also return to a normal childhood.
While she’s receiving treatments for her condition and seeing various members of her care team regularly, Addison, now 9, is also playing volleyball, singing, and dancing, and dreaming of becoming a writer one day. She also gives presentations at school, so people better understand what she’s experiencing.
Dr. Shah said he couldn’t be happier that Addison is where she is today.
“Our goal is to get children healthy but to keep providing them with continued care, so they get all the services they need to get back to school and enjoying life. Addison is doing all that. With all that she’s been through, it warms my heart.”
(Published November 2023)