Sickle Cell Disease
Community Outreach

Community Outreach

The Comprehensive Sickle Cell Center at Cincinnati Children’s offers educational opportunities throughout the year for families, including the Annual Sickle Cell Research and Education Day, which provides information about current research studies.

Outreach and Education

We reach out to the broader community to raise awareness about sickle cell disease and sickle cell trait, through:

  • Participation in local health fairs, including Closing the Health Gap and the Midwest Black Family Reunion
  • Sickle Cell Sabbath, which encourages local faith-based organizations to raise awareness about sickle cell trait, sickle cell disease and the importance of minority blood donation. We organize this event as part of a statewide initiative of the Ohio Department of Health.

For more information about our community outreach and education efforts, contact Lisa Shook at or 513-636-7541.

Professional Education

The Comprehensive Sickle Cell Center trains and educates professionals in the field.

For example, each year we host a national Hemoglobinopathy Counselor Training Course for professionals who counsel families about the genetics of sickle cell disease and other hemoglobin disorders.

Our center is also the regional coordinating center for Sickle Treatment and Outcomes Research in the Midwest (STORM), which is a federally funded regional learning network for hematologists and primary care providers in Ohio, Indiana, Illinois, Michigan, Minnesota, North Dakota, South Dakota and Wisconsin. As part of the STORM Network, the center hosts a monthly telementoring opportunity for healthcare providers.

We want to raise awareness about sickle cell disease.
Cincinnati Children's is working to raise awareness about sickle cell disease.